drs today :(: ive felt off for a few days, weird... - Thyroid UK

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drs today :(

mandy72 profile image
12 Replies

ive felt off for a few days, weird chest the usual shortness of breath, no energy at all, headaches and hurting all over jittery inside, heart rate is very slow normally running in the 50's but my fitbit has also shown high 40's called drs and they need to see me

not taken propranolol for a while because of it

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mandy72
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shaws profile image
shawsAdministrator

I think your dose may be too low, thus giving you symptoms of breathlessness - low pulse - etc.

Don't let them draw blood today but make it the earliest possible next day - otherwise you may not get a 'true' picture of what's going on in your body. Remember to fast (you can drink water).

mandy72 profile image
mandy72 in reply toshaws

my dose is too low Serum TSH level 4.10 U/mL [0.38 - 5.33] this was 10th october

im on 150 eltroxin and dr wanted me to up it on the bloods before as TSH was 8 something but when i tried i felt awful

i did give up smoking just over 2 weeks ago and i know that can mask thyroid problems (vaping now)

shaws profile image
shawsAdministrator in reply tomandy72

I think it would be kind if GP added some T3 to your T4. That could work for you as researchers have also shown that many improve on a combination dose. For some people, levo just doesn't suit their bodies.

mandy72 profile image
mandy72 in reply toshaws

ive asked for T3 to be added before and they point blank refused, even spoke to endo about it and they said no, maybe its time i looked into buying some and trying a low dose with the eltoxin

shaws profile image
shawsAdministrator in reply tomandy72

T3 is now very difficult to source privately. One person who has helped many members has apparently been arrested for supplying medications and email removed.

If you were supplied previously T3 shouldn't have been removed.

mandy72 profile image
mandy72 in reply toshaws

wow mi didnt relise how bad things had gotten

my endo demanded T3 be stopped a long time ago and that i took levothyroxine despite me telling him how bad things were with me

i seen a nurse she said it sounds viral, where ive quit smoking, anxiety (something big going down in november thats causing massive anxiety, im being called by a dr to discuss something stronger than diazepam for the week

i will have a google and see if i can come up with T3

shaws profile image
shawsAdministrator in reply tomandy72

The following is from one our our Advisers and Team and it really shows how much the medical professionals know when they decide how we hypo patients will be treated. You have to cursor down the page on the following link but I've given you the excerpt:-

thyroiduk.org.uk/tuk/newspa...

Important New research article by Thyroid UK Advisers

Thyroid UK advisers have had another brilliant paper published which shows that the current way of treatment patients is wrong and should be discarded for a better way.

The article is entitled Recent Advances in Thyroid Hormone Regulation: Toward a New Paradigm for Optimal Diagnosis and Treatment and can be found here:

frontiersin.org/articles/10...

The terminology is a bit tricky but Dr John Midgley, one of the authors, has said that in layman's terms, the article says:

1) Everyone is an individual and unique in how their thyroid works, how that interacts with the body converting T4 to T3, how efficient T4-T3 body conversion is and how sensitive the body's cells are to T3.

2) Because the thyroid is no longer working, its direct T3 production that helped you keep well is no longer available, so if you take T4 only the body conversion has to work harder to produce the T3 you require. This requires more T4, and this suppresses your TSH. Thus TSH levels in health are not appropriate to T4 therapy. With T3 only or combo this is not so true but TSH can still be misleading.

3) FT3 must be measured in whatever therapy to control your level of health and response.

4) When you become ill and go on to a particular therapy (T4 only, combo or T3 only) for a long time, your body adapts to the treatment.

Many patients are now being asked to come off T3/NDT and move back to levothyroxine and Dr Midgley feels this is wrong. He says

"However, changing the treatment then is dangerous, because your body won't respond quickly if at all. This is called allostatic epigenetic transformation, where your gene readouts have been permanently altered from normal health and can't easily be restored back again exactly to what they were. This often happens if you become critically ill close to death and partially recover. If your doctor simply thinks that you can change things early and quickly respond, then this is a dangerous, wrongheaded thing to suggest and has been scientifically condemned and could cause you permanent harm."

Please share this paper far and wide. Take it to your GP/endo/CCG etc. if you are being pressured to come off T3.

SlowDragon profile image
SlowDragonAdministrator in reply tomandy72

So have you tried to increased your Levothyroxine dose again. You can increase slowly. Perhaps 150mcg and 175mcg alternate days

TSH is far too high.

What are your vitamin levels like?

As you have Hashimoto's are you on strictly gluten free diet?

mandy72 profile image
mandy72 in reply toSlowDragon

i just dont tollerate a higher dose, i will keep trying

not sure on vit levels

yes hashis and not gluten free

SlowDragon profile image
SlowDragonAdministrator in reply tomandy72

Most/many with Hashimoto's have to be gluten free

Ideally ask GP for coeliac blood test first

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

Essential to test vitamin D, folate, B12 and ferritin

Ask GP to do so

What supplements do you take?

mandy72 profile image
mandy72 in reply toSlowDragon

i need my b12 checking so will ask

i take b complex, b 12 and magnesium

FancyPants54 profile image
FancyPants54 in reply tomandy72

Do you try to increase your dose gently? I had trouble early on with dose increases of 25 mcg and now I introduce a 2 week half-tablet increase first. I haven't had issues with this. After the 2 weeks on 12.5 extra I can add in the next 12.5 and bring it up to the full dose increase.

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