Latest Endo visit

[Baobabs]

I have just returned from my Endo visit and asked her why I should continue to take T4 along with T3 meds when I’m certain it does nothing to improve my symptoms. She drew me a nice little diagram explaining that some cells in the body need T4. Anyone else ever heard of this? I have just had bloods taken and although my last ones showed very low FT4 and Just over half way up the range of FT3 she is reluctant to increase T3 until I have a bone density scan. I have just had it. I have told her that regardless of the bone scan results I am not giving up T3 meds. Why does there seem to be no consistency in what these folk utter? I can see self medication looming.

[greygoose]

Because they don't really know what they're talking about, so they make it up as they go along. inconsistancies are therefore inevitable!

The honest truth is that no-one really knows what T4 does. It is a storage hormone, yes. But does it have other uses? We don't really know. What we do know is that some people seem to do very well without it, on T3 only, some people need it to feel well. We ought to be free to experiment and find out which sort of person we are.

[Baobabs in reply to greygoose]

Thank you greygoose. It is so overwhelming when you are alone in hospital amongst the white coat brigade.

[greygoose in reply to Baobabs]

Yes, it is. And you feel they're all ganging up on you!

[shaws Administrator]

As far as I know T4 is inactive and it's job is to convert to T3 the only Active Thyroid Hormone. We have millions of T3 receptor cells - if not billions. If we don't convert T4 effectively, our cells wont have sufficient T3.

(I am not medically qualified)

Our original thyroid hormone replacement was NDT (natural dessicated thyroid homones) made from pigs thyroid glands. It contains all of the hormones a healthy gland would have produced but the NHS has withdrawn this as well as T3 this summer. The BTA also have made False Statements about NDT, despite it being a life-saver for millions since 1892, before that we died.

[Baobabs]

Utterly, unacceptable and shocking. Do we think or know of people with Hashi’s who are untreated or inappropriately treated today who are extremely sick or die as a result?

[helvella Administrator Thyroid UK]

Did she tell you which cells?

(I think I could draw a little diagram proving the moon is made of green cheese. But details and evidence would be in very short supply.)

[Baobabs in reply to helvella]

I get your drift Helvella. The more we dig, the less there is to see? Well I have decided to abandon all meds, ( along with hope) consume copious amounts of jungle juice and possibly pioneer thyroid transplants which in medical terms may equate to rearranging cloud formation in one's spare time.

PS, Everybody knows the moon is made of green cheese!

[Baobabs in reply to helvella]

Cream cheese?

[helvella Administrator Thyroid UK in reply to Baobabs]

Seems to vary between cream and green!

I was really hoping she had explained.