Hi everyone. I haven't posted here in a while. Usually I consider myself a bit of a thyroid veteran after all my experience with it - total thyroidectomy in 2013.
However, I am a bit stumped about this one. I had 1 parathyroid removed in 2013 along with my thyroid. I now have hyperparathyroidism again and new lumps in my neck. I have had an ultrasound and they could not confirm if it was one of my parathyroid glands that was enlarged as they look like lymph nodes apparently in ultrasounds.
So the doctor has scheduled a dual isotope sestamibi scan next month. The only problem is I have been told I have to stop my levothyroxine T4 for 3 weeks beforehand. Apparently you can stop T3 just a week beforehand, but i have found it hard sourcing T3 recently (was buying it online from Greece).
Anyone else with total thyroidectomy stopped their levothyroxine for any length of time? I was always told this was very dangerous and you could die after two weeks of no thyroid hormone replacement?
My TSH was at 60 once and I felt AWFUL, actual zombie!! I dread to think how it will be with 3 weeks off levo HELP!!!!!