Not gluten intolerant vs. raised antibodies - Thyroid UK

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Not gluten intolerant vs. raised antibodies

Yammie1973 profile image
15 Replies

OK, I know that I must have been told this before but my brain fog is getting the better of me...what with trying to keep my job on a daily basis, looking after my mum with Alzheimer's without government help/intervention and doing IVF...but if I am not gluten intolerant (I did the blood food intolerance tests) but have raised antibodies what gives??

Last bloods in July state the following:

TPA = 52.6 kIU/L (R = <34)

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Yammie1973 profile image
Yammie1973
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15 Replies

Is that TPA or TPO?

Yammie1973 profile image
Yammie1973 in reply to

TPA (bottom of my post)

Thanks 🙂

msmono profile image
msmono

Hi, I dont know if I've understood your question right, but there are different things (not just gluten and including environmental factors) that can cause raised anti-bodies if my understanding is correct. Also, according to the coeliac society, false negatives are common especially if you didn't manage to eat enough gluten prior to-the test.

Yammie1973 profile image
Yammie1973 in reply to msmono

Hello

I didn't do a Coeliac test, I used the company recommended on the Thyroid UK website for food intolerance testing (they tested everything from food, drink, environmental factors as well as chemical reactions) It was mentioned that, only if the food intolerance is high for gluten, should I then approach my GP to arrange a coeliac test.

msmono profile image
msmono in reply to Yammie1973

I haven't come across that test it sounds useful.

Yammie1973 profile image
Yammie1973 in reply to msmono

Hi

On the TUK website, under the heading 'About Testing', 'Thyroid Testing','Private Testing','Smartblood. It's all there for you.

Good luck

msmono profile image
msmono in reply to Yammie1973

Thank you 🙂

greygoose profile image
greygoose

Raised TPO (which I imagine you mean) antibodies mean you have Hashi's. They don't mean you're gluten intolerant.

Gluten-intolerance is not an autoimmune disease so it doesn't have antibodies.

Some people suggest that going gluten-free will reduce antibodies. But, I don't think there's that much proof of that due to the way antibodies behave. But, even if they were reduced, you would still have Hashi's.

However, going gluten-free makes some people feel much better because they are intolerant to gluten. So, it's worth trying to see if it makes you feel better. If it does, good. If it doesn't, try eating gluten again and see if you feel worse.

But, gluten aside, you do have Hashi's. Do you know what Hashi's is?

Yammie1973 profile image
Yammie1973 in reply to greygoose

Thank you but I mean Thyroid Peroxidase Antibodies (TPA) I know that I have Hashimoto's and I know the difference between hashimoto's and gluten intolerance.

For so long now people have been saying that I should switch to gluten free because it significantly reduces TPA. I was told to get a food intolerance finger prick blood test and I used the one that Thyroid UK recommended which screened a number of food, drink and everything else including environmental and chemical reactions. I am not gluten intolerant. I did try going gluten free for quite some time (to allow my body to adjust etc) but I was violently ill with going gluten free, so went back on my normal diet and feel SO much better.

So , back to square one..trying to ascertain what is causing the elevated antibodies.

Just going back to my tracker on Medichecks, it is interesting to note that my Thyroid Peroxidase Antibodies went from 107 kIU/L in November 2018 to 52.6 kIU/L in July 2019.

In 8 months it seems to have dropped and I have no idea why except to think that IVF drugs/egg collections may have had something to do with it???

greygoose profile image
greygoose in reply to Yammie1973

Yes, I know, people are always talking about gluten-free reduces antibodies. But, as antibodies fluctuate all the time, there's no proof that if they reduce, they won't go back up again - and maybe even higher.

And what these people fail to tell you is why they want their antibodies lower. What is the advantage? You'll still have Hashi's. 1 in 6 people with Hashi's never have raised antibodies, so how can lowering antibodies 'cure' Hashi's? It doesn't.

So, it's doubtful that your antibodies are high because you aren't gluten-free. They're high because you have Hashi's and therefore your immune system produces them. In my personal opinion, there's no correlation at all.

This is a good article about antibodies:

hashimotoshealing.com/under...

Yammie1973 profile image
Yammie1973 in reply to greygoose

Thanks GG, all so very confusing and severe brain fog isn't helping....apologies to anyone who is naturally blonde but sometimes I feel like the stereotypical blonde!!!

greygoose profile image
greygoose in reply to Yammie1973

I've never been blonde - although I did try bleaching my hair in my teens - it just went orange. However, people do tend to treat me like a dumb blonde. I can't imagine why! lol

msmono profile image
msmono in reply to greygoose

That is a really interesting article.

SilverAvocado profile image
SilverAvocado

Yammie1973, The intolerance Hashi's sufferers have is not the same as Coeliac. It's probably not the same as the intolerance picked up by other test you mention, which will be picking up only one form of intolerance.

The only way to tell if going gluten free will help your symptoms is by going gluten free for 2-6 months and seeing how you feel. If you've given it a good long trial and seen no benefits then you are probably fine to continue eating it.

Thyoid Peroxidase Antibodies is what people mean when they say TPO. Yes, unfortunately it makes a lot less sense than your version. There are a few different abbreviations and it can be very confusing.

Yammie1973 profile image
Yammie1973

Thank you, I did go 100% gluten free for 3 months, I was extremely ill and it had no effect whatsoever on the antibodies. I do know the difference between gluten intolerance and coeliac disease. I am the kind of person who spends ages reading and reading before taking any actions in life... something that has gotten me into hot water on many an occasion because people think that I lack spontaneity.

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