Helpful advice: Thanks for your replies I tried... - Thyroid UK

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Helpful advice

DebPink profile image
15 Replies

Thanks for your replies I tried adding some test results with ranges but they are screenshots from the NHS app and here it only accepts one shot per reply so its not possible as there’s several test which are out of range or borderline.

I’ve had lots of good advice which hopefully will help thanks everyone 🙏

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DebPink profile image
DebPink
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15 Replies
SlowDragon profile image
SlowDragonAdministrator

add one to open post

Add the others in replies on here

Click on small mountains image below to add one image per reply

DebPink profile image
DebPink in reply toSlowDragon

Levels

SlowDragon profile image
SlowDragonAdministrator in reply toDebPink

Did you try adding image to reply

DebPink profile image
DebPink in reply toSlowDragon

Hi yes I tried but obviously it didn’t work 🤦‍♀️

I’ll try to add them all again thanks

SlowDragon profile image
SlowDragonAdministrator in reply toDebPink

Needs to be a photo ….not a screen grab

SlowDragon profile image
SlowDragonAdministrator

alternatively just type out

TSH, Ft4, Ft3, vitamin D, folate, ferritin and B12

DebPink profile image
DebPink in reply toSlowDragon

Test results

Free T4 21-3 Range. 10-22

TSH 5.12. “ 0.30 - 4.50

Vit D 74. “ 50- 175

Iron 9.5 “ 5 - 35

Vit B12 786 “ 19- 663

Folate 4.6 “ 3.89-26.8

Serum Ferritin 188 “ 15-150

Serum transferrin 2.9 “ 2.0 - 3.6

Serum Saturation index. 13%. “ 15 - 50

Serum C Reactive Protein 12.9 “ 0 - 5

White Blood Cell Count 11.00 “ 4 -11

Red Blood Cell Count 4.03 ‘ 3.80 - 5.80

Red Blood Cell Distribu Width 11.3 “ 12 - 15

Platlet Count 546 “ 150 - 450

Haematorit 0.378 “ 0.37 - 0.48

Mean Corpusc

Haemoglobin (MCH) 31.0 “ 27 - 32

Neutrophil Count 7.62 “ 2.8 - 7.5

Serum Protein

Electrophoresis lgM 0.3 “ 0.5 - 2.0

I realise it’s a lot of information but it’s the tests which appear out of range so I wanted to put them all on in the hope someone can see a connection or solution to my current symptoms 🙏

SlowDragon profile image
SlowDragonAdministrator in reply toDebPink

So ….looking at previous post you said

My last test was done in the afternoon, not ideal I know but I had no choice. I didn’t take my medication that day so TSH came back as 5.12 and Free T4 was 21.3

Obviously no Ft3 result

Work on improving low vitamin levels and then get full thyroid and vitamin retesting in 2-3 months

What vitamin supplements are you taking

Vitamin D a bit low ….aim to maintain at least over 80nmol and between 100-125nmol may be better

Folate very low

Look at adding a daily vitamin B complex

Ferritin - false high result because of infection

Some of the other abnormal tests suggest anaemia

GP should retest full iron panel once infection is passed

DebPink profile image
DebPink in reply toSlowDragon

The thyroid tests were late August during the suspected infection all the other results were from last week, several weeks after treatment for the suspected infection. I was told I needed to wait 2 months from August to retest thyroid which is being done this week. Unfortunately the only appointment again is in the afternoon.

I wasn’t sure about taking vitamin B as my vit B levels are high and out of range. I did suspect anemia but dr didn’t pick this up, or investigate further. The only thing they have flagged to discuss is the high platelet levels.

The only supplement I take is magnesium in the evening before bed in an attempt to help with sleep issues.

Thanks for all the advice which I will follow 😊

SlowDragon profile image
SlowDragonAdministrator in reply toDebPink

Unfortunately the only appointment again is in the afternoon.

Request they include testing Ft3

B vitamins

B12 can be falsely high when folate is low

known as Paradoxical B12 deficiency

b12oils.com/paradoxical.htm...

If GP doesn’t investigate iron get full iron panel test yourself

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

DebPink profile image
DebPink in reply toSlowDragon

I’ve attached the link you sent regarding B 12, as I have hashimoto’s should I also supplement with iodine, selenium and molybdenum?

There’s so much information to take in, but as you advised I will get further tests and supplements.

Treatment of Paradoxical B12 Deficiency

It is essential that for successful treatment of Paradoxical B12 deficiency that the cause of the functional vitamin B2 deficiency be addressed including supplementation with sufficient vitamin B2, Iodine, Selenium and Molybdenum. Such treatment, though, is generally not performed, but it has immense consequences as far as treatment results, and explains why literature on treatment of vitamin B12 deficiency is rife with examples in which supplementation studies using inactive forms of vitamin B12 (cyanocobalamin or hydroxocobalamin) without the co-administration of the necessary B2/I/Se and Mo have been ineffective in treatment. (see Langan and Goodbred, 2017;

SlowDragon profile image
SlowDragonAdministrator in reply toDebPink

No you don’t need iodine

You get all the iodine you need in levothyroxine

Selenium….possibly

Many of us take selenium

You would ideally test first

bluehorizonbloodtests.co.uk...

Molybdenum in lots of foods

ods.od.nih.gov/factsheets/M...

SlowDragon profile image
SlowDragonAdministrator

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid supplements

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need separate methyl folate couple times a week

Post discussing different B complex

healthunlocked.com/thyroidu...

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

SlowDragon profile image
SlowDragonAdministrator

vitamin D

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Recipe ideas

bbc.co.uk/food/articles/mag...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator

U.K. government recommends everyone supplement vitamin D daily between early oct and end of April

Many, many thyroid patients find they need vitamin D continuously all year

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