Advice re self medicating please: Hi everyone Am... - Thyroid UK

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Advice re self medicating please

Duffy26 profile image
8 Replies

Hi everyone

Am thinking of self medicating as I cannot keep going through the pointless discussions at the GP. I would monitor with the help from experts on here, but firstly, would you start with levothyroxine or NDT first and the reasons for that?

I seem to have some symptoms ramped up recently particularly the fatigue/balance and tummy issues which is starting to affect my work, so this is why I've decided to give it a go.

Many thanks

D

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Duffy26 profile image
Duffy26
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8 Replies

I started with NDT from Thailand as it is easiest to get.

Duffy26 profile image
Duffy26 in reply toAngel_of_the_North

Thank you Angel of the North :)

greygoose profile image
greygoose

Personally, I would advise starting on levo, 50 mcg for six weeks, then retesting. If that has brought your TSH down to 1 or under, then look at the FT4 and FT3 to see how well you are converting - I always think it's best to know that before starting on T3 or NDT.

From there, you can go onto NDT if that's what you want to try. Switch to 1 grain, and see how you get on with it. You can adjust from there. If you don't get on with it after a few months and a few increases, you can try levo+T3, which is more adaptable. There are lots of things/doses to try.

But, I do think it's a good idea to be aware how well you convert before doing anything else and you can see that best when your TSH has come down to 1 or under. :)

Duffy26 profile image
Duffy26 in reply togreygoose

thanks Greygoose. That's sounds like a sensible approach.

greygoose profile image
greygoose in reply toDuffy26

You're welcome. :)

SlowDragon profile image
SlowDragonAdministrator

Are you improving your vitamin levels as advised on this earlier post?

healthunlocked.com/thyroidu...

Has GP or endo done coeliac blood test yet?

Duffy26 profile image
Duffy26

Hi. My last B12 was 543ng (130 -1100)

Vit d 55 nmol 50-200 i have since supplemeted with 5000 vit d.

Ferritin 72ug (23-300)

Ttg 1.7 -0-10

Tsh 3.02 -0.35 -3.50

Ft4 11.. 9-21

Ft3 3.75... 3.10-6.80

IggA *4.53 0.80 -4.00

Active b12 ..97.2pmol...25.10-165.00

Folate 3.19ug.. 2.91-50.00

Ferritin 84ug...13-150.00

Tsh 3.07miu..0.27 -4.20

Ft4 12.5pmol 12.00-4.20

Amongst many other standard tests. They are from march to april this year via nhs and medichecks. I have supplemented with folate/b12/vitc/vitd/coq10/b complex.

Endo and gp say there is nothing wrong with vits and thyroid.

Thanks

D

pauluk60 profile image
pauluk60 in reply toDuffy26

RITE YOU LOT TELL WHERE TO FIND OUT ABOUT THIS THYRIOD BUSSINESS wife is under going examS for all this she dont tell NON OF YOU BUSINESS SHE SAYS ITS UPSETTING ME NEVER MIND SHE IS ALL OVER WITH MOODS caps lock stickink sos any help pleaseeeeeeeeeeeee

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