The ME (CFS) global campaign #MillionsMissing is happening for the third time on ME Awareness Day, 12 May 2018, following the successful Jen Brea film Unrest. For the first time ever, it will be in Greater Manchester - my.meaction.net/events/mill...
There are campaigns in London and many other places too - facebook.com/millionsmissin...
As part of the campaign, Belle and Sebastian singer calls for action on ME - youtube.com/watch?v=FX1F-y8...
Salford patient Karen Morris has taken photographs for #MillionsMissingSalford and #MillionsMissingTrafford.
She set up the ground-breaking national Healthwatch ME feedback project and sister project with Greater Manchester CCGs as part of the Devolution pilot.
She encourages all patients to keep giving direct feedback through different organisations such as the Patients Association, Patients Voices, Care Opinion and others, as there are too many patients without proper medical help or care, forgotten about, without a voice.
Karen has also put vlogs and videos of patient stories on her YouTube channel - youtube.com/isupportmeresearch
Karen runs a support group, ME CFS Manchester - memanchester.wordpress.com
#MillionsMissing have produced a factsheet about ME/CFS - millionsmissing.meaction.ne...