Levothyroxine 50mcg : Been taking this awful... - Thyroid UK

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Levothyroxine 50mcg

14 Replies

Been taking this awful stuff 2 weeks

Am I supposed to be sweating and have a constant greasy oily face? Really hate this disease

I still feel anxious about my high FT3 low ft4 scenario :-( I actually feel way more anxious in general my mind has been racing since I started this pill

Thank you x

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14 Replies
Marz profile image
Marz

Have you posted your results before ? - if so can you link them to this post 😊 Sorry in a rush so cannot read through previous posts !

My TSH is 11

My FT4 is 12 (10-22)

My FT3 is 6.8 (3-6)

Thank you

Marz profile image
Marz in reply to

Didn't receive your Reply as you sent it to yourself :-) Easily done ! Read the post and replies yesterday from diogenes - who explains why T3 remains higher when the thyroid is slowing down ...

in reply toMarz

Thank you I'll find it now

Marz profile image
Marz in reply to

healthunlocked.com/thyroidu...

Here it is :-)

in reply toMarz

Thank you very much for posting this for me, I'll read it now

Marz profile image
Marz in reply to

Reading and learning is the only way to find wellness - and it can be a slow process ! I am hurtling towards 72 and am still learning :-)

eeng profile image
eeng

If those results are correct, and not some kind of typo from the lab, you are hypo according to your TSh and FT4 levels, and slightly hyper according to your FT3. You probably ought to see an endocrinologist who knows their stuff (many are diabetes specialists and don't have a clue about thyroid problems). Your doctor will just continue to raise your Levothyroxine dose because all GPs are trained to look at is your TSH, which is high, and will raise your dose until your TSH comes down into the normal range. By then your FT3 level will be even higher and you will feel sweaty, tired, loose bowels, maybe losing weight, fast pulse and generally anxious.

You should double-check these results (assuming they were given to you by your GP). Anxiety and inability to regulate your temperature can be linked to undermedication, but it seems that in your case it could be down to your high FT3 level. Is this the only set of recent results you have?

in reply toeeng

Yes this is all the results I have. They are definitely correct. I feel weirder by the day taking this Levo

HLAB35 profile image
HLAB35

You're probably getting over a Hashi's flare-up. On previous posts you sound very worried. Please be reassured that many people get through this and live a long active life.

Educating yourself about this illness is by far the most empowering thing to do. I appreciate your reluctance to medicate right at this moment with your high t3 ... I'm not sure on the life expectancy of t3 - it probably depends on how active you are, but it's bound to be on it's way down. You say you currently don't feel at all hypo ..

The doctors are following NHS protocol and want you to get on with thyroid hormone replacement straight away. They often don't trust t3 (or understand) which is a big problem for anyone that struggles to convert. Yes, they definitely have their limitations these days, but, hopefully should test you again pretty soon (in a month), when you're due your first dose increase. I'm sure this forum will be able to spot any issues if you post here... must get full panel to include vit d, b12, iron, ferritin and folate.

In the meantime do what you can to avoid flare-ups - advice was posted by other members in your previous posts about reducing antibodies. N.B. Antibodies are also a barrier to thyroid conversion. This is absolutely key to getting better for many of us.

Bear in mind that your anxiety may also be down to your low b12 or other low nutrient levels. Magnesium (in my case) has really helped me feel a lot calmer and it won't mess up blood results - just take away from meds.

in reply toHLAB35

Thank you very much. I have been taking Levo 50 for two weeks and doctor said I can have a blood test to check what's happening.

Some people mentioned my FT3 being on its way down eventually.

But another mentioned it's the first to go up in hyperthyroidism , and because my FT4 started to rise a little another said it could be the thyroid balancing.

I sound worried because my number one concern is taking a medication I don't need. Or taking the pill and it stops my thyroid recovering naturally. I've had a big dip like this before with birth control and it went away.

My antibodies have dropped from 1500 to 100 in this year I've been experiencing all of this.

Is there any harm in taking Levo for a short period? how do you come off it and how will you know to?

I've also developed pain in the joints in my feet 😩😩

HLAB35 profile image
HLAB35 in reply to

Blood tests are only a snapshot in time - especially wrt. antibodies, but a TSH of 11 is not to be ignored - even by doctors. (Hypo symptoms occur with a much lower TSH than that.) The joint pain may well be the first sign of hypothyroidism due to rapidly lowering t3 (in your extremities). I hope that you have good vit d and iron levels. It's your right to get them checked.

my next blood test is on Thursday, so my results should be back Monday I'll post them

I can't thank you all enough for answering my questions and worries that my doctor dismisses and causes me incredible anxiety

Thank you

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