You were all so helpful, welcoming and generally supportive when I joined and introduced myself, I thought I would update you on what has happened so far and see if you have any more advice I need to take on board.
Firstly, I should say that my previous attempts to get diagnosed via my GP have led to a cursory TSH test which, in turn, because it’s been “in range” has meant I’ve been told I’m fine....I’m sure many will identify.
Anyway, after my LIVI appointment, the doctor said I’d need to have bloods done again despite me supplying my private results. That was OK, but, as LIVI is still a bit of a novelty for me, I (wrongly) assumed that when they sent me the details of my appointment for bloods, they’d tell me details. How stupid am I?
So I messaged them on the app to ask, and got a message back saying they couldn’t tell me, but if I made another GP appointment on LIVI the GP could advise. For someone who has spent a lifetime not wanting to waste my GP’s time, this was anathema, but I did it anyway....because this time I’m bloomin’ determined to get a diagnosis and treatment!
OK, I know, a few of these are distractions, a few are missing, but to me it’s a reasonably positive step.
Fingers crossed I can(eventually) discuss these results face to face with a GP who will do something to help....
One question: I’ve seen, I believe, that it’s beneficial to my case to do fasting bloods (nobody at LIVI has said I should, but I will). My appointment is 10 am, which was the earliest I could get, as I also read that early morning is the most beneficial time for bloods. Is there anything else you’d advise me to do to help myself?
Thanks again all!
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Croixblanches
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Vitamin D deficiency is frequent in Hashimoto's thyroiditis and treatment of patients with this condition with Vitamin D may slow down the course of development of hypothyroidism and also decrease cardiovascular risks in these patients. Vitamin D measurement and replacement may be critical in these patients.
Evidence of a link between increased level of antithyroid antibodies in hypothyroid patients with HT and 25OHD3 deficiency may suggest that this group is particularly prone to the vitamin D deficiency and can benefit from its alignment.
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
You can do B12, folate and ferritin test later if you can’t get GP to do them
Thanks, and yes, I thought Vit D might be missing. May not help me to do it quite yet: just back from a two week holiday in 36 degrees and I think I’ve replenished for a few days more, at least. But of course, the effects won’t last any longer than my tan....😟
I was living in Greece for 15 years until recently. After a few years I tested insufficient for VitD and supplemented 10,000 iu's. Now lower. Low VitD is linked to Auto-immune conditions and other serious illness including cancers. It is anti-inflammatory and a steroidal pro-hormone - so far more than a vitamin and wrongly named !
I had Gut TB at 27 followed by Crohns and then Hashimotos - the low VitD is implicated in all 3 illnesses ! The further we live from the equator the lower our levels and the higher the incidence of MS - cancers and neurological conditions. Such a simple and I expensive remedy !
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Bloods Nurse coming 9.30-10.30am tomorrow- should I be fighting for an earlier appointment if only interested in T4 and T3 rather than TSH?
docs tomorrow, for bloods and confession...!!
Only TSH
High Tsh 31.2 and just above average 11.3, GP is concerned because I am taking high thyroxine at 250mcg
Latest bloods - why is there no improvement? :(
