Lyme UK warriors could you please advise what i... - Thyroid UK

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Lyme UK warriors could you please advise what is the “best” test to do?

Yennn profile image
3 Replies

Hello everyone!

I’m on the uk and have been reading up on admin labs, igenix and dna connexions test for Lyme. I have read endless forum with mixed reviews on all. My funds are limited as I’v have paid thousands for treatments, supplements and private testing. This Lyme test is the last I can really afford. Anyone in the uk used any of the test? Can recommend which is best to use? I have already had a two Elisa spot test done by nhs which was negative. As I have learned now it is only 50/60% accurate. Thank you kind warriors any advise would be amazing. As always.

Thank you.

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Yennn profile image
Yennn
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3 Replies
Murphysmum profile image
Murphysmum

Will your gp do it? I’m guessing not but mine agreed to put in a request for me on the basis of my symptoms and background.

Worth a beg if you haven’t already!

Good luck

Yennn profile image
Yennn in reply to Murphysmum

Thank you for your reply. May I ask which test the gp is goin to do for you for lyme?

I have already had two Lyme test from nhs as I have learned it’s only 60% accurate the Elisa test and it only tests for activate anti bodies. Many Lyme suffers have tested negative on Elisa then paid private for a more sensitive test that looks for strains of the bacteria. From what I have read a very complexed disease🙈 good luck to you too! 💛

Murphysmum profile image
Murphysmum in reply to Yennn

I don’t know yet I’m afraid, I’ll find out tomorrow if they’ve approved it!

They bloody better, especially as I just read something about B12 and Lyme... or was it ferritin? I’m so confused! Either way, I have issues with both 🙄

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