Having not had a letter from the NHS re Hashimoto’s and risk with COVID-19, I decided to email my private Consultant.
His rely was that Hashimoto’s patients are immune compromised and so should self isolate for 12 weeks. I am also on one immune suppressant for joint pain so i will stop taking it to see if I can bare the pain.
Has anyone else guidance from the NHS or direct from their consultants?
Keep safe x
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Not a word - but then I wasn't expecting one ! From reading here it would seem Doctors have little understanding of auto-immunity so am guessing we are not considered at risk.
I suspect we need to take care along with everyone else ... I have Hashi's and Crohns and recently struggled with a coughing flu virus that others were able to shake off more easily.
Hi. If you have Crohn’s disease you should of received a letter from The NHS stating you are at risk and you should be self isolating. My friend has Crohn’s and she is in for the long haul because of it. Have you had your letter??
An awful lot of Hashimoto's sufferers have never seen a consultant.
I am aware of some who were referred by their GPs but rejected by the consultant and left with just GP care.
Given the large number of Hashimoto's patients, the lack of guidance on the main statements isn't helpful. But the British Thyroid Foundation continues to say:
Are individuals with autoimmune thyroid disease at increased risk of COVID-19 infection?
COVID-19 is a new virus, so we have no information on how it affects individuals with thyroid disease. However, thyroid disease is not known to be associated with increased risk of viral infections in general, nor is there an association between thyroid disease and severity of the viral infection.
Many people are asking whether having an autoimmune thyroid disease means you are immunocompromised. We can confirm it does not. The part of the immune system that’s responsible for autoimmune thyroid conditions is separate to the immune system that’s responsible for fighting off viral infections, such as COVID-19. Patients who are classified as having a weakened immune system (immunocompromised) are typically those with conditions such as leukaemias, HIV and AIDS, or who are on medicines such as high-dose steroids, immunomodulatory drugs for rheumatoid arthritis or multiple sclerosis, cancer chemotherapy or following organ transplantation.
Does being on medication for my thyroid disorder suppress my immune system?
Neither levothyroxine, nor carbimazole nor propylthiouracil, are immunomodulatory therapies. i.e. they do not change nor weaken your immune system. However, some people with thyroid eye disease will be on high doses of steroid medication which can suppress the immune system (see next question below).
Full text available here - and was updated 25/03/2020:
The one thing we tend to have in common with aids and cancer sufferers is a low to below the scale for lymphocytes... mine increase with oral steroids which I some times have to use for my asthma, but unfortunately do not help with fighting off this bad voodoo virus .. meh
Taking anti-biotics causes viruses to mutate and therefore prolong any infection. Difficult to know which symptoms are the virus or a secondary infection. I prefer to err on the side of caution and avoid anti-b's wherever possible .
When your body is blasted with Streptomycin - Rifampacin - Izoniazid - and Solazapyrin for 16 months it takes a lifetime to recover. Spellings could be suspect as it was almost 50 years ago ...
My URT infections commonly lasted >4 months at a time, pre thyroid hormones boosting my basal temperature. Now they linger throughout winter but are extremely mild by comparison.
I think in general, we need to assess our hormone intake in relation to body temperature as our doctors won’t pay attention to something so simple.
Still not got all my blood results including Pitruitary tests, from 3 wks ago despite secretary writing to me aplogising for delay twice. I feel like emailing her again to say, just print them off, thats all I want, I rather trust interpretation of results on here! I still dont feel well. Medics dont care about that or that Ive been double sighted for a year. But I feel like a nuisance with all thats going on x
The endo secretary should be able to respond unless they’re seconded elsewhere. It’s not as though they frontline medics, though their health & family issues could cause absence. You can only try which is better than frustration!
My MRI (not a pituitary one) follow up has been delayed & may well be cancelled. The physio I saw was drinking diet coke so her immune system will be abysmal. 🤢
Yes thats what secretary has apologising for. She says Endo has seen them and she is on her own and hasnt had time to type up all the letters including mine 😞. I just wanted results x
Had a text and a letter but probably because Type 2 diabetic and or because had chemo last year. No reason was given. I suspect they are going alphabetically by surgery re letters as mine begins with E and someone I know with MS and partner has COPD whose practice begins with K has heard nothing.
The following 2 quotes from the British Thyroid Federation:
"However, thyroid disease is not known to be associated with increased risk of viral infections in general, nor is there an association between thyroid disease and severity of the viral infection."
"However, it is possible that patients with ‘uncontrolled’ thyroid disease (these are people who have very recently started medication or who do not take their thyroid medication as prescribed) may be at higher risk of complications from any infection."
It is most notable that the BTF seems to be under the impression that all patients who take their medication (other than stated above) (this excludes of course liothyronine and NDT which are both blacklisted throughout the UK) will not be at higher risk.
BUT, there are 300,000 of us who remain PERMANENTLY ill whatever dosage we take of prescribed medication.
As the BTF work in harmony with the BTA and the BTA recommendation is to blacklist eg NDT (and probably T3 as well) and I know perfectly well that NDT is, and always will be the ONLY "drug" that will EVER make me well, I disbelieve EVERYTHING that either of these charities says.
MY recommendation therefore is to assume that everybody with unresolved thyroid issues and therefore a compromised immune system, should take the utmost care to avoid the slightest chance of catching this killer virus. It's too late to start taking care after you get it and discover, when it does cause more serious issues than expected, that what I believe is perfectly true is happening to you.
I made a forceful and quite detailed complaint about the recent BTF public statement, but via social media, since it was easier at the time. I think I'll take a screenshot, just in case!
It’s as clear as mud then. No chance for us thyroid patients. Normal service resumes! At least we’re used to it.
May I suggest that no one working at the BTF has ever had or know anyone with Hashimoto’s disease! I have never taken anything they’ve said with any validity anyway - don’t even bother going on their website!
Well I’m assuming I’m at an increased risk and we’re taking precautions like not going shopping. One dog walk a day early over the fields so complete social distancing.
Better to be safe than sorry. I don’t want to finding you the hard way that the BTF are wrong thanks 😊
Well I’m assuming the same. Viruses always hit me harder than my husband so why take chances? Too late if they change their stance on our vulnerability later
Hubby and I both have Hashimotos but a recent virus had me floored for weeks - hubby had the same bug but recovered after a week ! Perhaps it's testosterone that is the big protector !! 😷
At 80 and 73 we rarely know what's what when it comes to symptoms 🥰🥰 I have Crohns which made me more vulnerable apparently ! ( England cricketer in S Africa - with Crohns - took longer to recover from a virus than the rest of the team on the recent tour ! - as commented on by S African Docs )
I have a friend with crohns and an additional bowel disease they got their letter before me. I've had pneumonia 5 times and have asthma as well as other conditions my letter and text arrived last tuesday.
if you have crohns you should definitely have had the nhs letter and you should be staying at home and not going out at all. And same for the household. Using shopping services from your local community.
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Autoimmune conditions (Hashi’s/Graves’s) and the COVID-19 vaccination
