I’ve been discharged for self medicating!

[MissFG]

Received my scan results today and wanted to discuss the slightly hypoechoic and coarse calcification as it’s a singular module.

Rang to see if I could get a telephone or f2f consultation with my Endo for his secretary to tell me I’ve been discharged.

They agreed not to discharge me until I advised them if I was going to buy UK licensed T3 or not update them at all. Obviously if I said I was self medicating they’d discharge me which is what they’ve done anyway. Yet I’m still suffering with thyroiditis.

Should I see my GP and ask for a second opinion with another Endo or kick off and get reinstated with my previous Endo?

I’m also going back on a small amount of thyroxine. Not that I want to but my CCG says my GP has to look after me and continue to do bloods etc if I’m on it.

[shaws Administrator]

Is this blackmail or not? There's no reason they cannot look after you if you are sourcing your own T3. After all you're saving the NHS lots of money and feeling better on it too. You can get a prescrip for levo but you don't have to fill the prescription.

If you haven't signed the Petition about the withdrawal of T3, many without notice I shall give you a link. You should also see your MP and complain. MP could also talk to Lyn Mynott at TUK.

thyroiduk.org.uk/index.html

[MissFG in reply to shaws]

Signed a long time ago thanks Shaws

I just feel abandoned! If I don’t take any levo it’ll show up on my FT4. I can’t win but felt no benefit. Tbh felt rubbish so with my Endo’s agreement we stopped it as ended up on only a low dose anyway.

[MissFG in reply to shaws]

Shaws any idea on my ultrasound results? Or would it depend on if it’s over 1cm?

[shaws Administrator]

I please myself now as I believe quite a number on the forum do.

I am fortunate to have no clinical symptoms - have never been in an ambulance to A&E since I switched to T3 (not that it suits everyone). I also tried NDT which many on the forum have found has alleviated their symptoms and which used to be prescribed if levo wasn't improving symptoms.

The BTA and RCoP removed NDT, through False Statements and now T3 has been withdrawn due to cost. Never mind people are unable to work and some members of the families don't understand why, when we are taking prescription meds we are still complaining and are given any other prescriptions for the symptoms, probably as they don't have sufficient T3 in their bodies.

GP stopped prescribing T3 so I've sourced my own. I have a yearly blood test.

I thought "what is the point of toeing the line with 'supposed to be experts' " who don't really have a clue of relieving clinical symptoms and the whole aim is to rely on TSH and T4 alone. I was also very fortunate to have seen two doctors, both trained before levo and tests and one in particular who was pursued by the GMC for treating 'patients' and not blood tests. It wasn't the patients who complained but one of the doctor's admirerers did a calculation of the 'odds' (just read it again yesterday) of his appearances at it was 10,000,000 to 1. This was for diagnosing and prescribing according to symptoms. One Endocrinologist told his patient (unknowing she was also seeing the doctor) that 'we've got him now'. Sadly this doctor's patients and staff were distraught when he died of a stroke. There is no other doctor so courageous these days.

My body is relaxed, warm and symptom-free. Heart is happy and calm (my heart is always the dictator to whether or not my dose is optimum).

Some members have seen sympathetic private Endos/doctors but that would mean paying or sourcing their own hormones which might well be beyond most.

If you put up a fresh post to ask what is "hypoechoic and coarse calcification" to see if someone can advise. I do know you must be very worried and no expert has come to your aid, so far.

[MissFG in reply to shaws]

Thanks Shaws I know I’ll get there! I’ll do another post now