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Thyroid UK
91,685 members β€’ 105,991 posts

in need of good endo

hello all, I have not been back for awhile, so I will give brief rundown of my case, I have hashimotos since 2001only had treatment since 2009, the usual story, at the mercy of half a dozen different docs at same surgery, they all got different opinions and dish out different orders with results they up and down the dosage of my medication, I have now mislaid all my test result printouts so can't let you know, I am due another blood test soon but I want to try Medichecks before the NHS blood test.

I feel stressed out for last few weeks, my sleep pattern is up the spout, I'm trying to go gluten free, I have chest pains and a disturbed gut and bowel problem, ( gallbladder removed) one day I'm constipated the next I'm loose, my food comes out other end barely digested, I'm bloated up by 4pm every day, I fall into a stupor after the smallest meal and to cap it all I have a chronic histamine condition, oh. and not forgetting brain fog, can't think straight or achieve anything that need doing. I have only ever seen one endocrinologist, who, after the results of blood tests informs me I have Hashimotos and was more bothered about the histamine condition being treated with a gamut of 5 different meds than offering anything further for my hashimotos condition.

Hence, the reason I feel it time I was seen by a thyroid friendly endocrinologist, any advice would be appriciated

thank you all

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Maggimai

You can email Dionne at ThyroidUK for their list of thyroid friendly endos, then ask on the forum for feedback on any that you can travel to.

tukadmin@thyroiduk.org

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Thank you SeasideSusie, much appreciated.

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Not sure what a thyroid friendly Endo can do 😊 Have read through your long post/thread of two months ago and cannot see any comments about vitamins and minerals. They must be tested and treated as suggested - B12. Folate -Ferritin - VitD.

Are you taking any other medications or supplements ? We have to help ourselves when it comes to Hashimotos as it is rarely understood by regular Docs. It is an auto - immune condition so a good diet is the first thing to address to heal the gut. Again Docs have limited knowledge. Do you follow the Docs on-line that have been suggested ? - Izabella Wentz - Amy Myers ? - and others. We have to read and learn as much as possible - and it never ends.

I had gut TB at 27 - followed by Crohns - endless surgeries and have found my own route to wellness once I was diagnosed with Hashimotos at 59 back in 2005. Joining this forum 7 years ago took me to helpful websites/books/research and still I am learning and trying to keep up to speed ! Just wish Doctors did too 😊

Take control - go gluten free - supplement well - enjoy life .... I think you owe it to yourself. Docs are complicating your life and causing you stress .... I know easier said than done 😴 Hope you find the answers you are looking for ? Have you found your results you mislaid ? - that would be a good starting point 😊

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Thank you for your helpful reply, I will take your advice on board, no, I have not found blood results yet, I'm getting updated blood tests soon and will post them on this forum.

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Why not obtain your latest results - ring the surgery - request them as they are legally yours and say you will be in to collect them on Wednesday.

When you have them start a new post so more people see it and comment. Impossible to give constructive help without results AND ranges as a starting point.

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Can you add your most recent vitamin D, folate, ferritin and B12 results and ranges

If not been tested ask GP to test or get privately

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. So good you are now gluten free

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thank you SlowDragon, I'm not totally gluten free yet I'm working on it.

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What are you not able to give up ?

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I have no problem giving up food that contain gluten my problem is finding substitutes for the food I like that contain gluten, the price of gluten free bread alone is mind blowing to me on a fixed income I now don't eat any bread, cakes biscuits, I've been trying to survive on salads, some veg, and fish also chicken. interestingly, despite all the food changes and cut downs I have not list a single ounce of the 2 stone weight I put on, I'm overwhelmingly tired now so have to wind down post, thank you

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Maybe you need to add in lots of good oil when cooking your veg. Fat does not make you fat ! I know its easy for me as I live in an Olive Grove and have loads of oil - but my best weight loss was in January when I had oil three times a day with a small amount of protein and loads of veggies. Cauliflower cous-cous - cumin cabbage steamed with oil - loads of fried courgettes with onions and garlic - also courgetti spaghetti if you have a spiralizer :-) I followed the Whole30 Eating Plan - you can find it on-line ! Lost almost a stone in the 30 days ... now need to do it again :-) Stay away from gluten free foods if possible as they add nasties too ! I sometimes make chick pea flour pancakes - just flour and water and then spread stuff on top - home made pate - hummous - fava. So many cheap things to make - just requires a bit of effort. We too are on a fixed budget and still working in our 70's and both with Hashimotos ! On the Whole 30 you can have sweet potatoes and normal ones too !

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Thank you Marz

I am already out buying the food you recommend, you are lucky to be living in an Olive grove, I wanted to ask is Cous Cous gluten free

I would like to buy it if it was gluten free.

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It's cauliflower cous-cous I make ! I have a small electric bowl type food blender. I pop in a few cauliflower florets and blend for a few seconds - check it looks like cous-cous or rice ! Continue until all done and you have a huge bowl full. Heat a large pan with coconut oil or olive oil and then slowly add the cous-cous with the spice or herbs of choice. Keep stirring for several minutes whilst it cooks on a gentle heat. I saute onions - garlic - chilli - salt - pepper - before adding cauli cous-cous. You can add cooked anything - mushrooms - courgettes ! Some recipes on-line call it cauliflower rice. You can eat as much as you like 😊 ENJOY ...

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Sorry Marz, I overlooked this post, it sounds very tasteful

I am going to try it asap.thank you again

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If you read the second link here from Chris Kresser you will see it does need to be strictly gluten free to work.....as if you were coeliac

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

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Same here. I'm saving up to consult an endo privately. I've lost all faith in my GPs. Three times they failed to issue promised prescriptions. Now, I'm worried they might have marked me down as a 'difficult patient'.

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So why not simply self treat instead of spending money seeing an endo whose recomendations your GPs will ignore

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