Anyone found medical professional in UK who understood thyroid disease and has successfully diagnosed and treated resulting in good health?

[Flecmac]

I would be very interested to know if there has been any such success story!

[Greybeard]

The people who have been fixed don't need to read these pages.

[greygoose]

That's true, what Greybeard says. People who have reconvered, for the most part are off living their lives, not glued to their keyboard. People on here are the problem people that only a very rare doctor could help or understand. There are the odd rare doctor, of course, but they're few and far between. So the people on here are here to learn with a view either to self-treating, or trying to educate their doctors. But, the majority of the hypo population does very well on levo and the TSH test, and don't need to be here.

That said, there is a Happy Ending section, somewhere on this forum. Not sure where, but I know it exists. Where people who have passed by us and learnt enough to help themselves get well, either with the help of a doctor, or on their own. So, perhaps you might like to have a look at that?

[Fruitandnutcase]

I was diagnosed with Graves’ disease - that’s an overactive thyroid with antibodies.

I was booked into my local teaching hospital. Took carbimazole before my first appointment three months later.

Was treated with block and replace, treatment lasted for a year just as the endo I spoke with on my first appointment predicted and I’ve been in remission since 2013.

I agree with what GG says about people who use this site tending to be people who have problems (that’s how I got here) the others either self treating or doing well on levothyroxine.

I do think it’s easier though for people who are hyper to get the treatment they need. Hypo patients are much more likely to have a struggle although hyper patients have the threat of radioactive iodine treatment hanging over them if they relapse.

So bearing in mind that my Graves is possibly only in remission I’d still say my story had a ending.

[Flecmac in reply to Fruitandnutcase]

Thanks.

[Quokka]

I have no complaints about my doctors after 34 years of being hypothyroid. Is it a coincidence that they've all been women? I felt well, and never thought about my thyroid. I save my fury for the NHS managers and government officials who allowed T3 to get so expensive. When I was first given T3 16 years ago, the medical attitude seemed much more relaxed- let's try it and see if it works. Now it's such a battle.

[Mary-intussuception]

No

[Hidden]

It’s taken me 3 years since going for a massage and the masseuse saying I probably had fibro which I never heard of and research from there and blood tests and taking Levo to feeling no better and then the last year really pushing for more tests and trialling other meds to get t3 and so far I feel like I’m having less depressing negative thoughts and have a bit more energy but difficult to say anymore as I also have a slipped disc and only been on t3 for two weeks. Everyone’s on the same path and getting depressed and frustrated along the way. It’s taken over my life trying to get to the bottom of it and I really want to somehow get involved with campaigning but I see that campaigns are happening. I want to help others and get t3 back on nhs and thinking of ways to do this.

[penny]

Dr Peatfield! Bless the man.

[Flecmac in reply to penny]

Yes, read his book, think he’s retired now like all the good ones!!

[penny]

I know that Dr. P. has been unwell but thought that he was soldiering on. I’m not up-to-date so don’t quote me. My lovely private doctor retired some years ago; he was the one who diagnosed me. I don’t know of any more although a private doctor I’m seeing at the moment does seem to understand thyroid issues but he’s more of a nutritionist. My GP wrote a few years ago to tell me that I’m not hypothyroid and so they were stopping my T3 prescription. (Does this mean that they were unnecessarily giving me thyroid hormones?). I’ve not bothered with a GP since. I gave the surgery a copy of Dr. Peatfield’s book but I doubt they read it.

[Flecmac]

Where is the Dr you are seeing please?