Hi do I have Hashimotos? My GP says I have no such thing. I am confused, both antibodies are over range! I take 125mcg Levothyroxine and I was found to be hypothyroid in 2012. My symptoms seem to be a mixture of hyper and hypo.
They often call it autoimmune thyroid disease rather than Hashimoto's.
Essential to test vitamin D, folate, ferritin and B12. These are often too low as direct result of Hashimoto's
Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Ideally ask GP for coeliac blood test first and vitamin tests if not been done
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne at tukadmin@thyroiduk.org
Do you always take Levo on empty stomach and then nothing apart from water for at least an hour after?
Many take early morning on waking, but it may be more convenient and possibly more effective taken at bedtime
Many people find Levothyroxine brands are not interchangeable. Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased
All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
I can only echo what’s been said already. You clearly do have the autoimmune Hashimoto thyroid disease. Added to that your tsh is far too high for someone with a treated thyroid condition. You are still symptomatic because you are being under medicated. A different GP may be better informed than the one you are currently seeing. At the very least, your levothyroxine should have been increased. 😉
You GP is ignorant. Your high antibodies PROVE that you have Hashimtos, but you GP would probably prefer to val it autoimmune thyroid disease. Your results also show that you are very undermedicated
Some doctors seem to require you to have, or have had, a goitre before they'd call it Hashimoto's. Many years ago that was usual but using the name Hashimoto's, whether or not there is a goitre involved, is now widespread.
I think that term has faded into disuse. Though, of course, it is still there to be looked up and found.
Seems northern European genetic makeup quite often has no, or no obvious, goitrous stage. Whereas in some other populations it would be rare not to have a goitre at some point.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.