Hi I’m on 125mcg of levothyroxine you are supposed to get blood checked think it’s every 6 months I’m due mine just now I didn’t know the hair loss was due to medication I have problems sleeping I’m tired a lot I get very anxious also
I'm afraid they don't care about symptoms - don't even know what hypo symptoms are! All they care about is the TSH, and yours is low. If they knew anything about treating hypo, and actually wanted to make you well, they would test the FT3, because that is the most important number. But, they don't.
'Normal' is one of the most useless words in the English language - akin to 'nice' - and when used by a doctor just means 'in-range'. They do not know, and do not care, that 'in-range' is not the same as 'optimal'. Your FT4 is just mid-range, so not surprising if you're still having hypo symptoms. Most hypos need it higher than that.
However, quite what you can do about it - apart from kicking up a fuss - I really don't know. The protocol is supposed to be retesting every six weeks and an increase of 25 mcg until you feel well. Your doctors obviously weren't taught this protocol. Or don't care to apply it. So, it's down to you to insist. Don't wait until January, it's too long! Keep going back and complaining that you need an increase in dose until they cave in and give it to you. I don't see what else you can do.
Bloods should be retested 6-8 weeks after each dose change (or brand change) of Levothyroxine
Just testing TSH and FT4 is completely inadequate
High Prolactin suggests cause is autoimmune thyroid disease (Hashimoto's)
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to Retest thyroid and test vitamin levels and thyroid antibodies if not been tested
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.
Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.
So it's important to get TPO and TG thyroid antibodies tested at least once .
The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 in top third of range and FT3 at least half way in range
NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.
Make sure to do blood test as early as possible in morning and before eating or drinking anything other than water, last dose Levothyroxine 24 hours prior to blood test
Had to ask for increase in levothyroxine from 50mg to 75mg which she eventually agreed.
Put back on ferrous sulphate 200g after a 3 month break (my choice as I wasn’t tolerating the tablets very well). Was 34 (13-150) in June.
Feel terrible right now.
I tested folate, B12 and vit D in April and apart from slightly low vit d all was ok. I’ve had 2 sunny holidays since and I take a spray daily so I think it will be ok.
I’m just wondering whether to get the full thyroid test on Medichecks again. And if so, what to do with the results?
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Good luck!
Are my results normal now?
Hypo symptoms normal results 
My son's TSH results are normal but could this still be a thyroid problem?
