Help with my Results !!: Having a bad time at the... - Thyroid UK

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Help with my Results !!

Abbiy24 profile image
5 Replies

Having a bad time at the moment tired legs and arms achy hard to get up the stairs tinitus migraine with auras my latest results I was taking 75 one day and 100 the next don't understand that I could be over - replacement thanks

13 mu/L 0.27_4.20mu/L T4 level 21 pmol/L 10.00 - 25.oopmol/L

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Abbiy24
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SeasideSusie profile image
SeasideSusieRemembering

Abbiy24

Can you please just clarify your TSH result. Is that 13 (0.27-4.20) or 1.3 or 0.13?

For a full picture we need

TSH

FT4

FT3

Thyroid antibodies

and because we need optimal nutrient levels for thyroid hormone to work properly, we also need to test

Vit D

B12

Folate

Ferritin

Low nutrient levels and deficiencies bring their own symptoms which can be similar to symptoms of hypothyroidism.

Abbiy24 profile image
Abbiy24 in reply to SeasideSusie

Sorry 0.13

SeasideSusie profile image
SeasideSusieRemembering in reply to Abbiy24

OK, so

TSH: 0.13 (0.27-4.20)

FT4: 21 (10-25)

What is the problem? Is your GP saying you are overmedicated? If so, you are not. The aim of a hypo patient on Levo, generally, is for TSH to be 1 or below with FT4 and FT3 in the upper part of their reference ranges. Your FT4 is well in range, you would need FT3 tested to know if you are overmedicated, that is the test that tells us that but doctors just tend to go by TSH and declare us overmedicated if it below range, that is wrong.

Your symptoms of tired legs and arms achy hard to get up the stairs tinitus could be low nutrients.

Low Vit D can cause muscle and joint aches and pains.

Low B12 can cause tinnitus.

Best get those I have listed checked, either with GP or privately with one of our recommended labs.

greygoose profile image
greygoose

You're more like under-replaced, with those symptoms. Probably not converting T4 to T3 very well. But we'd need to see an FT4 and an FT3 taken at the same time, to know.

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Have you had thyroid antibodies tested?

What vitamin supplements are you currently taking?

Ask GP to test vitamin levels

Low B12 linked to tinnitus

Aching legs low vitamin D

Migraine is hypothyroid symptom

Are you taking any other medication?

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin

medichecks.com/products/thy...

Medichecks often have special offers, if order on Thursdays

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service )

monitormyhealth.org.uk/thyr...

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue too so it’s important to get BOTH antibodies tested at least once

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

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