I was formally on 2 grains of WP thyroid , increased to 2.5 grains a few days before I stopped taking it, and my free t3 was high despite leaving 24 hours between the test and my last dose ( test was done first thing in the morning )
I felt nothing on WP which is why I've switched to the new brand im on now; but I'm just thinking about not getting high ft3 levels a second time. I'm taking this new one 3 times a day instead of all at once which feels a bit better, but I cant help but think this might not make a difference if my ft3 levels were high before even though it was 24hrs since I took my last dose when I did the blood test on WP.
Was on WP for quite awhile and felt absolutely nothing. Basal temps and pulse didnt budge, still felt cold etc, so I wasnt expecting ft3 to be so high. Is there anything I can do to stop having a high ft3 a second time with this new one?
Have no idea why my ft4 was in the upper range either. That never seems to budge. Before I started thyroid it was about the same. My last test at the docs showed my FT4 at 17 with the ref range been 10-20, if that helps
Thanks a lot ,
Would appreciate your input
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jconnor123
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Thing is, doesn't feel good reducing your dose when you already haven't felt much better on a particular brand with no change in temps. 2 months post WP, still crashing in the afternoon, waking up cold etc. I could either reduce it or stop so I just stopped
As Greygoose says, can't you just reduce it again? Also you need to stick to it for at least 6 weeks on the same dose, then get blood done, as if you keep increasing and decreasing it, you will not get a proper blood result.
Was on WP for quite awhile and felt absolutely nothing.
I felt nothing on WP which is why I've switched to the new brand im on now; but I'm just thinking about not getting high ft3 levels a second time.
If you were on NDT with high levels of Free T3 and felt nothing it is possible you have Resistance to Thyroid Hormone (RTH). In such cases people sometimes feel better on zero Levothyroxine/T4/NDT and high doses of T3.
Read posts and replies by DippyDame who has this condition.
Just a thought...do you know how well you convert T4 to T3
I ask because knowing my conversion was very poor (tested Dio2/homozygous) was what led me to eventually discover that I have a type of RTH.....long story. It's all in my profile.
I wasn't tolerating levo but it took many years to discover that, as my health gradually declined.
Your results show high FT3 which should indicate conversion is ok, but if you have a type of hormone resistance that high FT3 could be caused by an accumulation of T3 in the blood...mainly doing nothing and eventually being excreted. T3 only starts to work once it enters the tissues so if resistance stops it reaching there you will feel unwell despite a high FT3
There is no way of measuring cellular T3 at this point we have to dose by symptoms...but you haven't reached that point .
My FT3 is through the roof (sends medics who don't know their stuff running for the hills!)
I now take a huge single dose of T3 at bedtime (200mcg)....that will probably alter in time.
I self medicate....my medics know this but leave me to it.
I eventually concluded that a type RTH (may be genetic caused by an as yet undiscovered genetic variant, said a geneticist) must be my problem because I was tolerating higher and higher doses of T3 that would otherwise have made me very ill....or worse. I no longer test Frees
In my case it was the last resort and a very challenging journey over roughly 3 years.
Clearly I'm not a medic I've just had to research and learn along the way and without guidance from experienced forum members I wouldn't have had the confidence to keep going
This may or may not be what you need to know....it's only my experience. We are all different with different needs.
Much of my journey has been trial and error but always focusing (almost daily)on my resting heart rate, my basic temp and my blood pressure to avoid overmedication
How you feel is also important when treating thyroid disease.....and medics rarely ask that question! They focus on numbers and forget about clinical evaluation
If I may suggest anything it would be that you trial T3-only in case the T4 element of NDT is a problem.
Here, we're all in this thyroid mess together so please keep us posted and hopefully with members support things will improve for you. Just ask!
How high was your FT3? There is more than one "standard range" in use, depending on which lab you use. It's possible you would not be over-range if you used a different lab. For instance, a lab I used to use said the range top for FT3 is 4.2 pg/ml (U.S. units), but the lab I'm using now says the range top for FT3 is 5.27 pg/ml.
How do you feel with your FT3 over-range according to the lab you use? Do you feel anxious, do you have disrupted sleep, excessive intestinal motility, etc? Symptoms are the most important thing, not lab test numbers.
If you still want to reduce FT3, then since your FT4 is high in range, a small dose e decrease should do that.
Missed your full results the first time. Personally, with TSH=0.02 and FT3 2 units over range top, I would be inclined to reduce dose. But I would definitely find out first if all labs in your country use 6.8 pmol/L as FT3 range top. Do you have any reason to believe your cortisol level/rhythm might be out of range? Also have you tried dosing yourself at night, per the T3CM protocol advocated by Paul Robinson?
I get my new results tomorrow after being on this new Thai Ndt and will put them up here tomorrow, I hope they are good. I actually did a cortisol test a few weeks ago, and besides my cortisol being a bit high mid day I thought it looked alright, do you think? i.imgur.com/ksMRF8m.png
That T3CM protocol sounds interesting, why dose at night specifically? I was taking 2.5 grains of Thyroid all at once in the morning at the time of the elevated ft3 blood test you see here, and was still very much low thyroid so I've now started splitting the dose up 3 times a day (7am, 1pm and 7pm) and was thinking about taking a 4th dose before bed if I ever get up to a significantly higher dose compared to what I'm at now not sure if thats good or not, I just heard it can help prolong the t3 component of the thyroid
Wow this protocol is very interesting. This might explain why I started feeling better on the 3 doses divided , as the last dose is at 7pm which isn't far off from when I sleep. You could say my morning cortisol could be a little higher
I notice your waking cortisol is below mid-range, but your noon cortisol is over-range. I think a good experiment would be to take in some T3 around 3-4am, to see if cortisol more closely follows an ideal curve. T3CM doesn't work for everyone, but many people rave about it.
Want to try it, just not sure how I could work it into my schedule. I've been taking 3 doses (7am,1pm,7pm) and always get my blood checked at 7am which is 12 hours away from my last dose when I first wake up
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