Results good but feeling worse: just got my lad... - Thyroid UK

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Results good but feeling worse

andreafletcher profile image
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just got my lad results back. Doctor said everything is perfect. I feel totally exhausted, almost too weak to type. Im on 50mg a day of levo. Tsh is 2.3 they tested vitamins and minerals and said all is good. I cant seem to paste my results here, nd i cant make a clear photo.

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andreafletcher profile image
andreafletcher
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Peanut31 profile image
Peanut31

Hi

If you can't paste your result then type your results manually. This is what I do.

On a previous post it was advised that you requested an increase of Levo as 50 mcg is still a low dosage, I see that you are still on 50mcg, did you ask your doctor to increase it, did he refuse.

Best Wishes

Peanut31

SeasideSusie profile image
SeasideSusieRemembering

andreafletcher

If you can't get a clear photo, then perhaps you can type your results, with their reference ranges, into your post.

And a TSH of 2.3 is too high for a treated hypo patient, you need an increase in your dose of Levo. The aim of a treated hypo patient generally is for TSH to be 1 or below or wherever it needs to be for FT4 and FT3 to be in the upper part of their respective reference ranges when on Levo if that is where you feel well.

But it's important to see your vitamin and mineral results, just because you were told they were all good just means that they were probably somewhere within their reference ranges, that doesn't mean that your levels are optimal, which is what is needed for us Hypo patients.

shaws profile image
shawsAdministrator

Your doctor like many doctors and endocrinologists only look at the results and pronounce us 'fit and well' when we feel anything but.

50mcg is a starting dose in the first place: TSH is preferred at 1 or lower.

Type your results with the ranges in your post by editing. i.e. press down arrow next to more and select edit and make changes.

Not one person could survive on 50mcg when the usual doses used to be around 200 to 400mcg (NDT).

Once you realise that neither doctors or endocrinologists are people who can return us to good health because they know little other than look at the TSH and T4.

TSH is meaningless when taking thyroid hormone replacements. Some doctors believe we will get heart attacks etc if TSH is suppressed but they don't mind a thyroid cancer patient having a suppressed TSH and they don't drop dead - or I've not been told that - and I am sure they are far better than those whose dose is restricted once the TSH is 'in range' somewhere. Also take note on the following link of info on the TSH on the latter half of it

thyroiduk.org.uk/tuk/testin...

Excerpt:

Is the normal value the same for everyone?

No, it is not.

What is normal for you, might not be normal for the person next to you. Also, what is normal for you today will likely not be normal for you in the future. Your weight, stress levels or dietary habits might change, you might get pregnant, relocate and more. That, plus your genes will determine your normal values for any given moment in your life.

What does it mean to have a blood value out of range?

Medically accepted averages vary from country to country. I know this so well, I lived in four different countries and had to think hard if I belonged to the southeastern Europe because my origins are from there, or did the northern exposure in Sweden change my “normal” values too. Keep this in your mind if you are relocating.

medium.com/boosted/what-doe...

Always get a print-out of your results with the ranges. Ranges are important as labs differ and also have different ranges.

Did you get the earliest possible appointment, fasting (and allow a gap of 24 hours between last dose and test? If not you should ask for another test although your GP wont be aware that an early morning test will be different from a late afternoon one.

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