Help obtaining T3 by PM

[Lu303]

Would someone please pm me to advise where I could get T3 from.

Any help greatly appreciated. X

[SlowDragon Administrator]

As you are a new member and there's no information about your current diagnosis, treatment etc it would be helpful if you some info on your profile or added some background here

For example are you on NHS T3 and has this been withdrawn?

[Lu303 in reply to SlowDragon]

Morning, my apologies. Technology and I don’t go hand in hand. So please forgive me if I’ve skipped over a few sections.

My background is very similar to many other members in that 10 years ago I had a complete thyroidectomy and started on Levothyroxine following this. Over the next few years I became unwell with various other autoimmune conditions erythromalgia, fibromyalgia and I also have chronic kidney disease. I take numerous meds for the above conditions but can’t seem to get my weight under control or the feeling or brain fog etc. Reading into my situation the T3 made sense as my story was so very similiat to many other members. X

[SeasideSusie Remembering in reply to Lu303]

Lu303

What are your latest test results? How much Levo do you take? It's possible that you are undermedicated, or have low nutrient levels so that your Levo can't be absorbed.

Do you have Hashimoto's?

If you post results for the following, members can help and if there is a need for T3 offer guidance on how to introduce it

TSH

FT4

FT4

Thyroid antibodies

Vit D

B12

Folate

Ferritin

[SlowDragon Administrator in reply to Lu303]

So first step is to get FULL Thyroid and vitamin testing

Low vitamin levels are very common and may need improving first

It's important to know how high FT4 is in relation to FT3 before adding T3

For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also extremely important to test vitamin D, folate, ferritin and B12

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Will your GP test vitamins and FT3 alongside FT4 and TSH?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Suggest you email Dionne at Thyroid Uk for list of recommended thyroid specialists, many will prescribe T3, after thyroidectomy, especially if FT3 is low in tests

Your GP can refer you to an NHS endocrinologist, if there's one on Thyroid UK list near you

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor



please email Dionne at

[e-mail]

Professor Toft recent article saying, T3 may be necessary for many. Note especially his comments on current inadequate treatment following thyroidectomy or RAI

rcpe.ac.uk/sites/default/fi...

New NHS England Liothyronine guidelines November 2018

sps.nhs.uk/wp-content/uploa...

Cost is the main issue preventing prescribing on NHS. You may need to go the private route to get initial 3 month trial

But it is possible to get treatment on NHS in some CCG areas if NHS endocrinologist says you have clinical need

Currently it's a post code lottery

Roughly where in the UK are you?

Dossier presented to Lord O'Shaughnessy November 26th

drive.google.com/file/d/1c2...

[Lu303 in reply to SlowDragon]

Wow I’m going to be busy. 😂 Like you suggested I don’t think my GP will test for the FT3 or vitamins. I have had B12 over the years also. Yes I also have Hashimotos disease. I’ll get some blood work done and post the results and look forward to hopefully getting some input from you very helpful people. I’m so grateful.

[SlowDragon Administrator in reply to Lu303]

If you have Hashimoto's, even after complete thyroidectomy you may find strictly gluten free diet helps

But FIRST, good idea to rule out coeliac with coeliac blood test, via GP or online at under £20

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's and other autoimmune diseases gut connection is very poorly understood

Collection of recent media articles on T3 issue

thyroidtrust.org/media-cove...