My sister is 32 and has been hypothyroidism since she was 20. Mum also and brother since teens.
She has not been well at all recently with muscle weakness, costochondrits (so bad she was in hospital,with suspected PE) low mood at gain and anaemia.
Her last bloods show TSH is 7.98 and T4 is 14.5 so her thyroxine has been increased to 225 ... She has never seen an end (even during pregnancy) and I want to help her understand it better and help her ask for what she needs.
If necessary she could pay for private bloods/ consult but if she is able to get better care on the the nhs by being able to advocate for herself then that's obviously better in longterm. I was going to write a list of things to ask the doctor and tests to request but thought maybe there is one floating around on here?
Thanks for any advice you can give - (she lives in North East Yorkshire if it is relevant)
Readng the website of this Forum provides lots of information ... hopefully it helps 😊
thyroiduk.org