Who said you can't eat anything? That's rubbish. The only thing you should absolutely not eat is soy. If you have high antibodies, you should try a gluten-free diet. Artificial sweeteners and processed oils are not good for anybody, so avoid them. Apart from that, eat what want, whatever you feel good eating. You need a varied diet in order to maintain good levels of nutrients.
OK, but they should be testing your FT4 and your FT3 as well. Just testing the TSH gives you very little information. But, your symptoms say that you are under-medicated. Brain fog is a hypo symptom.
It is impossible to know with any certainty if your dose is right for you without seeing the FT4 and FT3. However, judging by your symptoms, no. It is not right for you. You need an increase in dose.
Your doctors obviously don't know anything about thyroid. I'm sorry about that. Can you buy your own levo?
When i was taking 200 mcg i was feeling pain in hip.and leg.like.sciatoca after taking medicines painklier muscle relxcant then leg strt to numb and then slowly leg pai disaapered brain fog and dizines and headche strtedThen after tsh 0.059 so i reduce to 100 mcg then strt feeling hip and left leg again strt to pain sane as bfr. Face sweling oncreases day by day.
Did you reduce to 100 from 200 in one go? That's could be part of the problem. You should only increase or decrease by 25 mcg every 6 weeks. Jumping around with your dose like that is going to make you worse.
I certainly got swelling on my face as a hypothyroid symptom. My grandma had it very badly. Before blood tests were invented doctors used oedema (swelling) as a sign that the person had hypothyrodism, especially on the face. The illness has a distinct look quite as you describe as βpuffyβ even your sibling could tell it was different and told you to see a doctor! this knowledge has been forgotten by doctors who now just use blood tests and do not bother to properly observe the person in front of them!
I'll tell ny so to be best enodocrinolgist. To treat patients here in best way... Just hoping and dreaming... I never know abt life and talking big big things... ππ
No due to schdule an hour wpuldnt left.. Cox i would to take sum rest and then will wakeup for sehri perparation.. Due to limted time 30 mints will be break.
Donβt worry that should be fine π i absorb medications very rapidly (I even have the genes for rapid reaction to medications) and they affect me quickly. Hopefully you are similar. Some even say eating with levothyroxine is better for absorption - I donβt eat with my medication but it probably is not that important in my case my body grabs it fast!!!
It can be a bit of a mental adjustment to to eat a healthy diet, but it's definitely not a restrictive diet! I eat meat, fish, eggs, cheese, poultry, vegetables, fruit, extra virgin olive oil, butter, coconut, cocoa, dark chocolate, nuts, yogurt, cream, to name a few things!
It's actually less expensive to cook from scratch rather than eat processed food. I admit nuts are very pricey at the moment particularly but fresh fish doesn't need to be expensive, depending which you go for. You can also get really cheap tinned mackerel and sardines.
Some people try cutting out gluten as it's meant to help reduce antibodies if you have hashimoto's, but it doesn't mean everyone has to go gluten free. Some people try cutting out dairy (something I've tried and only half managed - I like butter and cheese too much!) as it can be helpful. But neither gluten-free or dairy-free is set in stone. They are just things that are worth trying in case they help. I generally try to avoid glutens and grains, as I found my weight stabilised for not eating so much carbohydrate. But other people eat them with no problems.
I avoid polyunsaturated oils as there has been a lot of research into them not being good for you. I stick to lard, butter and olive oil.
Don't despair - I love my food and don't feel deprived at all!
How to check abt antibodies. There is no 1 dr who recomend me abt antibodies. They just check tsh. Whenever i further argue they put me.on antideprsion.
So just got furstrated.
Iam overweight and hel pain in legs necks and.alwys tired... Puffy face every time.
How to get rid.of ol this.
Is it.om taking evening perimrose.oil capsules.in hypothyroidism?
What country are you in, Dils? I was never tested for anything except TSH by my doctor and paid privately to have a full thyroid profile blood test done via a company called medichecks.com, but they are UK based.
I take evening primrose oil - it's good for reducing inflammation apparently.
What dose of thyroxine are you on? And do you have any recent blood test results to post?
Help me plz i just got furstrated there is no improvment in me. And i dont know whis htpothyroid to share xperience um dignosed 4 months bfr after c section.
But.no reduction in weight.increase chuppines.day by day.
Ok, I'm no pro total beginner, if you recently had a baby, c section no less, bravo!!!! Your body needs to return, plus the hormones, new baby, no sleep. Evening promise helps every woman, at any age. Green tea could help with weight?
May I make a suggestion? Start a brand new post, and put your results in it - more people will see it then and you'll get more responses. Because you've replied to me, it's only me who gets an notification - and there are a lot of people on here who are far more expert than I am. I am still on a learning curve myself with all things thyroid. I wouldn't want you to rely just on my input!
That said, the things that strike me looking at your results are:
1. Your T4 to T3 conversion rate (divide your fT4 by your fT3 - I'm assuming both these results are your free levels?) is 4.95. I've read on here that it needs to be below 4 to show good conversion. There are things that can help conversion, such as selenium and zinc
2. Ref the C Section - I know little about pregnancy but again I have read that pregnancy can often trigger or exacerbate hypothyroidism.
3. Re conversion - there are things, as mentioned, that can help conversion, but for some people their bodies just won't manage a good conversion rate, and then it can be helpful to try natural desiccated hormone (dried animal thyroid glands) which naturally contains both T4 and T3) or to supplement with synthetic T3.
I know you're desperate for answers but hang in there. This forum is mainly hypothyroid patients themselves. Noone is paid to reply to every post. You will get replies, but not always instantly.
I don't know anything about the medical system in Pakistan. Over here many people source T3 themselves. NDT can also be sourced from Thailand I believe (I've never taken NDT). Hopefully someone else can advise you perhaps.
My EPO is capsules too.
It sounds, from your symptoms you mention in the other replies, like you are still very undermedicated. Have you checked whether there is a company in Pakistan who do private blood testing?
I'm really sorry your doctor and husband are unsympathetic. That's the last thing you need
How do u take epo with meal.mean um new and no 1 recomend me.i have strd to take my.own risk... Cox i find vits subtitutes. And read abt its.advantges so.jst strtd to take it.
ah that's good that hubby is on your side. I thought you meant he had called you a psycho too.
For many people with thyroid problems, they respond well to levothyroxine. But there are also many who don't. It's not simple and, as I said, I'm still learning. Some people don't convert T4 to T3 very well. Some can improve that conversion through supplements such as selenium and zinc and vit C. It's also important to have your ferritin, folate, Vitamin B12 and Vitamin D levels checked. These need to be optimal to help with conversion too. And then you have people who need to take an alternative such as NDT or T3.
Personally I never felt good on levothyroxine and when I increased the dose I felt terrible. I'm now on T3 only. Still not feeling great, but I have felt improvements.
Can I just say it is everywhere that people say thyroid is no big deal. Your country & here. Nobody understands unless they suffer themselves. That's the truth. You are one of the fortunate ones to have found this forum. Now you can be understood & get the help you need. It will take time & a lot of reading, learning & persevering but you will start to feel better. But honestly, thyroid is misunderstood everywhere you go, you are not alone dealing with this attitude & ignorance. Good luck, keep reading. X I also want to add, take plenty of vitamin C as this is quite inexpensive or readily available in fruit & veg etc if you don't buy it in another form. Vitamin C supports your adrenals & thyroid & a lot more, and I know you have a lot of information to take in at the moment but starting with the good basics whilst you get your thyroid levels right is a good way to go.
I wanna take vits.. My husbands ask who did u perfer so he dont get me. This apo capsule got me after alotnof insistance. Cox three years ago this capsule suggested my gynoclogist for conceiving. So i motovated him..
And big thing is that idk medicines with names when i send pix ofedicines they say these medicine nes are imported not avalibl here.
There is aloy of water retention in my body.. Feeling hip pain and puffy face swell.hands... No solution drz col ne psycho. Even my husband strted to col me psycho.π΄πππ
Take no notice of people calling you psycho, they don't understand. If you feel frustrated and want to talk with others going through the same thing then just come here and write a new post x
It is generally advised to take fat soluble tablets with a fatty meal so maybe take your EPO in this way with it being an oil. Take EPO with your main meal & then you are likely to take it consistently too. Just a suggestion as you seem quite concerned about it
No need to go without im celiac so have to be gluten free and i choose not to eat soya but i do not feel deprived either and i know its processed and full of rubbish and sometimes i will buy a gf sponge cat and just eat it!! Yum. ππππ but who can go wrong with fish, meat, veg and tatties. Xxx
You must go with what is possible for you in your situation. Your levels could be fluctuating as your thyroid slowly dies hence the very low TSH in your last test. I would get short periods of hyperthyroidism where my energy went into overdrive but it made me angry and difficult then I would slow down again so tired I could cry. I take thyroidS 1.75 grains (ie tablet) is about the same as 100mcg levothyroxine, this comes from pigs so may not be something you can get hold of, or take for religious reasons, but I feel better on it than levothyroxine. You could try adding some T3 to your levothyroxine it may well help and you can get hold of it. I do not know what dose of T3 but you could repost and ask for advice .
That is a shame. You probably need a higher dose of levothyroxine to get TSH to between 0.2 and 0.5 assuming your last test was caused by a sudden dump of thyroxine. Your symptoms indicate you are hypothyroid still. It was much higher in the previous test I think - canβt see it as I type π. 100mcg is not a very high dose 125 is the lowest full replacement dose but you may need more in the long run. You could increase by 25mcg but you need to stop there for 6 weeks as it takes a long time to build up to full strength in your body and then you can get a blood test to see if it has improved matters. I wonder how long it was since the very low TSH result. It might be worth doing another one to see if it has risen again. Have the test as early am as possible, no food for 12 hrs beforehand just water (ha πha π€£haπ!!) and do not take the dose of levothyroxine until after the blood draw.
The TSH will be at its lowest then, but you need to know it at its highest which is in the morning, so 9.13 was high. The increase to 200mcg was too much in one go and may have sent the TSH too low and really caused your body a lot of sudden change upsetting it greatly and making you feel very poorly. You need to go up by just 25mcg And have the 6 week later blood test to see how the levels are. Then another 25mcg increase until your TSH settled between 0.2 and 0.5 hopefully you will start to feel well at that point. If you can get the blood test early am and do fast for 12 hours and just the water and no levothyroxine for that day till after the blood draw and do this every time everything will be the same and the results will be from a standardised perspective. At least you know you probably need a dose somwhere between 125 and probably 175 to get optimised so that would only take 12 weeks, or less if say 125mcg or 150mcg suits you best, to achieve. So have hope that better times will be with you βοΈπβοΈ
I took them because they were supposed to help period pains (mine were terrible probably because I had untreated hypothyrodism) I am post menopausal now so I must have stopped taking them because they were not needed. I used to take Safflower as they have a higher amount of the same active ingredient as EPO. But I donβt think they are detrimental to health in any way.
Um also suffering from irregular period.after c section bfr that never delay in.periods it was xact date or earlier than date so thats y i stred to take it and for weigh loss hair loss and musle pain
Not sure to be honest but it did me no harm. It may have improved my skin, it is very dry these days. The thyroid disorder can cause problems with periods - painful, heavy or irregular especially if you have short times when you go into hyperthyroidism. It happens because the antibodies kill bits of the thyroid which then release their stores of thyroxine causing spikes in the blood stream and hyper like symptoms (anxiety, panic, lack of emotional control like outbursts of temper, crying fits etc, fast heart rate) but these soon pass and you go back to feeling hypothyroid - just like you describe as your symptoms. This can also cause the periods to cease, upsetting your bodyβs cycle. It is all very tough to take, it can affect everything but I think knowing this helps a bit because you can think you are going crazy but when you know they are symptoms it makes a bit more sense like with any illness you would feel compassion for the suffer and you must have compassion for yourself trying to cope with such a hard thing and still carry on with life as best you can. Not easy. My weight went right up. I found gluten free and swapping to NDT helped get it down again but everyone varies. It is a known problem for people with hypothyroidism. I used to feel so uncomfortable - no clothes would fit me my belly was much bigger than my hips so trousers would start to fall down and I had to wear huge tops to cover it! I put on 4.5 stone - a lot! I felt all podgy like you say and the aches and pains were just awful. I also got horrible itching.
I hope you can get a good levothyroxine dose for you very soonππ½and reduce those unpleasant symptoms π
This is main thing "no clothes would fit me my belly was much bigger than my hips so trousers would start to fall down and I had to wear huge tops to cover it! "
Same thing happen to me. And besides pain so i got furstrated and struggling here and there for help.
Yes the heart is very sensitive to thyroxine and any variations in it. I had dreadful heart pains from mid 30βs. ECG in 40βs was abnormal, I had an excercise stress test monitoring my heart which showed one chamber not working properly but was told it was hormonal and something women of my age get and not to worry about it! That was a top heart hospital in UK π. They got worse and worse till I was diagnosed as overtly hypothyroid at 53. Unfortunately I still get them but nowhere near as bad as before. It is scary but now I think I have had them for nearly half my life and I am still here - they are like an old but annoying friend!! Those big changes in dose of Levothyroxine will not have helped - small wonder your heart got unhappy. Small changes in dose allow the heart to adapt without too much strain. I was only allowed 20mcg levo at first mine was so bad it took ages to get my dose up eventually to 125mcg (quite low my sister and mum is/was on 175 and much smaller in stature than me).
I did think about getting braces to hold my trousers up! Eventually the weight went down and I was ok again.
Hmm.. Drs say me u r one of fortunate that u r dignosed so early. Its not my herdity and iam lil sibling at my.home iam 28 so thats y iam cryinv y so early on medication but now.accpted every thing is for betternes. At the strting of marriage i was upset for conceiveing it took 2 and few motnhs than i conceived and delivered baby boy Allahumdiilah than after 4 months dignosed with hypo. Every one strt to say me u've gained weight my sibling said no ur not fatyy u r chubby go for tests than after urine test urea and tsh. Tsh os dognosed. Since 1 feb 2018 um.taking medicines.
Bfr dignosis symptom of.malaria it was negative i was suffering from alot ofnpains and cold. Than now no cold sensation but pains moving here and there.
I had that puffiness it is not pleasant. It will go away when your medication is correct. Well done on having your little boy! Hypothyroidism can cause fertility problems, I never had any children. It must be hard dealing with the hypo and having a little baby to look after. It is good you were diagnosed but the hardest part for me was not when I was really poorly - I was just getting through moment to moment and could not reflect on anything my mind was totally absorbed with basic survival. As they upped my dose I became more aware of all my problems and the closer I got to being better the worse it seemed, so close but so far away from who I once was. This was the very worse time for me in many ways. If your medication is increased gradually you should see improvements and can be positive about those. Will the doctor up the dose to 125 if you ask? I hope you feel better very soon!
He would say on ur own risk. Waiting for 6 weeks now ive strted taking flax seeds seasam seed almond bnanas yougart milk epo mab be help these thing to improve my health.
Excellent you can self manage your dose and get it exactly right for you. Here in UK we cannot buy levothyroxine, only from a doctors prescription if the doctor refuses a dose increase we are stuck feeling ill or have to buy on the internet - not good. I am pleased you have complete control over the dose you take. Aim for TSH between 0.2 and 0.5 and see how you go!
Is the dizziness on standing up from things like squatting or kneeling? Or just general dizziness? If it comes from getting up this is due to low blood pressure that is common with hypothyrodism the pressure cannot get the blood where itβs needed fast enough so you go light headed. I had it very badly. As your dose is fine tuned it should lessen or even go away although the low blood pressure might remain which is not in itself a bad thing. Not sure if it is general dizziness instead. It probably has the root of undermedication. Iβd Be inclined to try and stay with the increase If you can 11.5 will be very small and may not upset you at all. You need to stand up very slowly if the dizziness comes on then and not try to move on until it passes and your head is clear again or you might pass out and hit the deck!
It might have been pushing you into hyperthyroid territory which is very unpleasant indeed I would be racing in everything my mind a crazy chaos till I felt like screaming. Good you do not have the dizziness on standing up it is not very nice at all and BP is all good.
Those could be hypothyroid symptoms Dils. Try to keep on same dose for 6 weeks have a blood test and increase if needed by 11.5mcg or 25mcg stay on that for another six weeks and have a fresh blood test. It takes six weeks for the new dose to build up and then be properly used. It is not a good idea to keep changing dose - it makes the blood tests unreliable. You will probably get all sorts of strange symptoms as your body adjusts to the new dose, you must give it a chance it is a very slow process, requiring a lot of patience.
Dils you can eat rice, that isn't a problem. Sometimes cutting out gluten can help so it's worth a try to see if it helps. Here is a recipe for gluten free chapati
This is a really quick and easy recipe for a flat bread or chapati made with gram flour (besan). This flour is made from chick peas so is also high in protein and gluten free. I had these to accompany a potato curry the other night - but they would be great with any stew, dips or even on their own - they are quite 'moreish'. They really are very easy and only take a few moments to put together. You can substitute the gram flour for plain/all purpose flour if you would prefer and they would work just as well, but I like the interesting 'nutty' taste of the gram flour.
ingredients:
1 cup gram flour (or plain flour/all purpose flour would also work well - either plain or wholemeal)
1/2 cup warm water
1 tbs oil
1 tsp salt (or to taste)
additional optional extras:
1 tsp kalonji (onion) seeds
1 tsp cumin seeds
1 tsp fennel seeds
The above recipe makes 4 flat breads - but can easily be multiplied to make more according to what you want.
Sorghum is a goitrogen, so not good for thyroid function, though many of us eat goitrogens, just not too much of them. Bananas are an alternative source of carbohydrates.
Dils don't get too worried about your diet, you have to do the best you can with what you have. Try and get an increase in thyroxin but more slowly, so don't go from 100mcg straight to 200mcg. Try 125mcg first, wait 6 weeks then if you still have symptoms try 150mcg and so on.
Try and eat more bananas, dal, rice and vegetables, instead of wheat and sorghum chapatis. You may need to eat a bit more yoghurt to balance the protein.
O yes i remebr abt lentil flout yeah these flour are avalibl here. We use it foraking snacks. But it come very hard my.mum and sis used to make lentil snacks i have them regularly but not for chapatis.
I think sorghum is good - lots of B vitamins. When I lived in Africa they mixed it with cassava flour to make a strange very thick porridge like dough so thick you picked it up made a ball than a hollow in it like a spoon and scooped the vegetables or whatever you were eating into it and ate it all. It was a very healthy food and tasted lovely. I would use the sorghum if you can - I wonder how you use it, is it any good in chipatis?
Yes we use it only for chapati by adding salt in flor and kneading it with water. It kneaded as whear flour quantity as u want. But making chapati is quite tricky sum ppl use water for spreading it sum use ziplock bag for spreading it.
I never made i i just saw video.my sis told.me but i never ate it.
It is the gluten in wheat that makes it so elastic a dough, non gluten flours are much harder to work and can be quite dry in texture. I guess only a small amount of sorghum flour can be added before making the chipati to difficult to make and perhaps affecting the overall taste/texture once cooked. I loved making chipatis in Africa on a charcoal stove in a big thick metal pan. I used wheat flour only. I was 23 then and no hypothyroid problem π
Just observe the pain and take note of what it is like try not to let it worry you what can you do anyway whilst it is happening? Not a lot. Your ECG was clear if it is heart pain it will most likely be like mine and just be annoying but not serious. If it is indigestion this will pass. Nuts do give me indigestion so I just eat 5. Max at a time but have them later again when the last lot have gone properly down. I got all sorts of strange aches and pains with this disorder in the end I got so tired worrying about them all I gave up stressing. You need all your energy to concentrate on getting better. I know all my pains now - lots of old annoying friends....
I had a wooden board and a wooden rolling pin to flatten them once I got the round shape - thatβs an unusual use for a ziplock bag very inventive ππ½
For wheat we have wooden board and rollingnpin butnfor sorhoum chapati it is difficult to.flat on wooden board i tginl its feel.sticky.or any orher rzn..i never.made it my sis told me.abt that.
Must be more tricky to make strange it is more sticky than wheat maybe water added but no gluten so it gets soggy not pliable - very interesting. I must try making one I lost my chipati board and pin but it does no matter if I am gluten free. I am off to my allotment now to plant some beans and potatoes
Haey wao planting isnt it intresting.. Here we just buy it from market. No 1 palnt here in not my area may be in other areas ppl plant it.
My hubby get me and i.cook them..
Just i have to tell him propr name. Cox he used ro say wotever u desired its.avalbl.in market..
Itsy.prblm in makeup or foods whotever i wish i coulndt get easly... Cox.i use internet and here imported things are least avalbe due to less demand of area.
Ooh! You lucky thing! I so miss my allotment!π»π. Now I can only potter in my little garden, but it's still a joy. Couldn't be without itπmy brain would shrivel lol! xx
I think gardening the best thing ever I am always happy up on the plot beavering away I stay there till night fall at this time of year - so much to do.
Oh so do I ~ it's a joy! I could never be without a garden! I feel sorry for these poor souls who live in high rises. They perhaps don't even want a garden anyway, but it still upsets me. π» most people near me have slabbed everythingπ±seems such a shame, they used to be such productive and pretty gardens ~ I fear skills will be lost, to say nothing of wildlife ~ so sad. π
I struggle to do mine sometimes, but the rewards are so worth it. I used to grow most of my own fruit and veg on my allotment, but that avenue of pleasure has been closed of to me now, thanks to being ill for so long. It must be lovely to do it for a living thoughπ·x
Yes I quite agree ππ½ I am very fortunate after I became so ill with undiagnosed hypo then got treated I decided to retrain in what I loved doing and it worked out well for me coupled with NDT has improved my condition immeasurably
Are you able to get your vitamin and mineral levels tested? Often we are low in Vitamin B12, Iron and Vitamin D which can also make us feel quite ill. Are you able to get good vitamin supplements where you are?
You could probably do with trying a higher dose of thyroxine. Would your doctor let you try taking 125 mcg thyroxine as your T3 is a little low? I'm not sure whether Evening Primrose Oil will help but it won't do any harm. Just don't take any other medicine too close to the time you take your thyroxine. If you take thyroxine in a morning, take Evening Primrose or any other medicine in the afternoon.
I got swelled in preg but never done tsh dr didnt recoomend me
After c section my swelling reduced at some xtent but it came back and strt to feel chuby more than in pregnancy then i got tested tsh 4 months bfr tsh was 60
Oh my goodness you were very overtly hypothyroid it is good you have gone down from such a high TSH of 60 and as your tests were in the evening it would have been even higher in the morning. I was 9 months before mine was got down to 0.5 ish
Bit more tricky to cut up but chopping them into 1/4s is still possible! I find teeth are quite accurate. A study was done and they found it did not affect the overall dose if it was cut up and any slight daily variation was balanced out. It takes 6 weeks to be fully absorbed so chopping it into smaller doses does not matter greatly in the grand scheme of things. You can get pill cutters here ok for halves but 1/4 are better with teeth!
I think that Dils is struggling because rice and wheat are her diet staples. It's much easier for us with access to a variety of foods but perhaps in Pakistan she doesn't have that choice or money to afford other foods?
Not lazy - you are poorly and that makes you tired because your body can not convert food to energy properly without enough thyroxine and has to store it all as fat - it has no option.
Then what abt meal here mostly white rice and wheat meal have iy.
Also Pakistani food is similar in many ways to Indian food which can be very healthy and make plain food wonderful with their spices. Indian happens to be my favorite and I've learned to cook my own and combine my own spices. As restaurants' goals are to bring you back for more good food, healthy ingredients-as with many restaurants- are not always a priority. They season their food for American tastes which usually means adding sugar and too much salt, IMO. I was married to an Indian many moons ago. My fault, not his, things didn't work. But still love the food. I once attended an Indian wedding in the states (the daughter of a doctor I worked with.) It was beautiful, lavish, LOTS of good food, and ALL vegetarian. Easier that you think. Take care. irina
Quinoa is from South America I think the Aztecβs ate it. It is a bit like sorghum or millet small grains can be white to red. It is the only grain with all of the complete proteins. You boil it for 15 mins and it goes all fluffy. I love the taste. In uk it is very expensive. It can be grown here but I think youβd need a large plot to get enough for eating! I might plant some on my allotment and see what it does π
I think the gram flour will be healthy too. It is the thyroid disorder that is causing the weight gain, rather than what you are eating. Gram flour has no gluten so should help you and the weight. It tastes great too.
Quinoa does not seem to have a Sindi name probably because it is not known in Asia. It only came to UK quite recently now it is everywhere! They can charge a lot for it and make lots of money - sorry but I can be a bit cynical!
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