Been on Levo for well over 10 years at various doses but on 125 for few years. At first felt better but not for long time now - brain fog, total lethargy etc. Always been hot, not cold. 74 so well past menopause! When first diagnosed was by female GP who always said I should make sure she interpreted my bloods. Then, sadly, she retired. In summer 2016 diagnosed with osteoporosis when used to have stronger bones than most.
Been on 3 x 5mcg Thybon Henning for six weeks. Prescribed by endo. Take at 7.30am with 100 Levo, before breakfast at 9.15am. Then late morning (lunch about 2pm) and either evening away from food or on going to bed. Feel lots better and getting get up and go back.
Trying to fix blood test with bits and all things you recommend and if necessary will buy myself and post. Only figures I have are from last October. TSH 2.54muL (0.27 -4.2), serum B12 457ng/L (no ranges), serum folate 9.3ug/L, serum ferritin 226ug/L. GP says no signs of anti immune but what does being hot mean?
Would appreciate some interpretation please
As been stressed since 70s and now have husband who’s been getting progressively more disabled since 2006. Now hoisted everywhere. Seem to jump from one crisis to another. So wonder if I have adrenal,problems?
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Kandahar
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Hello! I’ve been researching this, as I’m hypothyroid and hot all the time. Apparently you can be, though usually it seems one of the symptoms is feeling cold. I am finding it unbearable and dreading the summer. I’ve not had the heating on this winter! Glad I’ve found someone the same, sorry you have it though!
I've been the same and someone mentioned reaction to fillers in the Levo? I get so hot the sweat drips from me to the point I need to change and shower few times a day😟
Sorry for late reply. I'm seeing an endo in two weeks to rule out my thyroid.. Someone mentioned CFS as I have the symptoms.. The fatigue is really bad at moment. Struggle to get out of bed and function. No energy I also have all symptoms of flu without having the flu. I also have episodes of feeling spaced out accompanied with feeling sick... 😓
Kandahar. I feel hot all the time and have been known to go out in icy whether in just a teashirt but actually my temperature is low when taken with a thermometer. The part of the brain that regulates how hot or cold you feel is easily confused eg when you have fever and feel cold when very hot. This is not uncommon at all. I think it best to dress according to thermometer temperature rather than how you feel. I remember nursing an elderly ladys once who had loads of blankets on her bed, in a hot ward shivering with the cold and saying she was cold. It had gone on for months. I happened to work a night shift there and despite protest from the nursing asstants removed all her blankets and left her with just a sheet and she was loads better after about 20 mins. It is the same with fevers, even if people feel freezing it is best to try and cool them down rather than wrap up.
Hard to be exact from the bloods you have posted but I think you B12 likely to be too low and your TSH too high but sounds like endo has introduced something re that. keep coming back until you feel better, you should have to put up with all this brain fog and stuff.
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When I take my temperature it is always low, and my skin can feel icy cold at times, but I am burning up inside. I really hate this symptom.
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Is this possibly heart burn? feels very hot and sore.
I also am always over hot with my Hashimotos, too. I never feel cold. During summer, I can get to heatstroke condition very quickly and cannot be very active on the hottest days of summer here in Australia. However if I am using a fan or air conditioner, my joints and muscles ache terribly, even if my whole body in general still feels very hot. In winter, the aching causes me to have to wrap an electric throw rug around my limbs, even though I do not feel cold.
Is your ferritin result correct at 226 ug/L ?? That sounds suspiciously high to me (but a range would be very helpful).
Have you had a full iron panel done to rule out iron overload? When my iron levels are higher (they used to be low) I stop feeling as cold.. I wonder if too much iron could make one feel excessively warm??
Haemochromatosis often presents itself later in life as you're not menstruating out the excess iron. There is primary haemochromatosis due to a genetic defect, or secondary which can be due to a liver disorder or illness. It often causes weak bones. It can occur alongside Hashi's. The second link suggests it is possible to have night sweats with haemochromatosis.
Thanks for all your replies. I’m just hot. Rarely have a flush, but do wake up some mornings with damp sheets and duvet. Mind you, my gp says that some people can have menopausal problems ALL your life, but don’t think that’s me. Just know in our village for wearing summer layers most of the year lately. Not worn anything high necked for years, but then we have had two warm winters recently.
Trying to get comprehensive blood test when endo returns on Monday. GP says that whatever he may ask for in blood tests, the lab often refuses to check t3! Amazing that a lab can refuse to fulfill a request from a client. Wouldn’t happen in other ‘real’ companies.
Must try to get irons tested as well as other vitamins when get thyroid stuff tested.
Many women never loose symptoms of menopause unless they take HRT. Women in their 80's still flushing and waking up with night sweats. It doesn't bear thinking about.
I am another hot one! Unbearably hot all the time for thirty years. At seventy four the hotness ceased and so I am now more normal! But I am never cold like most of us are.
I have read that some of us are over hot but most are cold.
I'm always too hot. Have struggled to bear the wood burner this winter, I end up going to bed because I can't stand it anymore. The cat and husband are fine. I have no heating in the bedroom and just lay naked on the sheet with the duvet thrown off. It can take an hour like that to cool down. My thermometer temperature is never high.
i have always been too hot, even after thyroid removed, it has got bit better since being on t3 only. Dr P said my core temp so cold (average 34.5-35 degrees) that everything external feels warm/hot which makes a sort of sense.
I have very low cortisol 95 (150-550) so I am easily stressed, this link is for a few adrenal tests at home tests 1, 4 & 5 showed up for me.
With a TSH of 2.54 you were pretty undermedicated in October. Luckily the Endo has recognised that, because you've had a dose increase.
T3 is a lot more potent than T4 microgram for microgram. The exact conversion rate is controversial, I always use 4x for my calculations, but 3x is becoming popular on the forum, and doctors often use 5x
So you've dropped from 125 to 100mcg of Levothyroxine (T4), and have added 15mcg of T3, trading in 25mcg of T4 for 15mcg of T3.
This amount of T4 is the equivalent of about 5 to 8.3 mcg of T3. So you've had an increase of 6.7- 10mcg of T3.
This is about the size of increase the forum tends to recommend as one increment. Given the pretty high starting TSH, it's possible this won't be enough to get you optimally medicated. You may be eligible for another similar increse again now that you've been on the same side for 6 weeks. However everyone is different, so you definitely want a new blood test to see where you are.
Ideally you want to see a full thyroid panel, TSH, freeT4 an freeT3. Now that you're taking a decent sized dose is T3 it's really important to see freeT3. TSH can only really tell us anything when it's clearly quite high as yours was in October.
Could you do the Saliva 4 Cortisol test ? (medichecks is recommended here) it will rule some things out for you and give a good indication. Despite low body temp, i got hot, couldnt cope with the sun,warm shower water, hot drinks IF my adrenals were under par. Bedtime by 10pm seems to be the most healing and i appreciate not easy when you are caring for someone, and the added stressed of that alone effects your whole body. No GP could tell me why i got hot, I too discovered the reason via Dr P. I think the USA site Dr Lam mentions the feeling hot issue.
I have all the other symptoms of hypothyroidism, except for the fact that I have a fast, rather than slow, heartbeat. Since T4 and T3 seem to be alleviating a lot of my symptoms, I'd guess that hypothyroidism is the right diagnosis.
Some symptoms can be overlapping Hypo/Hyper . Having Nutrients in place is very important for our thyroid meds to work well for us . Vitamin "D" /K2 , B-Complex , B12/folate , Iron if you test low , Magnesium , Vitamin "C" , Celtic Sea Salt for Electrolytes /Adrenals .
Doing a 24 hour via saliva testing for Adrenals/Cortisol can be very helpful . Also testing DHEA-S via BW is very important too .
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