Graves levels finally came to normal but still ... - Thyroid UK

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Graves levels finally came to normal but still feeling symptoms?

Butterfly87x
Butterfly87x
4 Replies

Has anyone experienced this and has an idea why ?

I’ve had hyper levels since January and after having them going from coming down to then shooting back up and now finally getting a result of t3 & t4 being within range (tsh is still suppressed) I still feel a lot of the same symptoms to the point of being surprised to even hear my results.

My heart still feels like it’s beating out my chest most of the day and my body still shakes especially my hands. I know the feeling of being weak and muscle damage etc isn’t going to change overnight but I thought I’d at least feel that my levels are in range.

I feel like my hubby an fam must think I’m overreacting my complaints now when they hear my levels are in range lol.

Anyone else experienced this?

4 Replies
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SlowDragon
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also important to regularly retest vitamin D, folate, ferritin and B12

What are your most recent results and ranges

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

What vitamin supplements do you currently take?

Are you on strictly gluten free diet? Helps thousands of people with Hashimoto's or Graves

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).

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Butterfly87x

Thanks but I’m not actually looking for a thyroid evaluation I’m not new to this site and have gave all info previously before.

My question is just to see if anyone has experienced feeling awful when they have graves as there’s not much info online regarding people’s experiences of what happens when graves levels come down to within range.

My tsh is still 0 so I’m sure that has something to do with it I’m just curious to hear other graves sufferers stories especially regarding success stories of having went from the awful graves symptoms to feeling normal again and how long that took.

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SlowDragon
SlowDragonAdministrator
in reply to Butterfly87x

Perhaps look at Elaine Moore website. Many Graves patients say it's very helpful

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SlowDragon
SlowDragonAdministrator
in reply to Butterfly87x

See you have very low vitamin D

Were B12, folate and ferritin tested too

Are you on strictly gluten free diet? This often helps many with Hashimoto's or Graves

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