Hashimotos and Major Issues: Hi everyone, Short... - Thyroid UK

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Hashimotos and Major Issues

Ali2422 profile image
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Hi everyone,

Short story - started having symptoms of all sorts of things after daughter born 15 years ago. Misdiagnosed forever, finally diagnosed with Hashimotos and hypo after finally getting antibodies checked - always 200. Been on synthroid. TSH been stable up until last six months.

Went from 4.8 to 2.0 to 0.06 now back up to 8!

I have only titrated doses between 25mcg to 75mcg.

Feel horrible, see an endo in October. Thryoid ultrasound shows very small heterogenous thryoid with no nodules. My mom is hashi and sister hypo.

Any insight into this fluctuating stuff??

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Ali2422
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SlowDragon profile image
SlowDragonAdministrator

Many of us need very fine dose tuning.

TSH is often suppressed when on high enough dose of Levothyroxine to give adequate FT4 and most importantly FT3

FT4 should be towards top of range, FT3 at least half way in range

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Low vitamin levels are extremely common, have you had vitamin D, folate, B12 and ferritin tested. Add results and ranges if you have them

Likely to need to supplement regularly to maintain levels

Many Hashimoto's patients need to be strictly gluten free as well

Ideally ask GP for coeliac blood test first

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

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