Joints and muscle pains in hypothyroidism? - Thyroid UK

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Joints and muscle pains in hypothyroidism?

Oanav profile image
43 Replies

Hi guys,

Do you experience these kind of symptoms?

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Oanav profile image
Oanav
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43 Replies
Byern2018 profile image
Byern2018

Since I got an inflammation in my thyroid I have had muscle pain every day. Some day worse but there every day, especially when I wake up and when I have been sedentary. Nothing have helped, im stiff in muscles but normal labs, will test without medication. Have tested higher dose but only get worse then. Think there is the inflammation that has not healed...

Oanav profile image
Oanav in reply toByern2018

Yes. Mine too. When i wake up and when i am sedentary..

greygoose profile image
greygoose

Joint pain can be due to low vit D. Muscle pain can be due to low zinc. Have you had any nutrients tested?

25 mcg is less than a starter dose, so you're probably under-medicated. Can you post your lab results and ranges, so we can see? :)

Oanav profile image
Oanav in reply togreygoose

I was not tested for zinc. I am taking already D vitamin.

I am not taking at this moment any hormon. My cureent tsh levels is 6,1. I just tested. Ft3,ft4,antibodies are ok

greygoose profile image
greygoose in reply toOanav

With a TSH of 6.1 you are hypo. So, I rather doubt your FT4/3 are OK. But, it depends on your definition of OK. If you mean just in-range, then that can be far from OK. However, we would need to have the exact numbers - results and ranges - to know. :)

Oanav profile image
Oanav in reply togreygoose

Are okey cuz they are in the normal range.

greygoose profile image
greygoose in reply toOanav

Just being in the normal range does not automatically make them OK. It depends where in the range they fall. And with a TSH of 6.1, I would imagine they are at the bottom of the range, which is not OK.

Oanav profile image
Oanav in reply togreygoose

Ft 4 1,40 (0,93-1,7)

Ft 3 6,23 (3,1-6,8)

Atpo antibodies <10 (<35)

When at first made the thryoid tests, in march i felt really bad, i barelly could stand up and staying awake. I took 12 days hormons, i felt like crap. I stopped and started taking adrenal supplements and therapy for my anxiety. I feel better, not amazing, but slowly better. That s why i am continuing one more month with these supplements and in july i will retest. That is what my doc said, if i feel better we will continue doing this. She doesnt want give me another brand of hormones cuz i am not feeling worse than last month

greygoose profile image
greygoose in reply toOanav

And your TSH was 6.1 with those levels? Something wrong there, somewhere.

Oanav profile image
Oanav in reply togreygoose

Yes. And i did the tests on different 2 labs. On the both labs only tsh was high. My doctor said that was only due to stress.

greygoose profile image
greygoose in reply toOanav

Hmmm… Very strange.

Oanav profile image
Oanav in reply togreygoose

I will continue taking one more month my adrenal supplements and antistress and continue with my therapy. I do not know otherwise what to do.

greygoose profile image
greygoose in reply toOanav

Well, you could try taking some zinc, and see if that helps. My muscle pain disappeared over-night when I started taking zinc.

Of course, it would be desirable to get both zinc and copper tested before starting supplements, but if that's not possible, just try the zinc and see what happens. :)

Oanav profile image
Oanav in reply togreygoose

I could try that. Anyway i am very kinda depressed with all this situation. I will make the lab tests again next week to compare them and let them for july. But i feel like my anxiety is so high that i think i am having lupus because of the muscle pain

greygoose profile image
greygoose in reply toOanav

Understandable that you feel depressed. But, try the zinc, and see what happens. Or, you could try CBD oil, that's good for muscle pain.

Oanav profile image
Oanav in reply togreygoose

The fatique is not so obvious like last month..but time to time i still have muscle pain

SeasideSusie profile image
SeasideSusieRemembering

Oanav

Muscle and joint pains can be low Vit D level.

You have Hashimoto's. Hashi's often leads to low nutrient levels or deficiencies. It would be a good idea to test :

Vit D

B12

Folate

Ferritin

Post results, reference ranges and units of measurement for Vit D and B12 and members can comment.

Oanav profile image
Oanav in reply toSeasideSusie

I did the hemoglobin test. And it is at the maximum limit.

D vitamin i am already taking. That s the only med with the adrenal supplements.. the doc said it s not hashimoto. He did it a scan and he said my thyroid it s perfect and the tsh levels are high due my stress levels...

SeasideSusie profile image
SeasideSusieRemembering in reply toOanav

Oanav

A few weeks ago in this thread you said

healthunlocked.com/thyroidu...

"I recently found out about my Hashimo problem"

So how come your doctor is now saying you don't have Hashi's?

What is your Vit D level and how much D3 are you taking? Do you also take D3's important cofactors - magnesium and Vit K2-mk7?

What about B12, Folate and Ferritin?

What are you full thyroid results

TSH

FT4

FT3

Thyroid antibodies

Oanav profile image
Oanav in reply toSeasideSusie

Because i changed my doc. The first one was wrong.

I am taking 2000 units Vit D. That s the maximum i can get in my country.

Tsh levels 6,1 normal range 0,5-4,2.

The others tests were all in the normal range

SeasideSusie profile image
SeasideSusieRemembering in reply toOanav

What made the first doctor say you have Hashimoto's?

What is your Vit D level? If you say what it is I can tell you if you are taking enough D3. If 2000iu isn't enough you can take more than 1.

You are very undermedicated to have a TSH of 6.1, the aim of a treated hypo patient generally is for TSH to be 1 or lower with FT4 and FT3 in the upper part of their ranges if that is where you feel well.

What are the results of the tests that are in the normal range? Being in range doesn't mean that you're at an optimal level.

Oanav profile image
Oanav in reply toSeasideSusie

The scan of my thyroid made my doctor saying this. This actual doctor said my thyroid looks perfect. Also another one said the same. I have been to 4 doctors already. Just one of them told me take hormons.

My Vitamin D levels are 15,4.

Ft4 1,40 (0,93-1,7)

Ft3 6,23 (3,1-6,8)

Antibodies <10(<35)

SeasideSusie profile image
SeasideSusieRemembering in reply toOanav

Are the units of measurement for Vit D ng/ml or nmol/L?

Oanav profile image
Oanav in reply toSeasideSusie

15,4 (20-70)

SeasideSusie profile image
SeasideSusieRemembering in reply toOanav

15,4 (20-70)

That's a result with reference range. Have you got the units of measurement?

Whichever unit of measurement you are clearly below range and 2,000iu Vit D isn't enough to raise it, you should probably take 2 rather than 1.

Oanav profile image
Oanav in reply toSeasideSusie

Ng/ml.

SeasideSusie profile image
SeasideSusieRemembering in reply toOanav

The Vit D Council recommends a level of 50ng/ml and the Vit D Society recommends a level of 40-60ng/ml.

For your current level of 15.4ng/ml the Vit D Society suggests supplementing with 4,900iu D3 daily

vitamindcouncil.org/i-teste...

So as I already mentioned, you could easily double your dose if you are only taking 2,000iu a day.

Retest in 3 months and when you've reached the recommended level then you'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range.

There are important cofactors needed when taking D3 as recommended by the Vit D Council -

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking tablets/capsules/softgels, no necessity if using an oral spray

Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking tablets/capsules, no necessity if using topical forms of magnesium.

naturalnews.com/046401_magn...

Check out the other cofactors too (some of which can be obtained from food).

in reply toSeasideSusie

The only issue could be with vitamin K (in whatever form), if supplemented, as it can interfere with INR and conflict with anticoagulants/blood thinners, if not taken in 'natural' form (ie diet).

But certainly vitamin D is crucial, as you indicate, though one needs to be careful that they have adequate levels of vitamin K to go with it, or the body can't properly absorb the vitamin D.

Furthermore, we need enough D AND K in order to absorb calcium. Many people supplement with calcium, not realising that without D & K that the body can't metabolise it properly, so it ends up clogging the arteries and veins. So we need K to absorb and 'direct' D; and we need D to absorb calcium. Taking one in isolation, or inadequately, can cause problems, both with clogging as well as toxicity if in excess. Never easy, is it?

Sadly, most 'recommended daily intake' figures are for MINIMUM levels, not the 'ideal' level. Vitamin C is one such candidate. The doctors advise of levels that are only just above those of 'scurvy'. We need MUCH more; but in so doing (because it's a powerful detox) we need to replace the good bacteria that are killed in our gut, along with the bad.

I think you answered Oanav's comments well. Nice to know of other folk who can 'fill the gaps' as it were. One may understand their own condition well, but outside this, things are more sketchy - at least as far as my own situation goes.

SeasideSusie profile image
SeasideSusieRemembering in reply to

There's conflicting information about Vit K. K1 is supposed to be the blood clotting form and K2 is supposed to the one directing calcium. It's up to everyone to do their own research at the end of the day and make up their own mind from the available information.

Personally, I'd never suggest anyone takes calcium without having it tested to know if they are low.

in reply toSeasideSusie

Thank you, and I agree pretty much with what you've said, especially re calcium - and vitamin K too, though many don’t realise it is as important as it is to absorb vitamin D.

Thanks again.

SlowDragon profile image
SlowDragonAdministrator in reply toOanav

It can take 4-6 months for low vitamin D to improve on supplements

Can get increase bone pain as bones repair

Being hypothyroid may make it harder to improve low vitamin D

BethanyJean profile image
BethanyJean

I have hyperthyroidism and suffer with really bad muscle and joint pains! I also feel like the pain is in my bones, the doctor wasnt fussed when i told him

Byern2018 profile image
Byern2018 in reply toBethanyJean

Like me, will start nutrients to see if it will help. Was low in vitD

BadHare profile image
BadHare

I have constant joint & muscle pain due to trauma & arthritis. The overall flu like pain I had for years has been reduced with good supplementation, thyroid hormones & careful diet.

Make sure you're getting good amounts of all the micronutrients we need to make our thyroid hormones work efectively.

Tebo2018 profile image
Tebo2018

My pain has increased significantly over the last year. Before that there were just flares or times where it'd be worse then go back to manageable. Right now I limp around & hurt terribly. My dr appt is next month. Incidentally my TSH is 26 now since they lowered my dose which was done because I was having trouble with being out of breath, palps, racing, irreg heart beat, abnormal EKG etc (lowered from 100mcg to 75 mcg then up to 88mcg) During that time TSH went from (1 to 4 to 7 & now for last couple months 26).

My ankles are swollen & really painful, wrists feel like they'll snap if I bend them, much pain in thumbs, fingers ache, back, sciatic, knees & hips. I use a lot of heat & Ibuprofen to try to help but doesn't do much. I know it won't till I get my TSH back down & recheck my vitamin levels.

Also, I was told in my 20s I had arthritis, but never really checked into it more than that so I don't know for sure if it's progressing causing this or ? By the way, I'm in US Florida get a lot of sun, but always def in Vit D only made it into normal range 1x in past 8ish yrs. (with supplements).

You're not alone anyway...I sure know how you feel. Hope you find relief. I'm a mess at the moment (& by moment I mean for yrs) I let myself get defeated by poor managing/care & gave up.....don't be like me is my advice. Get some help.

Oanav profile image
Oanav in reply toTebo2018

Thank you. When i do not exercise it s worse, when i am active it doesnt feel like that. They are days when i feel normal, without any problems. I just got panicked one day thinking of having lupus. But if will have again normal tsh levels and still having joint pains then i will look for something else

Selenium, zinc and vitamin C taken together in a supplement can help joint inflammation

and muscle pain. Selenium is found in brazil nuts beef, and ox liver. Magnesium carbonate can also help muscle pain. I take an indigestion remedy with magnesium, and it helps, or eat a banana and drink tonic water. Lack of selenium can cause severe depression, to the point of being suicidal, but too much is toxic, so you would have to check with your pharmacist, on the right level to take, according to your diet. I take a combination zinc selenium and 1000 grams of vitamin C which can be found in Boots, in a soluble tablet drink. Copper and zinc can be found in plain chocolate, a few squares a day should give you enough. However I have found taking a supplement better, than guess work!

Oanav profile image
Oanav in reply to

And how do you know you have selenium deficit?

It is not tested for but is recognised as important in combination with zinc and vitamin C in its role of helping the immune system.

The Role of Selenium is Inflammation and Immunity From Molecular Mechanisms To Therapeutic Opportunities is the title of an article found at -

ncbi.nim.nih.gov/pmc/articl...

If you type in the title of the article it may come up in your search if my link is out of date.

helvella profile image
helvellaAdministrator in reply to

It is perfectly possible to test for selenium.

pathology.royalberkshire.nh...

But looks like this lab restricts testing to a very small group of patients.

in reply tohelvella

I live in Wales - so I can't speak for England or Scotland or Northern Ireland. I doubt if our doctors have heard of selenium here.

helvella profile image
helvellaAdministrator in reply to

I think they have! At least, the labs have:

cardiffandvaleuhb.wales.nhs...

StitchFairy profile image
StitchFairy in reply to

That's a strange thing to say. Do you think that doctors in Wales are trained at some inferior med school to doctors in the rest of the UK? I was under the impression that Cardiff School of Medicine had a very good reputation.

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