Ill-informed Telegraph Article on NHS funding o... - Thyroid UK

Thyroid UK

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Ill-informed Telegraph Article on NHS funding of T3 Liothyronine (link below): Can we/ Thyroid UK officially complain? It’s shockingly poor!

Abi-Abster profile image
16 Replies

telegraph.co.uk/news/2018/1...

That’s right, because Weight Gain is the only symptom of an underactive thyroid?

That’s like a ridiculous weight-obsessed ‘too fat/ too thin’ celebrity Daily Heil piece: honestly.

Argh, this article has made me so cross - it’s totally belittled the daily struggle of being undermedicated!

It doesn’t even mention the NHS unnecessarily paying Concordia a 6000% price inflation for T3 Liothyronine tablets which is urrently under investigation!

What a crap piece of journalism; it couldn’t be less informed. I’m honestly shocked at the ignorance and laziness of its contents.

Useful to know what we’re up against, however. Now, how do we address it?!

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Abi-Abster
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16 Replies
MaisieGray profile image
MaisieGray

Well, you could contact the Editor, and raise your concerns; but it would be like complaining to a dog that is barking - it's what they do. I've just read the article and didn't think there was overly much to get aggravated about tbh - it used weight gain as a lure, and then mentioned other issues too. But what's interesting is that you said that by referring to weight they "totally belittled the daily struggle of being under-medicated", when in fact to those of us who have a weight problem your comment totally belittles the daily struggle of being massively overweight..... My weight gain has been such that in one year I went from a size 12 to a size 22, which, with a heart condition, scoliosis in two planes, a spine with deterioration its whole length, a neurological condition that affects my balance at the best of times etc etc, being massively overweight IS one of my daily struggles.

Aurealis profile image
Aurealis in reply toMaisieGray

Hi MaisieGray, a lot of us struggle with weight, but the symptoms of hypothyroidism are so much wider and more damaging to quality of life, well being, social functioning, cognitive function, it feels insulting that they present it as a weight issue when that is just one aspect of the problem.

Abi-Abster profile image
Abi-Abster in reply toAurealis

Thank you Aurealis you’re absolutely right; I wasn’t belittling weight gain due to hypothyroidism at all, more that there’s so much more to be mentioned besides!

In fact MaisieGray I’d add chronic pain, fatigue and unemployment (and therefore poverty) due to under-diagnosed/ mistreated hypothyroidism to Aurealis’ list too, as I wasn’t denigrating the impact of weight gain rather the simplistic clickbait headline and lazy, sensationalist journalism.

Wishing you all better health for 2019, My Lovelies xx

in reply toMaisieGray

MaisieGray, The weight my gosh no one gets the doom of fast unnatural weight gain and the carnage that it creates. I feel hopeless like you I was small and the weight just wouldnt stop no matter what I did. Do you think the weight is from being undermedicated or something else?

JudithW profile image
JudithW in reply to

The weight gain is because with underactive Thyroid you get a low basal temperature which means many of the body systems are not working properly. So your metabolism runs slow and you gain weight. *simplisticly*

For me the worst part has been my breathing was affected, I could not walk possibly less than 100 yards before having to sit for 2-3 mins before I could talk to anyone.

in reply toJudithW

It seems simple that under medicated causes weight gain but tell the simple minded Endos that medicate you based on lab results. My labs are according to Endos are perfect although I have gained weight 50 pounds....that's a big number.

JudithW profile image
JudithW in reply to

I got the weight gain as well. Think things started in 2006 Slimming world not working for the first time ever. Gradual weight gain until 2013, in 10 days with walking 8 days out of 10 I put over half a stone on and it continued to pile on. I lost half a stone once on T3 then it stopped, increase of T3 suggested by advisor in recovering with T3 lost another half stone, had to change T3 put half stone back on, and still struggling. I have another syndrome possibly caused by my low T3 levels.

(I have trouble converting, T4 goes to rT3 (reverse T3)) which is making life more difficult.

Rapunzel profile image
Rapunzel

lynmynott This sort of disparaging 'journalism' should not be allowed a wide audience without refutation from TUK and its partners

Jazzw profile image
Jazzw

I wonder if the link to weight gain is a lazy journalist who simply googled “liothyronine” and discovered it was used by a lot of bodybuilders trying to cut their weight...?

Bizarre headline, huh? :(

Rapunzel profile image
Rapunzel

It's awful isn't it? < eats pie > Next they'll be saying we don't move about enough < reclines on sofa >

As if. < prepares for bed with inulin laced montmorency cherry juice and magnesium gel...paying for my own meds is the half of it >

Walk a mile in my moccasins you madhat, Henry Bodkin 👿

JudithW profile image
JudithW

This is the Editors complaint form telegraph.co.uk/contact-us/... and you can complain about the accuracy of the article ipso.co.uk/editors-code-of-...

The article is here

telegraph.co.uk/news/2018/1...

Aurealis profile image
Aurealis in reply toJudithW

Excellent JudithW !!!

Treepie profile image
Treepie

Th problem is the headline and the poorly written first two paras the rest is OK.

LittleHil profile image
LittleHil

May I suggest sending an email to Dr James Le Fanu, a retired GP, journalist and author who writes a weekly column (on Mondays) in the Daily Telegraph. He is a well respected and enlightened medic. Voice your concerns regarding the recent article.

drjames@telegraph.co.uk

Abi-Abster profile image
Abi-Abster in reply toLittleHil

Thank you, I will do so.

Btw LittleHil did you ever have a friend named Big Hil? My mum had one of each back in the 60s. Would be a crazy coincidence!

LittleHil profile image
LittleHil in reply toAbi-Abster

Hi Abi-Abster, I don't have a friend called Big Hil. The origin of my nickname came about in the late 60's/early 70's when I was working in the NHS. I was on a training scheme and there were two of us called 'Hilary.' I was given the nickname of LittleHil because I was the smallest.

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