G P problems

[Ginny52]

The nhs endocrinologists my (very good) gp sent me to refused to do the tests I needed for my secondary hypothyroidism to be diagnosed. As a result he withdrew the Levothyroxine that was prescribed for me by a (very well known, but not by him!) private endo. Since then I have had to self medicate, but I am finding it a huge strain and can’t afford testing. I want to ask, in this situation, should I tell my gp? Does anyone have experience of this? The gp stopped my Levo because he doesn’t understand how secondary hypo works. I became so ill I had no choice but to start ordering from the internet (sleeping round the clock, unable to breathe, constipation that I think would have done me serious damage (I have other bowel problems).

What can a gp do in this situation?

[Lalatoot]

Can you post the results you do have and the ranges then folks can give an opinion re your condition. There is lots of experience of all sorts on here. As for the endo I would make an appt with your good gp and explain what happened and how you feel. Write it down in bullet points. Keep it factual. That way you make sure you get all your points across and sticking to facts stops them thinking that we are over emotional or whatever. Your gp is the gateway to NHS treatment if you are not wanting to self medicate.

[Ginny52 in reply to Lalatoot]

It was a member here (humanbean) who diagnosed me two years ago!

It isn’t that I don’t want to self medicate- just that the condition is complicated and I probably need more tests and treatment. Thyroid hormone is only part of it.

I did try with my gp. He does not believe nhs consultants can be wrong. I’m afraid that there is almost no chance that he will believe I’m not wasting his time. He wouldn’t read the guidelines that supported me, saying he left that to the hospital.