The only recent change I’ve made is gradually come off fluoxetine 20mg, over 3 months.
I’m sore to touch everywhere. My grip has deteriorated over this past yr.
Is 70 everol patch too high?
I’ve ordered some private bloods from medichecks today, I can’t afford to do them all at once. Any private detectives out there? Thank you 😊
Difficult to read some of these results
Can see TSH is very low at 0.02
FT4 low at 12.1 (12-22)
FT3 good at 5.5 (3.1-6.6)
Presumably you are taking some T3 and Levothyroxine?
How much?
Some people need FT4 higher than this, even when taking T3 as well
We also need these results and ranges ideally
Ferritin
Folate
B12
Vitamin D
Have you had thyroid antibodies tested in past?
Thank you, I’ve ordered these today, and doubt if I’ve had antibodies since I was diagnosed with graves 25 yrs ago, or if even then. But I’ve recently got my medical records, they don’t seem to be in date order, which isn’t helpful.
So if you had Graves (autoimmune) presumably you had RAI or thyroidectomy?
Low vitamin levels are common with Graves (and Hashimoto's) so important to regularly retest vitamin D, folate, B12 and ferritin
Are you on strictly gluten free diet or ever tried it?
Helps many Hashimoto's or Graves patients
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
Yes I had RAI and am on 125mg levothyroxine and 40mg of T3,
I’ve had the coeliac blood test before while on gluten and it was negative. I’ve managed about 1 month with no gluten, but I begin each morning being gluten free and fall off the wagon. Sorry at the poor quality of the results, it’s the only way I could fit them on.
Hi Suin,
You may not know that fluoxetine affects pain receptors in the brain and now that you have weaned off, you may be experiencing more muscle pain because of the lack of that medication.
Your pain may be certainly be caused by other factors, but it will be exacerbated by the lack of the fluoxetine for a little while. Hope this is helpful information for you. Wishing you all the best and that you feel better soon.
I didn’t know that fluoxetine affects pain receptors, of course it dulls all senses too. My goodness, do you think it might even out after awhile? I know there is something at play. I said to the doctor about bone density and maybe osteoporosis, but she eventually agreed to do the blood work above. Thank you.
Hi Suin,
Yes, eventually your body will adjust - but it will take awhile. Unfortunately, doctors don’t always tell you about these things. The key will be to find out the root cause of the pain that the fluoxetine was dulling and deal with that. Hopefully your blood work will
provide you with some answers. All the best.
Gluten free seems hard initially. But to be effective it does need to be absolutely strictly gluten free
On 2 occasions, by a kinesiologist and a functional med that diary is what I need to quit and that gluten isn’t an issue for me. So I stopped diary yesterday. I need to find a decent diary free butter.
I've found one!Are you in UK?Naturli vegan "butter"its new to Sainsburys but not in my local Tesco.Its the best dairy-free"butter I've ever tasted!
Oh gosh thanks I’ll definitely track some down, I’m a golden cow butter woman myself 🙈 and could eat it by the slice
How long were you on fluoxetine?
I was on a very low dose of another SSRI & when I asked my GP about weaning off slowly,she told me there was no need to wean off.
However,after much research on the net,I joined the forum"Surviving Antidepressants"
It is still not taken seriously by many GPs that weaning off is long-term & can be very problematic.
It is my belief that having a malfunctioning thyroid exacerabates these issues.
I tried every strategy suggested on this forum to avoid taking SSRIs because they are best avoided if underactive.My Sertraline leaflet actually stated"may impact effectiveness of thyroxine"
I had previously endured 2 years of absolute hell in the altered state of depression & extreme anxiety,so this time,after 3 months repeat experience,I asked for Sertraline.I will take it again if it happens again.It worked for me & I am glad I overcame my fear of side-effects.I hope I won't need to.
I went from a UK 16 to a UK 18.I am nearly a year SSRI free & the weight is not shifting.That's my personal evidence of its impact on my biochemistry!
I was a UK 14 until my thyroid failed,then a UK 16 for 18 years,until I took Sertraline.
I was only taking it for a year when I started to cut down.I took 6 months to wean off at 10% per month as recommended.
Thank you, I was on it this time for 2years, I’ve been on antidepressants 3 times in my life, and realising now from what you say, that I’ve suffered a lot of after effects. In recent yrs I felt my depression was more linked to hypo symptoms than anything else. But I had a bad experience 2 yrs ago which left me no other option than to turn to fluoxetine. I’ll look up those groups, I’ve gained 1 stone, but it’s definitely hrt patch related.
Hi Naomi8,
I am convinced that a short trial on an SSRI for pain about 4 years ago triggered my Graves. While my pain did disappear, it sent me into hyper energy, and shortly after that my hyperthyroidism went into overdrive . I too had to wean off very slowly, but I was on a very low dose (less than 25 mg) so there wasn’t much to wean off of. Of course my pain returned with a vengeance and it took some time to feel normal again. They are very powerful drugs. And it is true that you must wean off of SSRIs and SSNIs slowly - this appears in the package inserts. All the best to you.
I feel hrt patch is possibly linked to my elevated liver enzymes. All these cures have maybe more down sides than ups?
I actually had to stop fluoxetine as I always took it at bedtime and it began to stick in my throat, due to dry mouth 🤷♀️
The patch is not supposed to cause significant liver issues since it’s transdermal, but I certainly can’t say that for sure, as I am not a doctor or a pharmacist and every person is different. I would ask the pharmacist because they tend to know more about that stuff than doctors!
If you were taking HRT by mouth, I would say yes to liver effects. Hope this helps.
Yes,I too was on a similar low dose & dropped it lower after my mental health improved.I still decided to reduce ultra-cautiously.From what I have read,long-term use is suspected of leading to diabetes in some patients.I have now had two episodes of gout(I know this runs in my family)& I am reading it is linked to metabolic syndrome.I am blaming Sertraline for this.The weight gain hasn't helped with regard to developing gout.
I don't drink,rarely eat meat & don't eat high purine foods.
FYI - Diabetes is more than suspected - it is now an actual warning on the package inserts for all these drugs so the authorities now believe it is a cause and not just possible in many cases.
Just read of hypothyroidism & gout link in pubmed,thanks to searching gout on this forum
Would you kindly provide the link? Someone else on the forum just finished with a bout of gout and I would like to send a new post. Thanks and all the best.
I tapped "gout"into this forum's search box & refined my search to this forum.The first post was"Anyone with hypothyroidism & gout"by Biochem78
VocalEK replied with the link;_
ncbi.nlm.nih.gov/pubmed/117
Thanks so much, Naomi. 🤗
See also-:"Mad In The UK"
selenium is essential for the thyroid but it seems to be missing from most of the profiles
I have seen here. Also vitally important magnesium. Dr Abrahams had very positive results with magnesium and malic acid supplementation. Brought energy levels up in two days.
Magnesium chloride applied to the skin... easily absorbed. or orally magnesium malate
orotate, glycinate,citrate...also epsom salts which is magnesium sulfate. Go easy through
with epsom salts as it can cause diarrhea. start with a teaspoon see how that goes and
find a comfortable level.
Do I need to tweak my T3 or T4? After feeling so much better hypo symptoms have returned. 
my T4 is lower after a year of medication!
How much T3,t4 body still produce when on NDT?
Docs want to reduce my T4 Levothyroxine. Are they right to do so?
How do I get my t4 up?
