Intracranial hypertension: Has anyone had this as... - Thyroid UK

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Intracranial hypertension

Lenaa profile image
5 Replies

Has anyone had this as symptom of hypo? I imagine it's unlikely and probably part of my M.E symptom repertoire but worth asking.

About 10 weeks now on 100ug levo. Weels 3 and 4 were my best since I've been sick. Then a big dip. Then a bit better and last few days awful again. I know I need to retest but can't get a blood draw and not doing the finger prick test as it's a nightmare.

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Lenaa profile image
Lenaa
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Jazzw profile image
Jazzw

There definitely seems to be a link—see endocrine-abstracts.org/ea/...

But whether your doctor/Endo will have heard of a link...

humanbean profile image
humanbean in reply to Jazzw

Wow, I feel sorry for the girl described in that link. I've never seen a TSH of 538 or anything close to that mentioned anywhere before.

Having a small thyroid and a small pituitary must have made her life hell.

Lenaa profile image
Lenaa in reply to Jazzw

I've seen that article before... i don't have an endo. Mostly self diagnosed but GP now on board. I just wondered if anyone actually experienced this and if I can hope for improvement on levo but I think it's unlikely

Agyk - I just saw this post and yes I have suffered greatly with intracranial pressure but mine was due to over medication. I went gluten-free and was absorbing more of my medicine but my numbers were all staying in range however I was feeling worse and worse with head pressure being one of the symptoms. There are many medical reports that show intracranial pressure is linked to hyperthyroidism or over medication. Unfortunately I didn't learn this for many many months and continue to get sicker and sicker until finally my number went out and I am still suffering from trying to recover.

Lenaa profile image
Lenaa in reply to

I’ve had IH before I started levo. Did not get worse on meds... might just be part of M.E. like everything bloody else 🙄😫

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