Thybon hennings : Can anyone please tell me Where... - Thyroid UK

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Thybon hennings

leelal profile image
10 Replies

Can anyone please tell me Where can I buy thybon hennings in Europe please

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leelal profile image
leelal
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10 Replies
SlowDragon profile image
SlowDragonAdministrator

You will need to see thyroid specialist for full evaluation and private prescription first

Essential to test vitamin D, folate, B12 and ferritin. If any of these are too low then nether Levothyroxine or T3 can work

If you add your most recent results and ranges for

TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies and also vitamin D, folate, ferritin and B12 members can advise

75mcg dose of Levothyroxine may simply not be high enough dose. Most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine

TSH should be around one and FT4 towards top of range and FT3 at least half way in range

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, don't take in the 24 hours prior to test, (and if on T3 don't take in 12 hours prior to test,) delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

leelal profile image
leelal in reply to SlowDragon

Thanks slowdragon I love the name. As I’m a fan of dragons 🤗. As u r aware dr don’t do the T3 and even refuse to give a referral to see endo . It is sad we have to beg for our treatment and still not get it . My mate in Australia is on thybon she is doing great with it .

SlowDragon profile image
SlowDragonAdministrator in reply to leelal

So you will need full private Thyroid testing including FT3, antibodies and vitamins first

We have to get vitamins optimal before starting T3 and if you have Hashimoto's then most likely need to try strictly gluten free diet first too

GP can't refuse a private consultation, but if results show abnormal levels they can't refuse referral to NHS endo either.....though there can be very long wait

Email Thyroid UK for list of recommended thyroid specialists, some are T3 friendly

please email Dionne


tukadmin@thyroiduk.org

SeasideSusie profile image
SeasideSusieRemembering

leelal

If you have a prescription you can get it from Germany, see ThyroidUK's article, near the bottom

thyroiduk.org/tuk/treatment...

leelal profile image
leelal in reply to SeasideSusie

Thanks for ur mail I am having problem getting thybon prescribed. Can’t find a private dr even

SeasideSusie profile image
SeasideSusieRemembering in reply to leelal

leelal

I don't know if you can get Thybon Henning without prescription, I would have thought not, but the German pharmacies in Thyroid UK's article are all we know at present who will dispense with prescription.

But as SlowDragon as said, if you get full testing done and post results here then we should be able to help you.

leelal profile image
leelal in reply to SeasideSusie

Thanks again as thybon patients we are so supportive I feel sad when doctors don’t understand our symptoms

Quokka profile image
Quokka

Your prescription doesn't need to specify Thybon Henning- just liothyronine 20mcg, number of tablets and 'to be taken as directed.' Then you post it to Germany.

leelal profile image
leelal

Thanks for all the replies and support well appreciate. I will see my Gp get my bloods done again

SlowDragon profile image
SlowDragonAdministrator in reply to leelal

Very unlikely to get fT3 or both antibodies tested....but you can ask

Essential to test vitamins too

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