Best brand of T3?: I have seen a lot of... - Thyroid UK

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Best brand of T3?

Lulu2red profile image
9 Replies

I have seen a lot of discussion on here about brands of T3. My pharmacy filled my NHS prescription from SigmaPharm that is what is says on the bottle they are 5 mg tablets so I can split dose. Don't want to push my luck but have waited 17 years for this trial so want to make sure they give me 5 star medication. The difference in my health is astounding but my swollen legs and ankles have not resolved although better. I want them gone. Dragging 20 pounds of fluid around every day is uncomfortable!

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Lulu2red profile image
Lulu2red
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9 Replies
SeasideSusie profile image
SeasideSusieRemembering

Lulu2red

The best brand is what suits you, and that can different from patient to patient.

eghjm100 profile image
eghjm100

Hi Lulu2red

There are now several different brands but they seem the same to me. Well done for getting it, it does make the world of difference holding on to it is a bit of a challenge. best of luck

pixelated profile image
pixelated

HI - I am new to this site. I read your reply to my post and feel you have a very similar history to me, only I can't get to see an Endocrynologist still and my doctor says he can't request T3 blood tests - I am in severe pain with my bones and joints and can hardly walk, I am on 125mg Levo and heart meds, I have been diagnosed with heart disease, have a partially blocked artery, Micro Vascular disease and Vasovagel Syncope, I don't drink or smoke and have always eaten properly (no processed food or fizzy drinks) I know it's my thyroid thats causing all this, but the doctors just palm me off with pain killers and other drugs that cause more problems.

How did you get them to take you seriously ? I can't even get the receptionist to print my blood test results off !

Lulu2red profile image
Lulu2red in reply topixelated

Firstly it's your legal right to have copies of your thyroid blood tests, you may have to pay 20p for a print out. Get them and create a new post with resuls and the ranges. Someone here will be able to advise you. The problem when you have co morbidities they love to blame all on each other. Also they are scared stiff of thyroid medication when you have a known heart problem. Yes, you must be careful but your thyroid symptoms should not be ignored. My legs and ankles are no longer huge and painful feels like a miracle, but it isn't. I cannot tolerate T4 at any dose it does nothing for me. I have the faulty gene DI02 so cannot convert T4 to the active T3. Maybe pay for this test privately, it cost me £156 at the time. It was worth it to get my NHS prescription confirmed ongoing. However if you don't test positive it will be a waste of money. My whole body used to hurt deep down in every muscle, felt like in my bones. All resolved after taking T3 for a week, brain fog and mood lifted in 3 days. 8 weeks in swollen legs feet hands face gone. Weight is still not moving but I am not even in range yet so when I get there hoping that will resolve because it's not what I put in my mouth. Maybe get some T3 from the EU. Turkey you don't need a private prescription. Just start slow. I was on 125 mg T4, so ditched it and started 25 mg T3. 15mg AM then 10 at 3pm. Endocrinology have just increased it to 30 mg but have to wait 6 weeks and blood test before another. In your case and I am no doctor you should proceed slowly. Maybe drop 25 mg of T4 and add 10 mg of T3. Take your basal temperature and keep an eye on your pulse. Best wishes ☺️

pixelated profile image
pixelated in reply toLulu2red

Thank you for all that - Really pleased to hear you have found something that makes you feel better - It's hard going feeling unwell all the time I know.

I will have to look into all this - I can't afford the blood tests as now I can't work I survive on £73 a week this doesn't even cover my bills and food, so I will have to persevere with the doctors etc., I had a blood test friday and should get the results this evening so I will try and post them in the next few days when I get access to the internet (I don't have broadband either ?)

Hope your treatment continues to help! Keep posting!

Lulu2red profile image
Lulu2red in reply topixelated

Not sure how old you are, but if not over 65 you should claim PIP. I was going to when I could hardly walk 10 feet for a year, didn't in the end as things improved. At least you could afford the gene test then. Get some help from Citizens Advice to fill it in.

pixelated profile image
pixelated in reply toLulu2red

Hi,

I am 55 yrs old. I applied for PIP last year when I was struggling with my health problems (as advised to by a support worker) and the assessor turned out to be one of my daughters friends (about 25 yrs old) who visited me at home, it was all very awkward, discussing my health issues with her as I don't discuss them with my daughter, it was all a bit uncomfortable. (I was refused PIP)

My heart problems are preventing me from doing much walking, as are the current joint and bone pains, I get very out of breath and ended up in hospital again a couple of months ago with it. I am having another angiogram in a couple of days and hopefully will find out why i'm struggling - I know I have a partially blocked artey already and MVD(?), unstable angina and vasovagel syncope, but none of these qualify me for any extra help.

Last time I visited Citizens Advice they told me I wasn't entitled to any benefits, fortunately my support worker sorted this out for me otherwise I'd have nothing to live on and no home ! But I will keep trying

Gryphon1 profile image
Gryphon1 in reply topixelated

I am exactly like you cant afford tests and dont have broadband and having problems getting help from doctors also would find it hard to pay for all foods and supplements required. I will need to follow your posts and I hope you get the help you need soon. I dont get PIP either and not even on Levo yet as doctor waiting for more blood test even though symptons bad. I was looking on here for help it is so hard not having the money as I have read advice and it seems only way to get better. I hope you have more luck. Same age also strange!

EbonyEvans profile image
EbonyEvans

Hi Lulu2red, print outs are now free as of 25th May this year.

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