TSH Level shot up?

[Nicola38]

Hi all 😊

Just got off the phone to the receptionist at my GP surgery, in my previous post about my test results I said I was advised to lower my dosage by 50, my TSH level at the time was 6.9ish well now this has increased slightly upto 14. Something! And my T4 has gone even lower to 8.7? They wanted to put me dosage up to 175mg Levo (bear in mind I am currently on 100mg as directed by my GP! At my wits end 😳xx

[cjrsquared]

Why did your gp ask you to reduce your dose when you were undermedicated with a high TSH of 6.9? Unless there were other factors sounds negligent to me.

[Nicola38 in reply to cjrsquared]

I was having symptoms related to the Levo I couldn’t cope with them, I told the receptionist they can’t put me up by 75mg!! So now have been advised to stop taking until gp decides a dose 😳

[Hidden in reply to Nicola38]

Why are you taking to the monkey instead of the organ grinder. Please post you blood test results on here for people to help. Your GP sound like many, i.e. clueless regarding the thyroid.

[greygoose]

Increases and decreases should only be by 25 mcg every six weeks. Doesn't sound like your doctors know anything about treating thyroid.

[Nicola38 in reply to greygoose]

That’s what I told her and she said she would get back to me lol still waiting tho 😵

[greygoose in reply to Nicola38]

She's out of her depth. Probably contacting an endo for advice.

[MissGrace]

Get another doctor. This one appears to be into torture. This kind of advice is going to make you ill and keep you ill. It’s ridiculous to have you spiralling around difference dosages in this way. The whole idea is to try to achieve balance and stability. First things first, get copies of all your blood results so you can see what is going on. Good luck.

[Nicola38 in reply to MissGrace]

Thanks, am gonna pop over tomorrow and grab copies x

[SlowDragon Administrator]

Definitely do NOT stop taking Levothyroxine

Your dose needs slow increase. Dose should only ever be increased or decreased by maximum of 25mcg at any one time

Increase dose to 125mcg and stick on it. Bloods retested after 6-8 weeks.

Come back with new post once you have had test results from after 6-8 weeks on 125mcg Levothyroxine

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased or at repeat prescription.

Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients

Dose Of Levothyroxine is slowly increased until TSH is around one and FT4 towards top of range and FT3 at least half way in range

You need vitamin D, folate, ferritin and B12 tested urgently too

Low vitamins can cause very bad symptoms

As you have Hashimoto's...l.Are you now on strictly gluten free diet? If not you need to try it

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

[Nicola38]

I haven’t been diagnosed with hashimotos, yes am starting a gluten free diet ok I will and thanks 😊