Poor temperature control and exercise - Thyroid UK

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Poor temperature control and exercise

Yoyo19 profile image
4 Replies

Hi,

Oct 2018 right lobe thyroidectomy. Diagnosis papillary cancer.

I take 50mg daily levothyroxine

I'm having issues when at my gym class. My body temperature shoots up so high, bright red face, severe sweating.

My muscular and cardio fitness are good, but the high temperatures are stopping me from continuing.

I would love to hear if anyone else has had similar problems or any advice ??

I should probably also mention I was freezing all of last winter.... so gaining heat when I'm cold is also an issue.

Thank you in advance

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Yoyo19
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SlowDragon profile image
SlowDragonAdministrator

50mcg is only a starter dose of Levothyroxine

First thing is, do you have any actual blood test results? if not will need to get hold of copies. You are legally entitled to printed copies of your blood test results and ranges.

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised or if under medicated

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).

The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many people need TSH significantly under one) and most important is that FT4 in top third of range and FT3 at least half way in range

All four vitamins need to be regularly tested and frequently need supplementing to maintain optimal levels

NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.

nhs.uk/medicines/levothyrox...

Also what foods to avoid (eg recommended to avoid calcium rich foods at least four hours from taking Levo)

Always take Levo on empty stomach and then nothing apart from water for at least an hour after.

Many take Levothyroxine early morning, on waking, but it may be more convenient and possibly more effective taken at bedtime.

verywell.com/should-i-take-...

Other medication at least 2 hours away, some like HRT, iron, calcium, vitamin D or magnesium at least four hours away from Levothyroxine

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased or at repeat prescription.

Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients. Teva is the only brand that makes 75mcg tablet.

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Bloods should be retested 6-8 weeks after any dose change in Levothyroxine. Or if change how, when you take Levothyroxine

Come back with new post once you get results and ranges on full testing. Members can advise on next steps

Yoyo19 profile image
Yoyo19

Thank you

JumpJiving profile image
JumpJiving

Yes, similar problems since around the time my thyroid first went squiffy (first went hyper, then been hypo ever since, multiple years now).

My suspicion is that something went awry in the hypothalamus-pituitary-thyroid relationship to cause the overheating and sweating. The local (useless) endocrinologist hasn't a clue. Tested my testosterone (which is fine), but failed to test cortisol despite being asked to do so (in the end I tested it through Medichecks), and failed to test vitamin D (which I have also done through Medichecks). The endo came up with nothing useful at all. The cortisol tests that I had done gave high results. I've given up my significant caffeine habit completely since, which appears to have reduced my cortisol levels slightly (they are in range at least now). However, that hasn't helped the overheating, sweating etc. I am currently on a loading dose of D3 as my level was low - it's in range now but still below where I want it. I am also currently weaning myself off amitriptyline hydrochloride (which is one of many drugs that can cause sweating etc - you might want to check your medications for side effects). I've also tried things to help symptoms. Iontophoresis helps for those parts of the body where it is practical. Specialist antiperspirants are mostly useless in my experience. Unfortunately, the one for facial use that seemed to work seems to trigger eczyma in me :-( As I won't do botox injections (which supposedly work for sweating), and won't have nerves surgically cut, the next thing is low doses of beta blockers. I'm not at all keen on that idea, but will probably give them a try later in the year (I want to stabilise my FT3 level first - at least four more weeks I reckon, as well as get off amitriptyline completely - another week I reckon on the latter with a liver function test shortly after that before I consider taking the beta blockers). I suspect the beta blockers will work, but the question will be whether side effects bother me. Time will tell.

SilverAvocado profile image
SilverAvocado

The simplest possibility to look into is that your thyroid hormone dose isn't right. 50mcg is a pretty low dose, and sometimes doses that low can cause more harm than good.

I've also had thyroid cancer and looking back the first symptoms I ever had were while exercising intensely. These are the times we're putting our bodies under the greatest strain and these symptoms can come out. In the short term it might be an idea to cut out anything that gives you a bad reaction, and stick to things a bit less intense.

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