Blood test results part 2

[Aquapuss]

Other bloods attached- sorry couldn’t attach all in same post! TSH was 1.2 miu/L ( 0.3-4.5 range)

[SlowDragon Administrator]

Nothing thyroid related there

Just testing TSH is completely inadequate

See reply to previous post about getting blood tests privately

[Aquapuss in reply to SlowDragon]

I did get my private testing done. Got medichecks ultravit. It showed folate deficiency, that’s why I went to doctor to get other bloods done in case there was underlying B12 issue. I was also worried as to whether I am converting T4 to T3 but doctors dismiss that idea. I am symptomatic despite being “in range” I know TSH is inadequate measure but she didn’t say what the full range of tests she was doing were before I had blood taken, nurse just commented that she was going to take a lot of blood. I presumed she would do same as last doctor and test TSH, T4, T3. I don’t test positive for antibodies so its not Hashimotos

[SlowDragon Administrator in reply to Aquapuss]

Looking through your previous posts I can’t see any Medichecks results

We always recommend you put post up with actual results and members can comment

There’s frequently more wrong than just the obvious out of range deficiencies

For example are Ft4 and Ft3 roughly similar % through range ....and at least 60-70% through range

Vitamin D at least over 80nmol and often may be better over 100nmol

B12 in top of range

Ferritin at least half way in range

How much levothyroxine are you currently taking?

Have you had ultrasound scan of thyroid?

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Most GP’s have little idea how low vitamin levels are inter connected with being hypothyroid

[Aquapuss in reply to SlowDragon]

I posted 6 months ago, got 26 replies to post. I gave GP results then also Medichecks ones inc vitamins in same post. Its long so how do I copy and repost it so you can see my results? Not sure why you can’t see it?

[SlowDragon Administrator in reply to Aquapuss]

Sorry missed it .....yes this one

healthunlocked.com/thyroidu...

Folate extremely low

Vitamin D too low

Are you still on folic acid?

Or now on vitamin B complex?

Have vitamin D and folate been retested?

If not ....Suggest you get FULL Thyroid and vitamin retested

[SlowDragon Administrator in reply to Aquapuss]

Ft4 was only 50% through range

Ft3 only 35% through range

Helpful calculator for working out percentage through range

chorobytarczycy.eu/kalkulator

Obviously room for dose increase. Also improving low vitamin levels should improve conversion

The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 is in top third of range and FT3 at least half way through range

Did you get your dose of levothyroxine increased?

[Aquapuss in reply to SlowDragon]

Yes new GP has given me trial ( just started) of 150mcg levo 3x pw alternating with 125mcg 4x pw, have to get bloods redone in 8 weeks.

I omitted to attach vit results- strange thing is my folate is now in ok range but hadn’t supplemented B vits or folate until after GP tested! No idea why its changed from deficient in July as diet is pretty similar. She doubted accuracy of the Medicheck ones because of this. Have been supplementing 1000mcg vit D initially but changed to the Better You spray after reading it on here ( possibly a year ago?) Would have expected Vit D to be a lot higher because of this, but its still below level you suggest. Started Vit B complex ( Igennus) only last week, one tablet daily rather than the recommended two to see how it affects me first.

GP vitamin test results last week

Vit B12 219ng/l ( 150-1000)

Ferritin 71 ug/l ( 12-250)

Folate B-C. 4.5 ug/l ( 2.0-18.8)

She didn’t test D ( thought she was going to)

Also tested coeliac

IgA TGA <1 ( normal <7)

Comment says these negative results make coeliac disease highly unlikely if I had adequate gluten for 6 weeks prior. I usually have two small slices of wholemeal bread daily not 4 because am on slimming world diet

[Aquapuss in reply to Aquapuss]

Forgot to answer. Have never had thyroid scan, one previous referral to endo at my request three years ago. He concluded I was unlikely to benefit from T3/T4 combined because my TSH was low and my T3 was in range. He was a diabetes specialist though not thyroid

[SlowDragon Administrator in reply to Aquapuss]

Most endocrinologists are diabetes specialists 😒

Ask GP for ultrasound scan

[SlowDragon Administrator in reply to Aquapuss]

Well your folate and B12 are very very low ......so good that you started on vitamin B complex..

Looking at folate at least over ten

B12 over 500

Vitamin D. Many of us need higher maintenance dose. Perhaps 3000iu when increasing levels and 2000iu as maintenance dose. You may need more in winter than summer

Retest twice year via

vitamindtest.org.uk

The only way to know if you are gluten intolerant (not coeliac) is to try strictly gluten free diet for 3-6 months

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

As coeliac test is negative you can consider going on strictly gluten free diet

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

[Aquapuss in reply to SlowDragon]

Thank you Slow Dragon, this is very helpful. Am thinking about switching to Mediterranean Diet ( already eat lots of fruit, veg, etc) and ditching slimming world as I have regained nearly all the weight lost while still doing it. Going to see what difference the meds change plus B vitamin complex makes and when I go back for bloods, request a vit D test plus thyroid scan. Gluten free might be an option too but will try not to change everything at once so I can judge what makes difference. Have also thought about adding NDT if my T3 doesn’t get higher but wonder how safe this is?

[SlowDragon Administrator in reply to Aquapuss]

Yes ..only change one thing at a time or you can’t see what’s helping

See how your Ft4 improves on new higher dose

Conversion to Ft3 should improve with optimal vitamin levels

Getting blood retested 6-8 weeks time

Then perhaps try strictly gluten free diet