Reading all this detailed information is so confusing and frustrating! My doctor is such a rude jerk! Why would you go into a field of hormonal medicine where mostly women are afflicted when you are an inpatient, clueless man? He is nothing but a Synthroid pusher! Told me to stay off of it. Took blood. TSH at 3.20. That’s all the info I received. Said he couldn’t help me with my shortness of breath, insomnia or the Hot Rusty Nail taste in my mouth! He can only offer me Synthroid. I have scripts for 50, 75, 88, 100 and 125! Clearly I’ve been jerked around by two doctors who don’t know what they are doing! But they’re the best don’t you know?
Ugh!!!
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Ihatesynthoid
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I find that info difficult to read too. I think we can honestly say (even if it's just anecdotal ) that your symptoms are those of hypothyroidism. Also that TSH is too high and indicates hypothyroidism. It doesnt tell you too much else without other tests, but you need to take something.
I'm assuming by what you say that in the past you ve tried all those different doses, is that right?
If so, how long on each one?
Did you get tests a couple of months after each change in dose?
Or was it so grim that you didnt get that far?
Dont care who says which Dr s are the best, if they re not helping, they re not helping.
A TSH of 3.2 is raised. A person with a healthy thyroid would have a TSH of about 0.8-2, so once yours is much over that it shows your body isn't getting enough hormone.
Unfortunately when doctors diagnose and dise based on TSH they will often want to wait for us to get more sick
If you don't know whether you've got Hashimotos auto immune thyroid illness (you almost certainly do as it's the most common form of hypothyroid), get thyoid peroxidase and thyroglobulin antibodies, too.
It is also good to get vitsmins as well, as being hypo tends to trash them, ferritin, folate, vit. B12, and vit D.
In a perfect world you also need a doctor who will start treatment now and do a good job of it. Possibly a bit much to hope for This forum is a great resource, I recommend sticking around and reading it regularly to learn how to interpret your own results and evaluate what the doses you've been on in the past.
Its certainly can be a difficult road to tread to get best treatment, Here in the uk they would not treat you with a TSH of just over 3. They wait till its over 10. This has forced many patients to either go private or self treat.
You might find Living with Your Thyroid by Barry Peatfield a useful book to help make sense of the issues around hypothyroidism, diagnosis & treatment. As well as this site where there are plenty of people who are very knowledaeble & helpful, Stopthethyroidmadness.com also has useful info too . Knowledge is power and all that.
As you say you only managed to get the TSH result I suggest you seek a thyroid panel test of TSH, Ft4, Ft3, alongside testing for thyroid antibodies, B12, vit D & iron. Post the results with ranges plus your signs & symptoms for people to respond to.
Try and get your TSH below 0.5 and see if you feel better. Mine has to be around 0.2 for me to feel well!
Yes you have been jerked around! No one should be treated like that. Time to look for a better doctor. He's not going to suddenly change, he'll be treating other patients like that as well.
Sorry I have nothing more useful than that to say except to pass on my new
I added magnesium to the mix as well. It's worked for 4 nights in a row. Previously I was going to bed at around 11.00 pm and not falling asleep until 4, 5 or 6 a.m-ish and then only for a few hours. This has been going on for over 6 months. Before that it was intermittent, light sleep. This alone is not going to have much impact on hypothyroid but it is good to be able to sleep at night.
I've been astonished by the change in the last 4 nights. I just hope it continues to work for me and for anyone else who wants to try it.
It sounds as if your present go is beyond the pale.
One thing I've found helpful (with a more sympathetic doctor) is to make a bullet list of your main symptoms, especially those suggesting hypothyroidism, and how they affect your life. Within range or not the TSH is too high for you as an individual.
Then you could ask for a clinical trial of thyroxine. As I always say, if it's a trial you can't sue them if it doesn't work!
The title is true. Most of us on this site are "on our own". I am constantly ignoring my GP who just looks at my TSH and tells me to reduce my NDT dose. Yes, I could do that and TSH would look respectable, but I would be very ill - been there and done that. You just have to do your own research (and ask questions here), and adjust your own dose until you feel well. That's what I did and yes it was scary but you just have to experiment on yourself.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
This forum is a great resource, I recommend sticking around and reading it regularly to learn how to interpret your own results and evaluate what the doses you've been on in the past. 
Need advice on titrating Cytomel!
Does anyone out there cry a lot?
Synthroid withdrawal
NDT for extremely high antibodies? (Hashi's)
