Hyperthyroidism : Hi I’m new here and just... - Thyroid UK

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Hyperthyroidism

Buddy46 profile image
8 Replies

Hi I’m new here and just wondered if anyone has information regarding suppressed tsh levels and normal t4and t3? I’ve had a suppressed tsh for 8 months now, tsh showing no signs of changing, I’m taking 20 mg of carbizamole. I started as hypothyroid Thank you xx

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Buddy46 profile image
Buddy46
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Marz profile image
Marz

If you started out Hypo why are you on Carbimazole for HypeErthyroidism ? Do you have any test results with ranges you can share ? How are you feeling ?

Oh - and welcome !

Buddy46 profile image
Buddy46 in reply to Marz

Thank you for replying, I started hypothyroid a yesr and a half ago was put on Levo, took 5 months to stabilise but after one month I went hyperthyroid doctors said I’ve been over medicated while I’ve been on Levo but that was 8 months ago I have been on carbmizole ever since my levels now are 0.05 (tsh) ranges (0.2-5.5) (t4 22.8) ranges (10.00-24.5) (t3 5.3) ranges (3.1-6.8) I can’t seem to get the tsh level to rise xx

bantam12 profile image
bantam12

Doesn't sound right, if you were diagnosed as hypo you can't now be hyper, you may have hashimoto which causes hyper swings but that's not the same. A suppressed tsh doesn't mean you are hyper.

Buddy46 profile image
Buddy46 in reply to bantam12

Thank you replying, I was diagnosed as hyper 8 months ago when my tsh, t4 and t3 went out of range I’ve now managed to get the t4 and t3 in range but my tsh levels won’t rise xx

bantam12 profile image
bantam12 in reply to Buddy46

Your GP is diagnosing you on a tsh level, that's wrong.

Marz profile image
Marz in reply to Buddy46

I think you need to have your anti-bodies tested - TPO & Tg - to rule out Hashimotos. We have seen too many cases here when people have been wrongly diagnosed and given the incorrect treatment. As previously mentioned you cannot go Hyper when Hypo. What was your T4 dose when Hypo and do you have your results when diagnosed ? Have a read around other posts - scroll down to Related Posts if you are on a phone or to the right of this page if on a PC - where you can view 10 similar posts.

SlowDragon profile image
SlowDragonAdministrator

We see many many people on here with Hashimoto's misdiagnosed as hyperthyroid

If you are hypothyroid due to Hashimoto's then temporary hyperthyroid swings (also called Hashimoto's flares) can cause hyperthyroid type test results

But your GP is out of their depth to be treating just on a TSH

Essential to test vitamins and thyroid antibodies

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If TPO or TG antibodies are high this is most commonly Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease). Though it is possible to have High TPO or high TG with Graves' disease

Private testing for suspected Graves - TSI or TRab antibodies

medichecks.com/thyroid-func...

It is possible, but quite rare to have Hashimoto's and Graves at the same time.

This should be managed by an experienced thyroid specialist endocrinologist

About 90% of all hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

Email Thyroid UK after Jan 3rd for recommended list of thyroid specialists

please email Dionne


tukadmin@thyroiduk.org

Buddy46 profile image
Buddy46

Hi I’ve had a tpo antibody test but this has come up <10 I’m just confused why my tsh level has stayed the same when my t4 and t3 levels are fluctuating xx

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