I've been told not to worry about my cholesterol results but since I am gradually losing faith on official conventional doctor I would like to know your opinion, if any. Thank you.
ps. the doctor said that since my good cholesterol is high I am ok...
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Clara62
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For a start, there's no such thing as good and bad cholesterol. But, I agree with your doctor - although for different reasons - your cholesterol is nothing to worry about. High cholesterol usually indicates low T3, so have you had your FT3 tested? But, the cholesterol is not going to do you any harm. It doesn't cause strokes or heart attacks.
Thank you greygoose, looks like you are right, in fact my FT3 is low-ish 3.6 ( 3.1-6.8) other thyroid labs are FT4 19.5 (12.0-22.0) and TSH 0.13 ( 0.27-4.2) ...conversion problem...
Isn't it strange that TSH is very low and Ft3 too? I wonder why this happens.
I have heard that disruption of the normal gut microbiota may reduce levels of beneficial bacteria that perform the conversion, resulting in a decreased amount of T3. I am on a treatment for Sibo C.
Thank you greygose. yes, it's not a linear relationship because when I used to have a low FT4 and a normal Ft3 my TSH was still suppressed. And yes I know it is deiodinase mainly , I just read this article that made me think because indeed I have gut problems...:kresserinstitute.com/why-yo... at point 2 he speaks about gut problems and under conversion.
Yes, it's complicated, but I don't think he's saying that conversion happens in the gut carried out by gut bacteria. I don't think that paragraph is very well worded or explained. Most ambiguous. But, does sound as if your SIBO could have something to do with your poor conversion.
BUT, getting rid of SIBO can take a long, long time. So, are you prepared to suffer low levels of T3 on the off-chance that one day it might improve due to curing your SIBO? Personally, I would want the T3 now - and that might even help sort out your gut bacteria.
Yes, it is definitely something that I am considering, I know about a doctor that prescribes it. I am not sure if taking T4/T3 it is better than being on T3 only. I was on T4/T3 meds for a few years but couldn't find the right balance TSH almost invisible, FT4 under the range and FT3 quite high ..Anyway I am thinking about going back to T3 despite the contrary opinion of the endocrinologist.
Doesn't matter if the TSH is invisible. That's not even a consideration. As for the FT4, it's a matter of experimenting to find the level that you need. Zero FT4 is just fine by me! lol But, a lot of people need it higher. It's where you feel well that counts.
Thank you for all the replies Greygoose. Very generous. I know I need a good level of FT4. Actually I never really felt well even when I was on T4/T3 meds or now with only T4...but I remember I felt well in my teens LOL .
It's a good level of FT3 that you need most. And, if you didn't feel well on T4+T3, you probably weren't taking enough of one of them. It's not just taking them that makes you well, it's taking enough.
Very true, the fact is that Iβve tried so many combinations and dosage in the past with no great success. Maybe itβs time to start again. Maybe this time together with the treatment for Sibo, it will be better. ππ
Clara62, did you feel better with an invisible TSH, under range freeT4, and quite high freeT3? That sounds like a fairly ideal pattern, perhaps needing some tweaking to be optimal for you. Better than your current pattern with very low freeT3 I'd have thought.
If you've tried a lot of combinations and haven't felt well, my policy is to be very systematic. Obviously you need some T3, so start adding very slowly, adjust every 6 weeks with blood tests each time, and work through every combination. Work towards getting the freeT3 into the top part of the range, as most people will feel better there. If you get there and don't feel well, then try the next thing (T3-only or NDT). A small increase in T3 is 5mcg, reduce by the equivalent amount of T4 when you do, which is about 20mcg.
Of course doctors may be an obstacle to this, but if you can't get access to T3 through the NHS self medicating is an option.
Could I just confirm - which one we are talking about when we say high cholesterol indicates low T3 (I have read that in various articles) As I have had high HDL but lower LDL, although overall total ok. Thanks
Cholesterol is cholesterol is cholesterol. And they don't even measure the actual cholesterol when they do a cholesterol blood test. HDL and LDL are the protein carriers that transport the cholesterol round the body. And, all this good/bad/etc. is manufactured by Big Pharma to scare people, and his no basis in science.
So, I think that when we talk about high or low cholesterol, we're actually talking about the total. But it shouldn't be an issue, anyway, because cholesterol doesn't do any harm. It holds your body and brain together and stops you bleeding to death.
It's not a direct relationship for everyone. When I was first diagnosed, with a low FT3, my cholesterol was just 0.1 over the top of the range. Not what you'd call high, at all.
I'm still not diagnosed I'm seeing an endo soon I hope eventually ( private as nhs sayALL NORMAL) but my cholestrol is high they want to put me on statins I won't.. but they said this at the same appointment as they read my t3 below range and saw previous 4 tests they were all on the bottom or below my t4 too..they never once said they were connected just said my diet need a looking at with cholestrol being high and my thyroid was ALL NORMAL!!
Well, they just don't know. They don't know the connection, they don't know that an FT3 below range is hypo, they don't know that high cholesterol has nothing to do with your diet! They know nothing, I'm afraid. Only what the Big Pharma reps have told them. And Big Pharma reps want to sell drugs so will tell them anything in order to sell those drugs. That's the world we live in, today. And, it's possible that a lot of the doctors we see never even heard cholesterol mentioned in any context in med school, because it's only fairly recently that it's been considered a problem. And, they certainly didn't learn anything about T3. Or nutrition. Our lives are in the hands of people who know next to nothing about the most important things in life: hormones and nutrients.
Don't worry too much because a higher cholesterol level, is usually due to us getting hypothyroidism. As our dose of thyroid hormone replacements is increased, so cholesterol level should begin to drop. I think the majority of doctors don't know that our higher cholesterol level is due to being hypo and some will give prescriptions for it (i.e. statins), rather than making sure the patient is on sufficient thyroid hormone replacements.
I was on statins for several years. Eventually discovered I was hypothyroid, and after thyroxine treatment started the cholesterol began to go down.
Statins were then doubled to bring the cholesterol level down faster! But from reading on here and elsewhere (especially Dr Malcolm Kendrick's book "The Great Cholesterol Con") had had enough, never filled the prescription and came off statins altogether (decreased fairly gradually over 2 weeks just to make sure no "Withdrawal" symptoms).
It seems that being hypothyroid causes raised cholesterol because everything goes more slowly, including the liver which clears excess cholesterol from the blood.
A couple of thoughts occur too me, in addition to those expressed by greygoose.
If you're thinking of going back on T3 only, I would read Paul Robinson's book 'Recovering with T3'. It'll help you find the 'sweet spot' where you're on exactly the right amount of T3.
His book 'The Thyroid Patient's Manual' explains in a very readable way what's going on wrt to the thyroid etc.
Have a look at his YouTube videos.
The stuff he says matches up with my experience of decades of being hypothyroid.
Another thing is that, in my experience, gut health affects the amount of thyroid hormone needed, and affects how well T4 is converted to t3 and absorbed by your tissues. I have lots of allergies and intolerances and normally need 450mg Thyro-Gold (an NDT) in winter. Last December my dose was 900mg and my vitals (basal pulse and symptoms) suggested that this was still insufficient but blood tests showed fT4 and fT3 in range. By cutting out the foods I know I'm intolerant to (there's a long list), I managed to cut the dose to 600mg in a month and the next month to 450mg. I had a blood test after the first month immediately before I reduced the dose and it concurred with my pulse & symptoms that I was very over-medicated. So, for me, yes gut inflammation does affect the absorption of thyroid meds.
You can improve conversion of T4 to T3 by getting other vitamins and minerals at optimal levels. Folate at top of range (take methyl folate to improve it), B12 in top quarter (take methylcobalamin to improve it), ferritin 70-90, vitamin D mid range etc. Take methyl versions in case you have the MTHFR gene mutation which meams you can't convert the B vitamins to the bio available form.
It's worth looking at the 3 free pdf chapters that Dr John C Lowe provides on the Thyro-Gold website under Q&As. The diet at the back of the chapter titled 'metabolic rehabilitation' will help with getting rid of SIBO as it is low in sugar and carbohydrate which the bacteria use as food. There is also a form you can use to monitor your symptoms.
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