Radioactive treatment : Despite being on carbi... - Thyroid UK

Thyroid UK

137,786 members161,598 posts

Radioactive treatment

Riley1969 profile image
10 Replies

Despite being on carbi down to 10mg and propanal 15mg daily since Nov still have all Graves or anxiity symptoms if anything more .T4 down from 21 to 9 but then 10 six weeks later but within range 8 to 14 ..TSH up from basically nothing to nearly 5 range 1 to 4 ...T3 was 5 when last checked and peroxide 75.4 ..all vitamin levels fine ...59 got asthma and anxiety high due to home issues .seeing endo specililast on Tuesday and booked in for radioactive drink on 18th April but uncertain about this sorry this is a rush job help please .chris x

Written by
Riley1969 profile image
Riley1969
To view profiles and participate in discussions please or .
Read more about...
10 Replies
asiatic profile image
asiatic

Riley my first reaction on reading your post was that having RAI after only a few months treatment was crazy. You need to stand back and give yourself longer to consider all your options. Then I looked back to your other posts and a whole lot of other questions came to mind. The first being how do you even know it is Graves disease ? I see no mention of you having TRAb test to confirm it. You seem to be going hypothyroid so it would appear you are not being monitored correctly. Lots of good advice was given in reply to your other posts but you don't seem to have taken their advice. Go back to basics. Keep it simple. Give all your blood test results with ranges that have been done along with the doses of drugs you were on and your symptoms. With this information I am sure you can get good advice. Many of us would love to help. However I am struggling to make sense of what is going on but others wiser than me may !

Riley1969 profile image
Riley1969

TSh receptor in Jan which is TRAB was 10 range 0to 1 other than that thyroid peroxide was 75 range 0 to 9 TSH has gone from nothing to nearly 5 range 0.5 to 3.6 apart from medication listed previously on sertraline for depression and take asthma preventor .Had anxiety before graves now very high other symptoms heat insensitivity urinating a lot and poo loose irritability headaches sore eyes coughing.Cholesterol has always been high

Riley1969 profile image
Riley1969 in reply to Riley1969

And T4 down from 21 to 9 range 8 to 14 T3 was 5 range 3 to 7

asiatic profile image
asiatic

Still having difficulty understanding your disease course. I have tried to compile a summary. If you correct any mistakes and repost as a new query you may get more response as people won't need to refer back to all your other posts and I feel you do need some good advice from as you are being badly treated by your doctor. Check too if it is T4 and not FreeT4

In your tests and if Free T3 was ever measured

Oct. - T4 is 21 ( range 7.9 - 14 )

TSH 0.005 ( 0.57 - 3.6 )

You are started on 15mg Carbimazole and 30mg Propranolol.

Nov. T4 18.4 TSH 0.005

Dec. T4 14 TSH 0.005

Carbimazole and Propranolol reduced to 15mg.

Jan. T4 9 TSH 5 Trab 10 (0-1)

TPO 75 ( 0-9)

You feel awful with symptoms of anxiety etc

All vitamins fine.You are having RAI ablation 18th April.

Hope your repost gets you some helpful advice

Riley1969 profile image
Riley1969 in reply to asiatic

Thanks your so kind had a megga stressful day so can’t do more than say thanks

Valarian profile image
Valarian in reply to asiatic

Given thyroid levels have come down within a couple of months, it does seem early to be pushing RAI.

It doesn’t look as though FT3 has been measured, but TSH appears to have recovered, so unlikely it’s still above range.

Riley, are you still on 15mg/day carbimazole ?

Riley1969 profile image
Riley1969 in reply to Valarian

Thanks now on 10mg

Greekchick profile image
Greekchick

Hi Riley1969,

Do you have a goiter and if you do, is it large? Does it keep you from swallowing, breathing, or having difficulty talking?

Riley1969 profile image
Riley1969

No not been told I have one and no problems breathing Greek chick x

ling profile image
ling

Hi Riley, how are you doing?

You may also like...

Thyroidectomy or Radioactive Iodine Treatment?

fallen and T3&T4 both gone over the top of the range, GP says primary hyperthyroid again. I ask the...

Radioactive Iodine Treatment or Thyroidectomy?

diagnosed with Graves Disease in May 2017, my levels of TSH came down to normal range and so I was...

Radioactive iodine treatment uk

I’m new here and live in the UK. I underwent radioactive iodine treatment twenty years ago for an...

Radioactive iodine treatment worries

Surgery or Radioactive Iodine Treatment?

diagnosed with Graves disease in 2017. I was treated for almost 2 years from the April and a short...