#MillionsMissing Campaign: The ME (CFS) global... - Thyroid UK

Thyroid UK

140,470 members165,270 posts

#MillionsMissing Campaign

lynmynott profile image
lynmynottPartnerThyroid UK
1 Reply

The ME (CFS) global campaign #MillionsMissing is happening for the third time on ME Awareness Day, 12 May 2018, following the successful Jen Brea film Unrest. For the first time ever, it will be in Greater Manchester - my.meaction.net/events/mill...

There are campaigns in London and many other places too - facebook.com/millionsmissin...

As part of the campaign, Belle and Sebastian singer calls for action on ME - youtube.com/watch?v=FX1F-y8...

Salford patient Karen Morris has taken photographs for #MillionsMissingSalford and #MillionsMissingTrafford.

She set up the ground-breaking national Healthwatch ME feedback project and sister project with Greater Manchester CCGs as part of the Devolution pilot.

She encourages all patients to keep giving direct feedback through different organisations such as the Patients Association, Patients Voices, Care Opinion and others, as there are too many patients without proper medical help or care, forgotten about, without a voice.

Karen has also put vlogs and videos of patient stories on her YouTube channel - youtube.com/isupportmeresearch

Karen runs a support group, ME CFS Manchester - memanchester.wordpress.com

#MillionsMissing have produced a factsheet about ME/CFS - millionsmissing.meaction.ne...

Written by
lynmynott profile image
lynmynott
Partner
To view profiles and participate in discussions please or .
1 Reply
shaws profile image
shawsAdministrator

Very touching video and I hope there's some solution for these people who suffer.

Not what you're looking for?

You may also like...

Healthwatch England have a survey - PLEASE complete it!

Healthwatch England are supportive of the patient groups' T3 campaign, as they have heard of the...

Campaign Everyone ?

Following @[35378] wonderful post a couple of days ago Link here -...

Thyroid UK T3 Campaign Plan

I just thought I would write a post about what Thyroid UK plans are over the coming months in...

A new digital service giving patients access to records to be trialled in Bridgend

Just noticed this potentially interesting development in Wales regarding patient access. Afraid I...

Has anybody seen Dr Annice Mukherjee or Dr Tara Kearney? Feedback please!

Well you all know that it never rains but it pours with our conditions so alongside Hashimotos, I...