Help with bloods please - Hypothyroid on 150mg of Levo.

[Music1]

Hi, I haven't had a blood test in a while with everything going on and having my little boy. I was rung by surgery this morning and told:

T4 9.8

Serum Free 5.5

TSH 0.19

My test was at 10:40am, I hadn't eaten or had Levo the night before. I am alternating between 150mg and 100mg daily. The lady on the phone suggested I no longer needed to be on Levo and the GP would give me a ring in a few days to discuss. If anyone can please shed any light it would be much appreciated. I didn't think Hypothyroidism could just go away. Obviously when I have to go back at the beginning of Aug for more bloods I will ask for a print out to clarify everything. Thanks for any help/ advice in advance.

[SeasideSusie Remembering]

Music1

The lady on the phone suggested I no longer needed to be on Levo and the GP would give me a ring in a few days to discuss.

Oh jeez, spare us from these idiots please 🙄

This "lady on the phone" I assume is a receptionist or secretary, well she's not qualified to tell you that, but I suppose someone else (maybe the GP) told her to pass on that message.

I didn't think Hypothyroidism could just go away.

No, it doesn't, unless it possibly temporary post-partum thyroiditis. If you have autoimmune thyroiditis (Hashimoto's) then test results and symptoms fluctuate, you may need to adjust your dose of Levo, but it doesn't go away.

T4 9.8

Serum Free 5.5

TSH 0.19

Please ask for a print out of your results as this will include the reference ranges and then we can accurately comment on them.

My guess is that your TSH is below range and so they think either you are hypERthyroid or you've been cured (impossible), remind them that Levo doesn't work like an aspirin does for a headache. The Levo is to replace your thyroid hormone which you don't make enough of yourself (hence your diagnosis of hypothyroidism).

Your T4 9.8 - presumably Free T4 (FT4) isn't likely to be over range, or is that Total T4?

[Music1 in reply to SeasideSusie]

Re: T4. I'm not sure to be honest. She didn't want to give me results over the phone. I will find out when they ring in a few days.

I def have Hashimotos. Was trying for a baby for many many years then found out high antibodies etc. Thanks for your help. I'm assuming they will lower my dose of Levo from 150mg which is fine. I will ask for a print out when I go in at the beginning of August for further bloods. I didn't think it would simply 'go away' but hoped it was a possibility after having my little one. Will re-post when I find out more. Thank you so much

[SlowDragon Administrator in reply to Music1]

Never ever agree to dose reduction without getting FULL Thyroid and vitamin testing first

That includes Ft3 alongside TSH and Ft4...likely to need to test privately as NHS frequently refuses

What vitamin supplements are you currently taking

Insist that GP test vitamin D, folate, B12 and ferritin levels BEFORE you will consider changing dose of levothyroxine

Low vitamin levels tend to lower TSH as conversion of Ft4 to Ft3 gets worse

Do you always get same brand of levothyroxine?

Possibly cheapest option for getting all tested via DIY finger prick test

TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Medichecks - JUST vitamin testing including folate - DIY finger prick test

medichecks.com/products/nut...

Medichecks often have special offers, if order on Thursdays

Come back with new post once you get results

[Music1 in reply to SlowDragon]

Thanks SlowDragon, I hate it when the don't properly give you results over the phone (as in levels). I'm only taking vitamin D supplements to be honest. I was taking iron supplements a while back but I ran out. I used to be so good at taking everything whilst I was pregnant and in trying to get pregnant but now I've let things slide.

I always get the same brand of Levo.

Thanks, am getting a phone call from a GP on Friday. I will say that I don't want a dose reduction till the other tests are done. I suspect he/ she will just reduce them anyhow. I have further tests booked beg of Aug prior to an MRI. Have you heard of people losing hearing in 1 ear relating to thyroid? Thanks for info. Will keep notes next to me when they call and ask for further test/test results or print out. Much appreciated. I don't have much faith in them and their understanding of this to be honest. I had to get all my initial tests done privately to be told it was Hashimotos as NHS wouldn't even give me 25mg of Levo. Thanks for your help