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Thyroid UK
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Post hysterectomy - possible family history related thyroid issues :(

Hi

I am new here and wanted to know of any of you ladies started having thyroid issues post hysterectomy being on HRT? I'm 3 months post op I had e everything taken barr vagina!

I find getting up in the morning is so difficult its taking me hours to get going with the help of my anti depressant medication once it kicks in (severe anxiety PTSD.)

Sleep could be around the clock for me. I'm on a high level of HRT us under 40yrs. It won't be increased as it's the highest, my bloods are fine for oestrogen levels.

I'm wondering what tests I should ask the Dr to do. Both my mum and sister take levothyroxine. I have managed to avoid testing high enough if thsas the right term for thyroid treatment but always felt the need for thyroid checks being a person who lacks energy and finds getting up a horrendous abuse my whole life.

Once I had raised prolactin but not enough to be treated, early 20's.

When I rouse and I'm up I am very proactive but feel I could sleep hours after exertion.

I have a disabled child and need to be on point, I'm not and we are all struggling with my lethargy.

Any help would be great.

I take pro biotic multi V's and glucosomine sulphate for my joints.

Thank you in advance.

Helly.

6 Replies
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For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies.

Plus very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

As you have more than one close relative with hypothyroidism they likely have autoimmune thyroid disease. This also makes it more likely you do

High prolactin is linked to Hashimoto's too

Antidepressants can lower TSH so important to run full tests

Depression and anxiety are common hypothyroid symptoms

List of hypothyroid symptoms

thyroiduk.org/tuk/about_the...

Reply

Thank you SO SO SO much SlowDragon for a very thorough reply.

I read through the symptoms and I have a scary amount of these at the moment. Since I went on HRT and had my hysterectomy I have more joint pain, particularly irksome to me is shoulder pain, dead leg after sitting and feeling that my ankle and foot bones are painful. My fingers have been swolen for months. Tiredness and definately up and down moods and energy levels. I am the daughter of one of the 1st ever cases of Hasimotos my mum took it here in 1979 and it was one of the 1st recorded cases. I know she went from interactive to overactive until the gland burnt in self out (may have been the other way around.)

Mum takes levothyroxine. My sister started to need it too after her hormones wrre screwed up after IVF attempts.

My own Dr is back after July 9th so I will contact him then as he has a great relationship with my son and myself and I will less likely be dismissed.

Thank you so much for the very thorough answer it has been more than helpful.

Best Wishes

Helly.

Reply

We live in Northern Ireland.

Reply

For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies.

Plus very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. This gives highest TSH and most consistent results. (Patient to patient tip, GP will be unaware)

Reply

A couple of things to consider...

Having an anaesthetic can destroy B12 in the body, so supplementing, possibly quite generously, might have an impact on how you feel. And in order to make use of vitamin B12 you need folate :

b12-vitamin.com/anesthesia/

Another possible issue - you might have lost a lot of blood, in which case you would need to find out whether or not you are suffering iron deficiency anaemia. To know all there is to know about your iron status you would need to get a Full Blood Count Done AND an iron deficiency check. If your doctor won't do them for you then you could buy your own privately.

medichecks.com/iron-tests/i...

medichecks.com/tests/fbc-fu...

If you only do one, do the iron deficiency check, not the FBC.

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Reply

Thank you so much I will get these checked too with my Dr. I did lose lots of blood and bled considerably for 3 weeks post surgery too.

I know that without my regular multivitamin I feel worse but I feel so tired, slow and unmotivated at the minute.

Many many thanks for your reply.

Helly.

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