Experimenting with under range T4 and increasing t3

[Hypomadness80]

Hi everyone!

Following from my last post a couple of months ago, I decreased my levo by 25mcg now on 100mcg, and increased my t3 by 6.25mcg. now on 31.25 ish mcg. I haven't had a blood test yet but thinking in trusting in the way I feel. I do see an improvement. Mood, energy, I don't go into a hole when my periods are coming, my bowels movement is increasing, going every 2 days now compare to once a week. I'm going to decrease my levo again to 75mcg and increase my t3 to 37.5mcg. my FT4 will certainly go under range. From my last post, jimh111 seemed to think that levo is not doing much for me and this a stucked to my head since. As I haven't had any good experience with it. I read a few posts on here of people who are on t3 only. I was born without a thyroid gland and I don't think I will go that extreme, but I wondered if there is any health issue which could occure with an under range T4.

Thank you in advance for any input .

[pennyannie]

HelloHypomadness

Well, I am on NDT and my T4 is just in the range - but this range is for people of Levothyroxine so I'm not bothered :

My T3 is at or a little over the range depending on the timing and if I've eaten before the blood draw but I am not hyper in any shape of form and now feel relatively well.

I've just quickly looked through your back history and think you 've gone through enough to trust and listen to your own body, and you can always do a " U " turn if you need to.

As you quite rightly say there are people who are on T3 only and so if you feel better with little or no T4 in your system, so be it. It's a fine balance and best done by the patient rather than a bunch of numbers and a computer.

P.S. I think the guidelines that the medical profession work to are for straight forward easy cases of hypothyroidism and probably work for around 85% of the patients - so job done : Apologies to everyone on here - but we are not straight forward cases, and the medical fraternity do not know enough to think outside the guidelines or aren't allowed to :

You haven't a thyroid : the NHS killed off mine by poisoning me with Radioactive Iodine : other people have Hashimoto's with their gland becoming increasing disabled : and other people have a gene malfunction and can't convert the Levothyroxine and I'm sure I've missed off a few other cases where Levothyroxine isn't the magic bullet.

Sadly at this point in time the NHS seem to believe that Levothyroxine is the answer and doesn't offer up easily anything else, and doctors are either unable to prescribe alternatives or even know of their existence and unwilling to try anything outside the guidelines, rather than use them, as a guide line and in an advisory capacity for treatment.

I don't think we fit in the boxes : and think we need made to measure :

[Hypomadness80 in reply to pennyannie]

Hi Pennyannie,

Thank you so much for your answer. It's very reassuring. As you said, I went through enough, and I decided to just go with how I feel. I haven't taken this decision lightly. I looked up at Paul Robinson's Facebook page "Recovering with T3' and read some of his posts plus the ones from here.

I don't know what I would have done without this forum.

Wether some advice worked or not, it still gave me more knowledge and the confidence to experiment.

I have also noticed there's very little posts or experience for people like me who are born without a thyroid gland, so I felt that everyone experience might not be for me. But a s we all know, this thyroid madness is very tricky and no two people are the same!

I'm finally starting to see a light at the end of the tunnel, and I want to see it getting brighter! ,😊

[Hypomadness80]

Hi.

My FT4 at the moment is around 12 for 12 to 22 range. Feeling much better but not quite there yet. I really don't think levo is doing much for me ... I've increased my t3 but haven't done a private blood test yet for the last couple of months. My FT4 levels were done by my last GP blood test 2 weeks ago...