Diagnosis of greavs: For all of you been... - Thyroid UK

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Diagnosis of greavs

PeppyPo profile image
5 Replies

For all of you been fallowing and commenting on my post i have had my appointment with the endocrinologist today have confirmed that it is graves and started me on propylthiouracil 50mg twice i day anyone been on this drug ? Did it work i have said one my other post really freaking out over hair loss since a lost posted i have cut my long hair into a bob read up on this mediation can also cause hair loss feel like a losing bettle am diabetic as well my blood sugar is all over just feel awful all the time been told it my effect me from having a baby witch is really up setting thanks everyone for comment on my previous post

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PeppyPo
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twinkiegal profile image
twinkiegal

I was on PTU for quite a while and did well on it, but it did make my hair fall out, after about a year the first time and then after 3 months the second time I tried it. Went off all meds for a while and hair stopped falling out. Went back on Methimazole which is just like carbimazole and it's been good too. Levels went back to normal within about 3 months. But hair started falling as soon as I started taking it. Started taking Hairfluence (hair vitamins) and have been on it for about 5 months. Hair fallout has stopped!

PeppyPo profile image
PeppyPo in reply to twinkiegal

Hya thanks commenting was it noticable to others ? I have brought so hair vitamin it really getting me down.

twinkiegal profile image
twinkiegal in reply to PeppyPo

Was my hair falling out noticeable to others? No one said anything so I'm not sure...

PeppyPo profile image
PeppyPo in reply to twinkiegal

Yeah i see my hair falling out it shower loads everyone saying worrying to much .. i gave brought some Biotin really hoping that helps

Lora7again profile image
Lora7again

I took PTU at the beginning just make sure you have regular blood test because it can make you go underactive. It can rarely cause liver failure as well. I found that until you thyroid results are normal your hair will continue to fall out .... I have tried all kinds of vitamins and hair products I even tried Regaine nothing worked I'm afraid

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