Exhausted! : Hi I have a prolactinoma which I am... - Thyroid UK

Thyroid UK

141,245 members166,488 posts

Exhausted!

Mrst1982 profile image
6 Replies

Hi I have a prolactinoma which I am usually medicated for! 3 weeks ago my endo took me off my medication as a trial my blood levels of prolactin quadrupled from 400 to 1600 in 10 days! I felt so ill I went to get my bloods checked and asked for my thyroid to be checked!

I am exhausted, body feels heavy, gaining weight really easily, feel cold, hair failing out, cracked hands and mouth, brain fog, dizzy faint, constipation!

They said other than my prolactin my results for my thyroid were normal! Although my t4 was 14 in the uk! Is this high enough? Could this me why I feel so awful? I can’t carry on like this! I ended up with septic tonsillitis this week my immune system is drained!

Please help

Written by
Mrst1982 profile image
Mrst1982
To view profiles and participate in discussions please or .
Read more about...
6 Replies
helvella profile image
helvellaAdministrator

Afraid what we always have ask is this: What was the reference range for Free T4?

The reference ranges vary by laboratory - and the variations are very considerable.

I'd hope that in your case they also tested TSH and, even more hopefully, Free T3?

Mrst1982 profile image
Mrst1982 in reply tohelvella

I can’t remember my Tsh but it was in the middle but T4 was 14 with range 11-25 no T3 was not tested

helvella profile image
helvellaAdministrator in reply toMrst1982

Well, that FT4 would be too low for most of us. As with so many others, they simply do not do FT4 for me, but I'd have expected you to need it to be at least 18 (half way), more likely over 20. With TSH somewhere around 1.

I'd be interested in your TSH (and FT4) before they took you off the medicine for the prolactinoma. It is common for prolactin to rise when you are hypothyroid. I don't have the knowledge or experience to know what happens to TSH when you have a prolactinoma.

Mrst1982 profile image
Mrst1982 in reply tohelvella

Thank you I will go back to the doctor! Can a Gp medicate me or do I need to see a consultant?

helvella profile image
helvellaAdministrator in reply toMrst1982

A GP could prescribe but might be very unwilling to do so without at least communicating with your consultant.

Mrst1982 profile image
Mrst1982

My tsh was 1.3 he said it was right in the middle of the range and he said my t4 was fine

Not what you're looking for?

You may also like...

Blood results

Hi all I am new to the forum. I have suffered for years with what seem to be thyroid symptoms....
Jena_sam profile image

Exhausted overweight

Hi If anyone can give me some advice I would be most grateful.i have been trawling the internet for...
Abby77 profile image

still feeling exhausted

Hi I am new to this site and find it really informative. i was wondering if any body could shed...
caladiva22 profile image

Comprehensive thyroid blood tests - ADVICE

Hello, I'm due to have some blood tests this Friday and I would like some advice on what to get,...
ert1542 profile image

Feeling faint, dizzy and exhausted

I have CFS and lots of symptoms. Recently I have less energy and no motivation. I have put on 5...
fixit profile image

Moderation team

See all
RedApple profile image
RedAppleAdministrator
TUKOffice profile image
TUKOfficeAdministrator
Buddy195 profile image
Buddy195Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.