Carbimazole side affects?: Hi all, I’ve been on... - Thyroid UK

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Carbimazole side affects?

Pickles79 profile image
14 Replies

Hi all, I’ve been on Carbimazole 5mg since Saturday, and in the last 2 days I’ve been having an awful headache and pain in my upper stomach. I know the headache is probably just a side affect but is it meant to cause pain in the upper stomach does anyone know?

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Pickles79
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14 Replies
Fruitandnutcase profile image
Fruitandnutcase

I never had anything like that and I started on 29mcg then moved onto 40mcg after four weeks.

I’m not sure what all the side effects of carbimazole are but you ought to have been given a patient information leaflet when you got your tablets.

If not go online and google for one and see what all it says. If your surgery is like mine it might be quicker and easier to speak to your pharmacist about it although your GP is probably doing phone consultations so you might be able to speak to someone.

Pickles79 profile image
Pickles79 in reply to Fruitandnutcase

Hi, I’ve actually just been reading now, seems like the headache is common. It’s just this pain in my tummy...it does say it can cause stomach upset so maybe that explains the pain. But may try and speak with my gp tomorrow. Thank you.

Fruitandnutcase profile image
Fruitandnutcase in reply to Pickles79

Did you take it with food? I always tend to take pills with food - unless I’ve been told specifically not to - like my alendronic acid - I take that with a glass of water on an empty stomach then I go out for a very early half hour walk - got to stay upright for half an hour after I take it - and come back and cook breakfast.

Anyway, generally I find if I take pills with food my gut feels better.

Pickles79 profile image
Pickles79 in reply to Fruitandnutcase

I will try that tomorrow and see if that helps, thank you

SlowDragon profile image
SlowDragonAdministrator

Replies to previous post strongly recommended by greygoose you insist GP test thyroid antibodies to confirm Graves or Hashimoto’s

healthunlocked.com/thyroidu...

Pickles79 profile image
Pickles79 in reply to SlowDragon

Hi yes, my gp contacted my endo for advice and he send a letter back, which I have a copy off. He has told me to start these meds, and then in 3 weeks time I need to have another blood test to test the antibodies. And then 4 weeks after this blood test he will need my bloods done again before we have a telephone consultation. My gp said I had to wait 3 weeks for another blood test because of causing confusion on the system as I’ve only just had a set of bloods done.

SlowDragon profile image
SlowDragonAdministrator

Similar post this evening

healthunlocked.com/thyroidu...

greygoose profile image
greygoose

So, you saw the endo, then? And, did he test your antibodies? And were your TRAB or TSI over-range?

Lora7again profile image
Lora7again

Carbimazole did not suit me and I came out in a rash so I changed to PTU which is an older and trusted drug.

Here is a link about it

bnf.nice.org.uk/drug/carbim...

and here is one about PTU

bnf.nice.org.uk/drug/propyl...

Marz profile image
Marz

If you have Hashimotos then you are on the wrong treatment ... did you have the correct testing done for anti-bodies ? Have read your previous posts and can see this has been strongly advised .

Pickles79 profile image
Pickles79

Hi. My gp contacted my endo for advice, he has written a letter back, of which I have a copy. He told me to start this medication, with a repeat of bloods to be done in 4 weeks to test my antibodies, then 4 weeks after these I need another set done before my telephone consultation. Apparently I have to wait 4 weeks between a bloods tests so as not to cause any confusion on the results.

SlowDragon profile image
SlowDragonAdministrator in reply to Pickles79

Nether endocrinologist or GP should start carbimazole unless you have had Graves’ disease confirmed by antibodies testing

Most endocrinologists are diabetes specialists

Butterfly87x profile image
Butterfly87x

I have the same complaint from this medicine it left me awful stomach problems after being on it for 6 months, haven’t been diagnosed but pretty sure it’s gave me a stomach ulcer. Came off the meds in December but had to restart them this week due to my levels going up again and after only taking two meds of a small dose compared to last time I’m having to stop taking them as I can’t handle the intense upper gastric pain from ingesting them.

Haven’t had a chance to see my dr so not sure what the next step is though.

It’s all a matter of weighing up the good and bad though because the medication did bring me back from a pretty critical thyroid level so can’t complain in that respect.

cbraffe profile image
cbraffe

Hi

If you have graves disease problems with the gut is one of the symptoms. It might be that . I had graves disease for 6 years and had to have a throidectomy.

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