Confused! Feel like im going crazy: I was... - Thyroid UK

Thyroid UK

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Confused! Feel like im going crazy


I was diagnosed with hypo on jan 2017 when- I was pregnant back then had a complicated pregnancy and gave birth in July 2017, stillbirth. Nonetheless, after giving birth I felt great, physically- more energized, well rested.. And was taken off thyroid medicine, levo 25mcg.

Now in Jan 2018 I started feeling extremely fatigued, anxious, having hair loss, intolerance to heat, a skin rash( dry itchy patches around the neck, brain fog, slow speech, small bumps on face that look like mosquito bites.. So, they put me back on the medicine, same dose.

BUT, today July 13, 2018 I had an appointment with an endocrynologist.. I filled a survey in which I described my symptoms. And, the consultation resume with him taking me off the medicine. I mentioned to him that I suffer anxiety, and he mentioned a pituitary gland... Im googling all of these to see if it makes sense.

My question has to do with what comes first, is my anxiety triggering all these synptoms OR am I just experiencing the levothyroxine side effects. (Because in the visits summary it states that "he suspects I dont need levo", so maybe I was just taking medicine that my body doesnt need.


2 Replies

Without sharing your latest thyroid test results it is difficult for members to comment as to whether you need Levo treatment. 25mcg is a very small dose and can often make you feel more poorly.

You are legally entitled to have copies of all your results with ranges. You will need the following tests - TSH - FT$ - FT3 and Anti- TPO and Tg - the last two are thyroid anti-bodies. these are needed to rule out Hashimotos.

Also important to have B12 - Folate - Ferritin - VitD tested - as these too need to be optimal. Are you able to have private testing done through Thyroid UK - it is the only way to have ALL the tests needed that the NHS rarely do.

So sad you suffered a still birth - am sure everyone here will do their very best to help you so keep on reading and asking questions.


First of all I am very sorry your baby was stillborn. Hypothyroidism can affect pregnant women and some can miscarry or have other things go awry.

People don't recover from hypothyroidism. From the queries we have on ths forum, few Endocrinologists are excellent.

I think I understand why he's taken you off levothyroxine, probably because you stated anxiety etc. He probably thinks you have a mental health condition as I doubt he knows any clinical symptoms of which there are many. When doctors or endos don't know clinical symptoms they are useless for a patient who is looking for advice/answers.

I would recommend you get a Private Blood Test from one of our two labs. They do home pin-prick tests and make sure you are well-hydrated a couple of days before blood draw. They are pin-prick tests but either lab can arrange for someone to do it. Also make sure arms/hand are warm.

You need a TSH, T4, T3, Free T4, Free T3 and thyroid antibodies.

Get a print-out of the results and post on a new question and make sure ranges are stated as members need the ranges in order to comment.

GP should test B12, Vit D, iron, ferritin and folate.

When we are hypothyroid we cannot stop taking thyroid hormones.

Medichecks or Blue Horizon are the labs and both are helpful.

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