Levo

[Mitchkl71]

Hi 7yr ago i was diagnosed with thyroid cancer i had full thyroidectomy been on 125-175 mcg since up and down with levels ans i aslo have ME im not peri menopause tje symptoms are getting unbearable, anyone else suffer lots of different symptoms?

[SlowDragon Administrator]

First thing is, do you have any actual blood test results? if not will need to get hold of copies. You are legally entitled to printed copies of your blood test results and ranges.

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries still do not have blood test results online

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up. They can no longer charge for printing out, rules changed after May 25th 2018

Can you add most recent results and ranges for TSH, FT3 and FT4, plus have you also had vitamin D, folate, ferritin and B12 tested.

It's extremely common to have low vitamin levels and far too often only TSH and FT4 are tested, which is completely inadequate. Absolutely essential to test FT3 and these four vitamins

Very often people are left on too small a dose of Levothyroxine or are poor converters

First step is to get full testing

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Add results and ranges if you have any now and members can advise