Advise please..

[Spotydave]

Hi all. Im on 100mcg .levo

With hashi...

Last week i have been getting slightly giddy spells or light headed and also pain in my right eye.. and a sensory issues on right cheek..

I was sent to ent for a check up but they just said.my hearing and other things was fine but he think i have a neck problem.mabe arthritis or something.. also i keep coming over feeling crap.. often after i have been doing something.. if im relaxing im not to bad ..but it seems to be more.in the afternoon aswell .. this morning i was great and worked well but this afternoon i feel crappy again

Two days ago i felt crap all the time and didnt want to do anything.i felt like i was going backwards.also got slight back ache

I take vit d vit k2 in the.morning

magnesium bed time

.b complex .. 1 at lunch 1 early evening..

Any ideas??

I felt ok few weeks ago but this is new..

Would being over medicated cause this ?? Or a vitamin ??

Thank u

[SlowDragon Administrator]

What time of day do you take Levothyroxine?

Other medication at least 2 hours away, some like iron, calcium, vitamin D or magnesium at least four hours away from Levothyroxine

If vitamin D is mouth spray that can be an hour away from Levo

How long have you been on 100mcg?

When was last FULL Thyroid test?

[Spotydave in reply to SlowDragon]

Hi dragon great to hear from u . I have put up medicheck from 18th march ..i take levo at 5am .

Vit d and k2 at 8am both sprays

B complex at aprox 1pm and 7pm

Magnesium 10pm

Been on 100mcg for about 6weeks ..

I also have nhs results dated 9/3/19 aswell with fbc and urea and electrolyte

[SlowDragon Administrator in reply to Spotydave]

Perhaps wait till 8-10 weeks and do full test again

You may be ready for next dose increase

[Spotydave in reply to SlowDragon]

I was wondering if i was over medicated.. last tsh was on nhs 0.4. Range 0.4-5.0 or if it was adrenals etc. I no nothing about adrenals

[SlowDragon Administrator in reply to Spotydave]

Unlikely, your results were well within range

Tsh.. 0.544 r 0.27-4.2 last test 3.2

Free t3 4.57 r 3.1-6.8 last test 4.33

Free thyroxine 18.8 r 12-22 last test 13.9

but if you are worried test sooner

Just remember to test under same circumstances

[Spotydave in reply to SlowDragon]

Hi mate.. yes cheers . Is the t3 where it should be? I have a endo appointment tomorrow.. im not really sure why i need to go but i will go and put it to him aswell.. like now i feel great again. So its up and down and comes at any time.. but it definitely makes me feel ill and odd.

[SlowDragon Administrator in reply to Spotydave]

Do you feel worse after 2-3 busy days....then improve if have more rest ?

[Spotydave in reply to SlowDragon]

To be honest i cant seem to work it out.. i worked today and was fine

Then while i was at home.i come over a bit rubbish with head ache and feeling off. After dinner i seem to feel better but then went off then back on and ive just sat down and feel ok.. back still aching slight amount .

[Angel_of_the_North in reply to Spotydave]

Many people feel well with T3 over 5 but still in range. I'd want my folate higher and my vit D in range

[jamesal0]

just drop your Levo dose 25mcg a day and drink lots of water - 8-12 glasses a day (cut the pills with a blade). See how you feel in a week. If you start feeling cold you might have to sneak it back up but just see if you feel better first.

[Spotydave in reply to jamesal0]

Hi james i tried that already.. i took 100 one day and 75 the other and wasnt feeling good after a couple of weeks.. im back on 100 now.. mabe ive had a virus or something.. im not sure. I feel good today.. at present... Im waiting to see if it drops off this afternoon..

[jamesal0 in reply to Spotydave]

know where you are - when I have my NDT tune wrong. As I gently swing from low to high - I get a good day while I'm optimal and then go high and have a few bad days. Water Water to keep the system really hydrated. I pee hourly during daylight hours

[Spotydave in reply to jamesal0]

Thats interesting .. i felt that could be whats happening to me. But ive sen an endo today and she thinks i have a plutirity problem ... Orderd loads of bloods and an mri

[jamesal0 in reply to Spotydave]

Hi Dave - whats plutirity I googled but couldn't find the word. Also The eye pain thing is just a side effect of Levo. Funny when you look at all the side effects, I cant believe they are allowed to sell the stuff. mayoclinic.org/drugs-supple... Levo and NDT both drie you out (although I only get eye pain on Levo) Drink 8-12 glasses of water perday

[jamesal0 in reply to jamesal0]

Hi Dave I dont know your age but as males Testosterone levels fall, your ability to convert T4 into T3 will plummet. At 50 I was 13 (10.4 - 30.1nmol/l Testos.) I started taking a prescription testosterone supplement and my thyroid numbers and how I feel improved significantly. Warning - once you start testosterone you are on it for life, your testis shut down and will not restart for 18months - read 18 months of misery.

[Spotydave in reply to jamesal0]

Hi james.. thanks for your reply.. im 50... I have to have bloods done and testosterone is one.of the tests.. the endo ask me.lots of questions about testis size libido etc.. so i think shes on the case. Shes also testing alot more i know i have to fast aswell and to ha e the test at 9am .. also the bloods are to do with the pit gland.. i have read about taking testosterone.. im ok with that.. its the serious part im a bit worried about..

[Spotydave in reply to jamesal0]

Ho james.. sorry i didnt spell it right lol .. it was the blood results of my 1st test showed not normal results indicating a poss pit gland problem... 3gps missed it

[helvella Administrator Thyroid UK in reply to jamesal0]

There is potentially danger in drinking too much.

8 to 12 glasses is very imprecise - many glasses are half a UK pint or more (10 ounces/284 mL). Which means you could be recommending four to six UK pints (2.27 3.40 litres) a day - or more.

The link below is to a story of someone who suffered brain damage from four pints a day.

Woman left brain damaged by detox

Dawn says she can no longer work and relies heavily on husband Geoff

A woman has been awarded more than £800,000 after she suffered permanent brain damage while on a detox diet.

news.bbc.co.uk/1/hi/uk/7520...

[jamesal0 in reply to helvella]

dunknow ? but it works for me, maybe we sweat more in Australia

About 15.5 cups (3.7 liters) of fluids for men

About 11.5 cups (2.7 liters) of fluids a day for women

mayoclinic.org/healthy-life...

[jamesal0 in reply to jamesal0]

Just pinch the back of your hand, if the skin doesn't spring straight back instantly, you are dehydrated.

[Spotydave in reply to jamesal0]

It bounced back like a spring lol

[helvella Administrator Thyroid UK in reply to jamesal0]

You will notice that says:

These recommendations cover fluids from water, other beverages and food.

People rarely consider the water content of their food, they often even forget to include coffee and tea, etc.

I am not exactly impressed with the article. On the one hand it says:

About 11.5 cups (2.7 liters) of fluids a day for women.

Then goes on to report LOWER amounts when pregnant!

The Office on Women's Health recommends that pregnant women drink about 10 cups (2.4 liters) of fluids daily...

[jamesal0 in reply to helvella]

If you drink 8 std cups of water per day as a male I dont think your going to get brain dramage, although maybe it's too late for me

[Spotydave in reply to jamesal0]

I drink about 2 ltrs a day plus tea etc .. i use to do huge amount of gym work so im fairly good with nutrition but by no means an expert

[helvella Administrator Thyroid UK in reply to jamesal0]

In the UK, there is no such measure as "standard cup". (Well, there is, but it is almost entirely unknown.)

The cup as a unit of measure varies according to many things including country. It would be far better to express quantity in millilitres and, possibly, a customary measure/Avoirdupois/Imperial or other as well.

en.wikipedia.org/wiki/Cup_%...

[Spotydave in reply to helvella]

I have heard of drowning with water etc.. you wouldn't think it .. but it happens..

[Spotydave in reply to jamesal0]

I just read the mayo report you sent... Thats unreal.. your right u wouldn't think they would be allowed to sell it.. i definitely get some.of them side affects... Unreal

[jamesal0 in reply to Spotydave]

Yes I take NDT because I tick the box on a about half the side effects listed in the flimsy provided with Thyroxine/Levothyroxine. Not saying NDT is perfect either. Getting a big lump of T3 once or twice a day weather you need it or not takes abit of getting used to

[Spotydave in reply to jamesal0]

How does it afect you ??

[jamesal0 in reply to Spotydave]

On Thyroxine/Levothyroxine (100mcg) As soon as I get even slightly close to having a respectable TSH, I get. A constant head ache, always thirsty/buzy tongue, brain fog, sore finger tips, stabbing pain in the eye, dry eyes, numb feet to the point I burn them on hot surfaces, can't stand on one foot, sore joints, sore rib joints, nervous bladder, wee 6 times a night, generally feel crap, blood pressure up 15 points, cholesterol up and the finally indignation I put weight, got to 110kg. But my Temp is stable 36.6C.

On NDT and Testosterone. I have a normal TSH, slight buzzy head ache for an hour after taking 30mg which I take 3 x per day, finger tips and toes hurt if I take too much, hands and feet joints/tendons hurt if I dont take enough, I'm always thirsty/buzy tongue . Maintain 90kg weight and feel great so I can do an hour of gym, jogging, cycling or swimming every day. My Temp flapps all over the place from 35.4-37.0C

[helvella Administrator Thyroid UK in reply to Spotydave]

You have to remember that many medicines have long lists of so-called side effects. And the more commonly prescribed a medicine is, and the more years it has been available, the longer that list is likely to be.

I offer one medicine which is formally a Pharmacy medicine (in lower doses) - effectively over-the-counter in pharmacies with this nice little list:

Side-effects

For all OPIOIDS

Common or very common

Arrhythmias; confusion; constipation; dizziness; drowsiness; dry mouth; euphoric mood; flushing; hallucination; headache; hyperhidrosis; hypotension (with high doses); miosis; nausea (more common on initiation); palpitations; respiratory depression (with high doses); skin reactions; urinary retention; vertigo; visual impairment; vomiting (more common on initiation); withdrawal syndrome (in adults)

Uncommon

Drug dependence; dysphoria

Side-effects, further information

Respiratory depression

Respiratory depression is a major concern with opioid analgesics and it may be treated by artificial ventilation or be reversed by naloxone.

Dependence and withdrawal

Psychological dependence rarely occurs when opioids are used therapeutically (e.g. for pain relief), but tolerance can develop during long-term treatment.

Overdose

Opioids (narcotic analgesics) cause coma, respiratory depression, and pinpoint pupils. For details on the management of poisoning, see Opioids, under Emergency treatment of poisoning and consider the specific antidote, naloxone hydrochloride.

For CO-CODAMOL

Frequency not known

Abdominal pain; addiction; agranulocytosis; blood disorder; irritability; pancreatitis; restlessness; severe cutaneous adverse reactions (SCARs); thrombocytopenia

Overdose

Liver damage (and less frequently renal damage) following overdosage with paracetamol.

bnf.nice.org.uk/drug/co-cod...

Any and every effective medicine is bound to have the possibility of causing side-effects in some people.