Hi I have a prolactinoma which I am usually medicated for! 3 weeks ago my endo took me off my medication as a trial my blood levels of prolactin quadrupled from 400 to 1600 in 10 days! I felt so ill I went to get my bloods checked and asked for my thyroid to be checked!
I am exhausted, body feels heavy, gaining weight really easily, feel cold, hair failing out, cracked hands and mouth, brain fog, dizzy faint, constipation!
They said other than my prolactin my results for my thyroid were normal! Although my t4 was 14 in the uk! Is this high enough? Could this me why I feel so awful? I can’t carry on like this! I ended up with septic tonsillitis this week my immune system is drained!
Please help
Written by
Mrst1982
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Well, that FT4 would be too low for most of us. As with so many others, they simply do not do FT4 for me, but I'd have expected you to need it to be at least 18 (half way), more likely over 20. With TSH somewhere around 1.
I'd be interested in your TSH (and FT4) before they took you off the medicine for the prolactinoma. It is common for prolactin to rise when you are hypothyroid. I don't have the knowledge or experience to know what happens to TSH when you have a prolactinoma.
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