If you check my former posts, you can see I worry about my health quite a bit, especially since diagnosed with Hashi’s in November of last year. Well I am currently hypo with a TSH slightly over 5 (range .5-4.5). I went to an allergist today because I have had hives for 2 weeks. I told her that I was euthyroid from February through at least June and then my TSH was 5.4 in September. I just had it measured again at 5.06 2 weeks ago )and yes, my levo has been increased). So the allergist asked me multiple times if “anything happened” to cause my TSH to rise?
I’m not sure what she was getting at but I was wondering is it strange to be briefly euthyroid after being medicated (less than a year) and then have my TSH just go up? All I could find online is that the disease is just progressing. My endo didn’t seemed worried or surprised but the allergist just made me worried a bit.
Thanks!
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thyroidmom84
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Don't suppose the allergist knows anything much about thyroid/Hashi's. Yes, it's perfectly normal to have levels swinging around. But, what do you call 'euthyroid'? If all your doctor tests is the TSH, no-one will have any idea if you're euthyroid, hypo or over-medicated. The TSH on its own tells you virtually nothing.
Hashi's is progressive, because your immune system is slowly destroying your thyroid. But, as the cells of the gland die off, they release their stores of hormone into the blood, so levels tend to jump around. But, the over-all tendance is towards hypothyroidism, whether you're medicated or not.
I agree with Greygoose. Sadly us Hashi people swing from time to time 🙁.
Get your T3 and T4 tested. If your GP won’t do it, get a private test from Medichecks or Blue Horizon. Costs around £35. I had my test posted, taken myself, and results within a couple of days, with doctors comments.
You TSH will rise if the level of thyroid hormone is insufficient. You’re under medicated. Keep going with the Levo and it should drop. Make sure they test your T4 and T3 and not just your TSH. Also full blood work for all your vitamins and minerals as Hashimoto’s patients are often down on these.
Bloods should be retested 6-8 weeks after each dose increase (or brand change) in Levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 tested.
Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results
The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 in top third of range and FT3 at least half way in range
NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.
I take Vitamin D and B12 because I had a deficiency after testing. I will be having ferritin and folate checked at next lab. Also, I thought about gluten free and tried it but couldn’t stick with it.
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Going gluten free is a strategy that everyone with Hashimoto’s should try. In some cases, we see a complete remission of the condition; in other cases (88% of the time), the person feels significantly better in terms of bloating, diarrhea, energy, weight, constipation, stomach pain, reflux, hair regrowth, and anxiety.
Thank you. I am planning to revamp my eating habits and will try this again. The hard part is getting my family to eat GF because I just don’t have the energy to be making 17 different things.
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Child with Hashimoto's, currently euthyroid. 
Euthyroid Sick Syndrome 
Swopped to HYPER after years of HYPO?!!
Hypo Male 40 years old
