Help with a symptom not usually associated with hypothyroidism

[petepeg]

Hi,

I have had an underactive thyroid for 24 years, but i am never cold, quite the opposite i am always warm/hot. has anyone had this syptom before?

[MissOphelia]

I have this too petepeg, I am always boiling, & even the slightest exertion & I start sweating buckets. This hot weather is hell!

I know I’ve been under medicated for nearly a year so I know it’s not due to being over medicated (overmedication I’ve often read as being the cause).

It’s absolutely horrible.

[ling in reply to MissOphelia]

Does the boiling heat come up to your skin? Is your skin dried out by the heat?

Thank you

[MissOphelia in reply to ling]

Hi ling, no worries. My skin is sweaty rather than dried out, it feels hot & clammy to the touch.

[petepeg in reply to MissOphelia]

Me too!!...

[ling in reply to MissOphelia]

Thank you Ophelia : )

[petepeg in reply to MissOphelia]

Thats such a relief, it really does cause me so many issues, don't think mine is overmedication as always been like this and get checked regularly. But have just read the article on thyroid UK about the DI02 test, sent off for that to see if i may need T3 also. never heard of this before but thought i would give it a try as i never really feel 100% lately.

[MissOphelia in reply to petepeg]

It is truly awful, I’m so sorry you’ve got it too.

I try and do things but it makes me feel so unwell. Sometimes it’s like I feel so hot my body thinks I have a fever and I almost get cold shivery sweats too but if I take my temperature, no fever! It’s very strange.

I’m hoping when my medication gets regulated again for a while, I might start getting some relief from this and the other symptoms.

I’ve been looking at that test too, if I don’t start seeing some improvement!

Lots of luck xx

[greygoose]

I was never cold, always hot. I think that's true for a lot of hypos. It's a mistake to believe that hypos are always cold, hypers hot; hypos have low blood pressure, hypers high; hypos put on weight, hypers lose it…

So many symptoms can cross over and be both hypo and hyper. Which is why it's difficult to dose - or diagnose - by symptoms alone. You always need blood tests to back it up.

[petepeg in reply to greygoose]

Thats such a relief, it really does cause me so many issues, don't think mine is overmedication as always been like this and get checked regularly. But have just read the article on thyroid UK about the DI02 test, sent off for that to see if i may need T3 also. never heard of this before but thought i would give it a try as i never really feel 100% lately.

[greygoose in reply to petepeg]

I'm not sure the DIO2 test proves anything concrete. If you want to know how well you convert, you need to get your FT4 and FT3 tested, and compare them.

[JumpJiving]

Yes, same here. We refer to my internal furnace, as I am always toasty, even when those around me are freezing. Looking at my medical records, I first complained to the GP about hyperhidrosis soon after my thyroid went squiffy and I ended up on levothyroxine. The GP has prescribed beta blockers to see if they stop the sweating, but (a) the online pharmacy is taking ages to deliver them, and (b) I'm not sure if I want to take beta blockers - still umming and arring on that one.

[SmallBlueThing in reply to JumpJiving]

If you do give the beta blocker a try, take it well away from your thyroid dose. Think twice if you've already got a slow heart rate. Atenolol at low dose immediately caused central sleep apnoea, for me.

[JumpJiving in reply to SmallBlueThing]

Thanks SmallBlueThing . I had an increased heart rate until quite recently. Giving up caffeine has reduced it. I suspect taking NDT might also have reduced it. Whether it was one or both of those, my heart rate is about 20 per minute slower than it was previously. I am also now weaning myself off of amitriptyline hydrochloride, which I had been taking for migraines, so it'll be interesting to see if my heart rate increases again once I am off of that. I won't even contemplate even a low dose of beta blockers until I am completely off amitriptyline and stabilised. My current GP seems to like just throwing more drugs into the mix rather than working out what effect each thing has on me. I may well change GP shortly - my previous one (who moved out of the area) wanted me to come off things, this one just wants to add more and more, even when I say I don't want them. I trusted the previous one far more. Were I to start the beta blockers, I don't trust the current one to monitor how they affect me.

[SmallBlueThing in reply to JumpJiving]

My resting heart rate is 40ish to 50ish but I had palpitations for a few weeks a few years ago when I'd increased my dose after six weeks instead of about 10 weeks and also been started on doxazosin (palpitations are a possible side effect) at double the recommended starting dose. The palpitations still follow me around on consultants' letters, though I've not had any since and take higher doses of levo (plus Thiroyd) and doxazosin than when I had the problem. I think the history of palpitations encouraged a hospital doctor to start me on the beta blocker, despite my slow heart rate, and then I had the frightening experience of waking, fighting for breath (sleep apnoea), but didn't mention it because they wanted my bed! It was good to get my usual heart rate responsiveness back when my consultant said I could stop the beta blocker, a few months later.

If the heart is constantly beating fast, or for extended periods (e.g. long distance cycling), there's a risk of the muscle thickening, causing high blood pressure that's difficult to control.

[Hidden]

Hi petepeg

I too suffer from this constantly. It's hellish. I can sympathise with you. Even in winter, fans on and windows open. I don't have a diagnosis yet as my levels are normal. I always thought more hyper but after reading on here it's more hypothyroidism related.

[Greekchick]

Hi petepeg,

We are all so different - I was hyperthyroid with Graves and freezing all the time - I wore more layers and jackets in 28 C weather than anyone I knew before my TT. Now that I am surgically hypo, I feel much warmer and don’t need all those clothes. Go figure! We are all so different! Wishing you all the best.